For the greatest Cystic Fibrosis hero I know.  He was an amazing fighter, artist, lover of music, theater and most of all he loved his family.  His kind and loving soul will be greatly missed by all the lives he touched.   

We are accepting donations in lieu of flowers.  The donations will be divided between the Cystic Fibrosis Foundation and the cost of his memorial service.

Please share any comments and photos for the family and friends of Alex that are not on social media.