Alan's DIPG medical journey!
From myself Michel/Evelyn and the entire family.
Hola amigos/amigas y familia como muchos saben Mi sobrino Alan de 7 anos (el hijo mas joven de Midy y Ricardo) lo diagnosticaron con un tumor maligno en el cerebro llamado DIPG. Yo decidi empesar este go fund me para ayudar en el aspecto monitario que sera necesitado en este tiempo tan dificil. No hay muchos recursos o estudios en este tumor. Pero yo anticipo que Midy y Ricardo necesitaran ayuda para cualquier decision que tomen para Alan. Por favor ayudenos en lo que puedan. Todo vale hasta rezos. (perdonen no se escribir mucho en espanol)
De parte mia Evelyn/Michel y la familia entera.
Since being diagnosed in February, the family has chosen an out of the country treatment for him. He is currently being treated in Monterey Nuevo León Mexico . He is having intra-arterial chemotherapy. After having just one treatment, a follow up MRI showed 50% shrinkage in tumor size (God is good)! Since then he had his second treatment and will have his follow up MRI and 3rd treatment at the end of April. Alan is in great spirits and we have noticed he is walking better and his eyes looks visibly better. We pray he continues to improve and we can continue to provide him with this very necessary treatment. The only problem we are concerned with is the cost of it. Each treatment cost approximately 8k or more and this does not include flights, stay, food or anything else. This cost is just his actual treatment. Also he is currently being weened off steroids that were initially prescribed. Once he is completely off of the steroids he will need to start immunotherapy which has a price of about 14k each and they anticipate he will need at least 3 sessions. Unfortunately since this treatment is only available out of the country there is no insurance coverage and everything is straight out of pocket. We thank everyone who has donated, these 2 first treatments would not have been possible without your support. We are humbled and deeply thankful forever. We will definitely need continued support and prayers. For pics and more frequent updates please follow #Alanstrong on Facebook.