Prayers for Alana Prettyman

$16,440 of $25,000 goal

Raised by 226 people in 49 months
Emily Mc
on behalf of Alexalynn Shoultes
 REHOBOTH BCH, DE

https://squareup.com/market/HUGSFORALANA
https://www.facebook.com/hugsforalana

On Wednesday, December 16, 2015 at 11:48am, Alana Rose Prettyman grew her angel wings. Knowing this was coming didn't make losing her easier, but she is at peace now. She fought a great fight. We love you so much baby, look after mommy and daddy... we need you. 

God bless you all.

Thrive to be the best you can be for your beautiful children.

Much love,
Alexa & Kyle
4829721_1450301044.8729_funddescription.


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Please keep Alexa and Kyle in your prayers during this tough time.

Thank you all.

Love and light,
Emily
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Thank you everyone for your generous donations daily!

Love & Light,
Emily McEvoy
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Days lately have been up and down, and sometimes underground. We battle everyday with crippling muscle spasms and seizures that won’t seem to let up. We are always in search of what would make her just a little more comfortable. We are trying to increase some of her medicines for her neuroirritability, increase the dose of her oils for her spasms and seizures. We are trying our best to work with what we have and not overload her with new drugs. Trying to find a good balance between comfortable and sedated is our hardest task. We have been seeing a lot of progression in her disease. It seems as though she has nothing left, this disease is taking her from us. No voluntary movement, no protective instincts, trouble with feeding, harder to console, the onset of seizures and the haunting muscle spasms. But through this terrible life robbing disease, she has had something that not everyone can say they’ve had: and that is to love and be loved. Her legacy will live on through us as we strive to bring the community together, and raise funds for research, good causes and sick families in desperate times. Please help us continue her legacy but donating, praying, shopping her Tees online and contributing to local fundraisers. Our gratitude could never be explained, but thank you all from the bottom of our hearts. For you all that have helped us buy some time with her by not feeling the financial burden of not working, it means more than the world. Every moment spent with her is a moment we treasure. And thanks in advance to all of you that keep this going for us.

God Bless You All, and thrive to be the best you can be for your beautiful children.
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Last night wasn't good.. All night she stopped breathing out of the blue. It happened very often. The scariest part is that its her brain signals telling her to not to breath, its nothing oxygen or bagging her will fix. Her brain signals have to kick back on. She was so uncomfortable all night, she needed valium 2 times last night alone and a few times during the day. We had to make a hard decision last night..and after how scary last night was, I think we need to start looking at funeral arrangements, caskets and headstones.

I try to only post good things and good pictures to keep the thoughts and memories mostly positive.. but there has been a lot of rough times lately. We still need your prayers everyone. Prayers for her to be comfortable, pain free, and when that time comes, that he takes her in her sleep. He spared us last night..

Hold your children extra close, you never know when your life could turn around and everything could change.
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Read a Previous Update
R Craig Nantais
48 months ago
1
1

Kyle, I believe I met you tonight and very sorry that I didn't make the connection that you were Alana's father. Please forgive me and let me know when would be a good time to meet to discuss your foundation.

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Lindsay Marie RN
42 months ago

I am so sorry for your loss. I have a son the same age as your daughter and words can not express how much my heart aches that you lost your daughter. I have never met your family but your daughter is so precious and may she rest in peace ♥ lindsay leszcynski

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Debbie Karcher
42 months ago

I have prayed for Alana and her family ever since I read about her. God has a very special angel in heaven today. May God surround you, her parents and loved ones, with love, strength and peace. I will continue to pray for all of you. God bless you.

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Megan Kennedy
48 months ago

Praying for your beautiful baby girl and your family. Sending love and light to your beautiful angel. May she be pain free and comfortable. Praying for a miracle.

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Desta Ayana
48 months ago

I still beleive that almighty can do a mirracle and heal Allana.

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$16,440 of $25,000 goal

Raised by 226 people in 49 months
Created June 4, 2015
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$25
Anonymous
42 months ago
SW
$50
Susan Watkins
42 months ago
$50
Anonymous
42 months ago
$30
Christina West
42 months ago

In honor of a precious angel, Alana♥

CA
$50
Carlos Ayala
42 months ago

Your beautiful daughter was lucky to have such great parents.

AO
$25
Amy ODonnell
42 months ago
$20
Elena Mason
42 months ago
GW
$25
Gigi Windley
42 months ago
TP
$20
Tara Palmer
42 months ago

May you rest easy beautiful girl

$20
Anonymous
42 months ago
R Craig Nantais
48 months ago
1
1

Kyle, I believe I met you tonight and very sorry that I didn't make the connection that you were Alana's father. Please forgive me and let me know when would be a good time to meet to discuss your foundation.

+ Read More
Lindsay Marie RN
42 months ago

I am so sorry for your loss. I have a son the same age as your daughter and words can not express how much my heart aches that you lost your daughter. I have never met your family but your daughter is so precious and may she rest in peace ♥ lindsay leszcynski

+ Read More
Debbie Karcher
42 months ago

I have prayed for Alana and her family ever since I read about her. God has a very special angel in heaven today. May God surround you, her parents and loved ones, with love, strength and peace. I will continue to pray for all of you. God bless you.

+ Read More
Megan Kennedy
48 months ago

Praying for your beautiful baby girl and your family. Sending love and light to your beautiful angel. May she be pain free and comfortable. Praying for a miracle.

+ Read More
Desta Ayana
48 months ago

I still beleive that almighty can do a mirracle and heal Allana.

+ Read More
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