Quincy's Heart-Transplant Expenses
On June 14, 2013 Quincy Rose Rogers was born with Dilated Cardiomyopathy and Left Ventricle Non-Compaction. This means that her heart was too big (more than 2.5x too large); and that the muscle fibers in her heart did not lace together to make a compact muscle, preventing correct pumping function.
Either of these could have resulted in needing a heart transplant on their own, but the combination was truly life threatening. After being life-flighted to Children's Heathcare of Atlanta Egleston, Q waited weeks to be listed for transplant, and then much longer waiting for an organ to be available.
Mom and Dad waited with her, living for the most part in a hospital room sleeping on benches or fold-out chairs. The wait was very challenging, and the surgery was even more terrifying.
Thankfully, a donor organ was matched, and Q came through surgery after some difficulty on September 4th, 2013 at just over 12-weeks of age.
Since then, Q has overcome a long string of challenges to continue to flourish despite the chronic heart condition she will live with for the remainder of her life.
Unfortunately, even with the best insurance Dad's company provides (and the cost that incurs every paycheck), the reoccurring expenses of medications, therapies, doctor's visits, biopsy and catheterizations, and the travel costs incurred to provide all of these services is simply outpacing our ability to stay ahead of the collections callers.
After four wonderful years where every day we are infinitely thankful for every extra moment we have with Q, Mom and Dad are now pushing the rock of more than $30k in medical and related debt up a steeper and steeper hill every month. It's a rock that constantly threatens to crush us.
The collections agents from Children's Hospitals are incredibly nice and helpful and understanding people, but they have a job to do, and medical services simply are not free. Dad has nearly crippling anxiety from constantly robbing from Peter to pay Paul back for a few more days.
The need is pretty urgent. Q has quite a few medical activities scheduled, and in the era of "please pay copays and coinsurance at time of service" we cannot prioritize anything in front of some of these expenses. Not food, not car, not rent. So really, the need is urgent and things are not pretty.
Q's entire story can be read at her facebook page ( http://facebook.com/aheartforquincy), and we invite everyone to follow along as we continue to live each and every day like another change is just around the corner.
Of course, GoFundMe chides me every hour that I've not updated recently and that friends and family in my network are "losing engagement" with my campaign.
"My campaign." I feel like I need to drag out my D&D books and roll some dice.
"Hobgoblin of Crushing Debt cast Collection Call" *dice roll and clack behind the screen* Critical Hit! You take six points of emotional damage!
"I drink a potion of Support from my Friends.
"Your potion restores your faith in humanity and heals two points of emotional damage. Six more Hobgoblins enter the fray. Roll for initiative.
"*dice roll across the table* I got a 3.
"You're gonna need a bigger bag of potions."
...or something like that. That's my life right now. Debt, love, and some incredibly geeky humor.
Thank you so much, again, to everyone who has chipped in to help us. I literally don't have the words to express what I feel. And, well, we all know that's saying something right there.
But, it is a campaign, which sounds like a series of battles to me, and we can use all the help we can get. Chip in, read along, kind thoughts and words, and PLEASE share this campaign if you haven't. People I've never heard of before have joined to help cover the catastrophic costs we've incurred over the years, and that only happened because people shared it on their walls, with their friends and in the groups they follow. And it helps SO MUCH.
Thanks everyone. Honestly, sincerely, deeply, Thank You.
We've made a great start. There's a long long way left for my family to go. Your help means everything to us.
Conversely, GoFundMe is a platform, and it has all these widgets and methods for maximizing "reach" and "visibility" and "conversion" (the last time conversion was a factor in any equation I was a part of was week-of-prayer at GSAA and I was a Junior...and there are jokes there to be made that I'm gonna let go, insert your own if you're so inclined).
Some of these I really appreciate, like the tool that helps me post thank-you's for donations. If you donate, you're getting a personal thank you from me. And as close to a prayer of thanks as my lips can utter.
Some, I don't; like the reminder widget that tells me down to the minute how long it's been since I posted an update (2 Days, 16 hours, and 44 minutes to be precise).
Look, I'm not going to post updates every day. That seems incredibly invasive. I'm not going to limit updates on Q to this venue, she has a Facebook page ( http://facebook.com/aheartforquincy ) and there's no charge to follow along. I have a cute kid, the internet likes cute kids, come enjoy our little part of the virtual-human-zoo, admission is free.
But, we have a real need. There are thousands of dollars in medical bills sitting just inches from my hands as I type this. I will tell you that the collections and finance people from Children's Hospitals are some of the nicest and most helpful collections agents you will ever deal with. Seriously. But they're also persistent, as they should be.
The wolves are at the door, and we've quite literally run out of time and ways to avoid them.
In three day's we've made an amazing start. The kind of start I didn't believe we could make, to be honest. Not because I don't believe in people or friends or...or whatever. Because I've been living with these wolves on our backs long enough that I can no longer visualize a victory.
We should have done this a few years ago. We should have stayed on top of this from the beginning. I should never have thought we could "figure it out" (one of my downfall sayings) on our own.
So here we are. Asking for help. A lot of help. And all I have in return is our most heartfelt Thank You.
If you cannot give, please consider sharing the campaign in some way. I'm sure you can click on it and do the thing (it takes care of that for me, so I've not actually done the thing on my own wall, so caveat emptor and all that).
I have just realized that I have, absolutely, the driest sense of humor in human history. Sorry about that. Being raised on British TV by a pair of anglophiles will do that to a kid.
I digress. Because babbling is a defense mechanism, and typing these things makes me HUGELY uncomfortable. If you read this far, bravo.
We've received more help in three days than I could have ever predicted. For that we are inexpressibly thankful, and we will continue to do our best to thank each and every person who helps directly and personally.
We have a long way to go. The need is huge. So much bigger than I can even bare to think about. We're asking, thank you for listening.