A Future For Freyja
As a single mum with three young girls, Lizzie's life has been turned upside down. Along with the anxiety and stress that comes with having a critically ill young daughter, she has somehow to keep it together for all the girls and try her best to maintain a normal household while underneath it she's a wreck.
The disruption is hard of course and significant practical help is needed to cope with the logistics of maintaining some kind of normality for the other girls and providing family life in the face of such a full on and rare disease.
There are many unplanned expenses and associated treatment costs for the family to endure as Liz devotes herself to Freyja's battle. She needs your help to not only help find a cure but to support the family in this terrible time.
Good karma to you all
Sorry to say that our little Freyja has been suffering unwelcome side effects over the last week. Spiking temperatures, swollen tummy and painful swelling in her joints have meant for an uncomfortable time for her. Thankfully hydrotherapy and cabbage leaf wraps have helped with joints allowing her to get about a little. Along with those high temperatures, vomitting has returned. Unfortunately, due to the Australia-wide shortage of particular antibiotics Septrim and Bactrim, her baseline antibiotic has to be compounded and is much more expensive. So too is Zofram, an anti-nausea drug that Freyja has twice a day.
So it's back to Melbourne for scans and more tests this week, and to obtain all the monthly medication through the hospital which will make things easier and more affordable for Lizzie. We are also waiting on referrals to Immunology, Rheumatology and Orthodontics to help with side effects and mouth reactions to radiotherapy earlier in the year. We are hoping she will be well enough for her Make-a-wish trip in a few weeks time.
Keep it coming please donors and supporters. Battling cancer is a journey and the costs just keep on coming. Whatever you can do to help is always much appreciated.
On that note, a massive, massive thanks to Patrick and Justine, along with the whole MotoGP paddock for their continued support of Freyja. The second charity auction ended with a donation of around $15k to help with ongoing bills and medicines. Awesome team, thanks so much.
Good karma to you all.
Freyja's Care Team
The MotoGP Auction - The Sequel is the biggest news and bids continue to come in, raising badly needed funds for the family's financial survival. Loads of great items to bid on.
Please continue to share, share, share to your networks as this will help grow the audience and the size of final bids.
Maverick Vinales won this weekend's Philip Island race at his fourth attempt and it brought him to tears as he finally hit the top spot finish in Australia's GP. His support and that of the other teams and riders for Freyja has been nothing short of incredible. Liz and the family are truly indebted to their generosity and support at such a tough time.
Remember to share, share, share!!
love and good karma to you all
Freyja's Care Team
we hope you're all well and in good spirits.
There’s some excitement in the Care Team this week as we have just kicked off MotoGP Auction – The Sequel. Those of you who have followed Freyja’s story from an early stage will recall we managed to raise a good sum from the last one in 2017. We know this won’t be as big but nevertheless it will be a big help to Lizzie as her finances have dwindled significantly over the year.
MotoGP riders and teams have again backed our little Freyja by donating signed clothing and equipment, 2 paddock passes for any MotoGP race weekend (2018 or 2019), all three days and access to the paddock. It’s a fantastic gift for a mad keen bike fan. The talented Israeli artist and well respected MotoGP journalist, Tammy Gorali, has donated a number of her works to the auction. Amazing!
What can you do to help? Please share this to your networks! It’s a little thing that can have a big impact. The further we spread the word, the more interested parties we reach… and the higher the auction goes.
See the auction live here: https://www.charitystars.com/foundation/a-cure-for-freyja
Freyja’s battle continues. Thanks for staying the course with her. You guys rock.
good karma to you all (share, share, share!)
Freyja's Care Team
we hope you've all had a good week.
The ups and downs of cancer treatment and therapy continues... but happily this week we had just a little bit of good news, for once... being at home has really worked for Freyja's liver condition... the test came back and shows she has has recovered well from another break from treatment. The Melbourne, Sydney and Canberra teams are meeting next week to talk about Freyja's plan. We may well have to stop immunotherapy as an option as her reaction to the side effects gets worse with each protocol.
Freyja and her sisters have been home for school holidays baking, doing arts and crafts and playing in the garden created by C3 Church community team lead by Natalie and Andrew, and Jo and Ian Delaney who have managed to get the ionic hydrotherapy spa into the garden. With a few additional works to complete, the lovely hydrotherapist Carol will be over next week to start rehab with Freyja.... This will help her mobility and put a smile on her face, she loves the water.
The UK team continue with their fundraising efforts. This weekend starts a series of new events involving the Burgess&Agace Family for Freyja. To kick things off Uncle Rob and Sonia will be running the Manchester Half Marathon and in true Freyja style they will both be dressed as Wonder Woman. Rob says: "If the idea of me waddling around in this skimpy little number isn’t worth a few quid I don’t know what is!" Hear hear Rob! Lots more planned over the next few months too.
good karma to you all
Freyja's Care Team
Sending much love and support to Greyja and Liz, diagnosis are really hard to hear but at least they now know what they are dealing with. I have a good friend who has just been diagnosed with another type of Melanoma stage 3 so we are doing our very best to support him emotionally and working hard to increase his general wellness through a specific diet, lifestyle, natural therapies, essential oils and supplements. I am no trained professional (YET) however I am currently studying Naturopathy and am extremely passionate about natural medicine/therapies playing a huge part in general wellness and disease control and have been using Essential Oils and natural alternatives for support and reccomend these to others. Perhaps if the family have not already considered a Homeopath/Naturopath to assist in Freyjas treatment, Things like Vitamin D levels, taking high doses of Vitamin C and fish oil and also the support of some essential oils. I am happy to discuss this further with Liz if she wants to. My thoughts and prayers are with them all. xx
Hello, I just wanted to see if EJ knows about the travel & accomodation rebate she can get? We travelled a fair bit, to Sydney and back from a Canberra with our youngest bub & it really helped! I can't imagine what Ej & her little family are going through. Ej - I don't know if there is a "god" but in situations like this I will say prayers for you and your family, I have faith that there is a higher power of some sort and it's well worth 2mins of my time each day - my thoughts are with you and sending you strength to get through this xx