Aeveries Nut Detection/Service Dog

$13,294 of $15k goal

Raised by 237 people in 20 months
SL
Stephanie Labile
on behalf of rosina labeaune
 ALISO VIEJO, CA
As a mother i ask you im reaching out to you for help! Our daughter is very sick. It is so hard to go to bed at night an think about the next day, will our child live through the day? Will our child be placed on a breathing machine today? What does tomorrow hold for our little girl? 

Our daughter has been through countless hospital stays more than you and me put together, she needs this service dog to help ease her anxiety and stress. What 5 year old has to think about not touching a table, chair or door handle constantly? Everything she touches, breaths and comes in contact can take her from us! Please help us raise the funds to be able to get her a Service dog that will be trained to sniff out peanuts amoung other of her allergens, that will help her with mobility, stress and anxiety too! Please every penny helps get us closer to our goal. This could cost us her life. Im asking you from the bottom of my heart. 

Meet Aeverie. She's your Aliso Viejo neighbor. She's a sweet five year-old girl, with a beautiful smile and a sweet disposition... if you met her in person, she'd brighten your day.

You won't see Aeverie out about about in AV much though... not in restaurants, or the ice cream shop... she can't even attend school. Why? Aeverie has what's known as ANAPHYLAXIS. She's SEVERELY allergic to 65% of ALL FOODS, plus pollen, dust, latex, penicillin, etc. etc. etc.

She also has asthma, Ehlers-Danlos Syndrome (a connective tissue disease) and Muscular Distrophy, so she has to wear braces on her legs.

So are food allergies THAT big of a deal??? I used to think... "Allergies (sigh)... okay... so if your kid eats peanuts, what's gonna happen? They'll get a rash? Their face will get a little puffy?" NOPE. For Aeverie, her allergies are SEVERELY LIFE-THREATENING.

Here's how Wikipedia defines Anaphylaxis: "Anaphylaxis is a severe, potentially life-threatening allergic reaction. It can occur within seconds or minutes of exposure to something you're allergic to, such as a peanut or the venom from a bee sting.The flood of chemicals released by your immune system during anaphylaxis can cause you to go into shock; your blood pressure drops suddenly and your airways narrow, blocking normal breathing. Signs and symptoms of anaphylaxis include a rapid, weak pulse, a skin rash, and nausea and vomiting."

Not long ago, someone kissed Aeverie on the forehead. Without anyone's knowledge, that person had apparently eaten something Aeverie was allergic to. Aeverie ended up in the ICU on a respirator for SIX DAYS. She almost died. Now she wears cute little girly shirts that announce she can't be touched or hugged by strangers. 

It takes a village to keep her safe. And WE'RE her village, friends! There's something that can help save Aeverie's life. There are now very specialized service dogs, trained super specifically for Aeverie's allergies. The dogs are trained to sniff, anywhere and everywhere, and alert Aeverie to danger. These dogs are a miracle for a little girl like her... but they're also expensive. About $15,000. With the high cost of Aeverie's medical treatments and highly-specialized foods, we just don't have the money. But Aeverie needs this dog. So we've decided to ask for help. Aeverie has to fight every day, but she's a happy girl. By helping provide this service dog, you can make her fight easier -- and SAFER. She also needs it for anxiety and mobility, because of her Muscular Distrophy. 

 THANK YOU FROM AEVERIE AND FAMILY FOR YOU DONATION.
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Update 11
Posted by Stephanie Labile
18 months ago
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1
1
Thank you everyone that came out on Saturday October 10th to support Aeveries fundraiser! Aeverie and our family were truly touched by the support and community coming together. This was an unforgettable day for us all but especially Aeverie. We still have tones of baskets up for auction coming up on Facebook page Resident of Aliso Viejo. Please ask to join amazing baskets were left for last! Kids dental package an Orthodontist package are only two of many amazing Auction up for grabs. Keep sharing our link! Thank you so much for the outpouring support ♡ #AV4Aeverie #AlisoLovesAeverie
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Update 10
Posted by Stephanie Labile
18 months ago
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1
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We have hit our $5k mark!!! Thank you to all who have helped by donating and sharing. Remember big fundraiser on Saturday October 10th at Jimboy's tacos in Aliso viejo. From 12-7pm
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Update 9
Posted by Stephanie Labile
19 months ago
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Aeverie is now settling in back at our home after a long 4 days in the hospital and 3 seizures that were captured on the Long term EEG with video they have given us an answer. Aeverie is Not having Epileptic seizures coming from the brain, her seizure like episodes and al due to her Stress and Anxiety, PTSD ( post traumatic stress disorder) Aeverie is living in fear, since her last Airborne Anaphylactic reaction in August from entering a bakery she started having seizures, nightmares and would say "I really want to be a big sister i don't Want to die!" This Service Dog will help her in many ways! It will be traind to sniff out peanut residue not visible to the human eye, it will also be a therapy dog to help Aeverie cope with her Stress and Anxiety. It will help with her mobility as well. Help us give Aeverie a little peace of mind and help her be a little girl. Please continue sharing with your friend, neighbors and coworkers! REMINDER : Fundraiser with tons of Auction items up for grabs, including getaways, timeshares, orthodontist visits including all expenses!! At JIMBOY'S TACOS (in Aliso Viejo) FROM 12-7PM.. PHOTO BOOTH, RITAS ITALIAN ICE and DJ!! COME SUPPORT OUR BABY!! #AV4AEVERIE #EPIGIRL #ANAPHYLAXIS #AIRBORNE #SERVICEDOG
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Update 8
Posted by Stephanie Labile
19 months ago
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#AV4Aeverie #EPIGIRL had a great day yesterday with some surprise guests♡ every bit of joy is worth the wild to keep this little one in a happy place! We had a rough night as #EPIGIRL was sleep deprived and was only given 4 hours to sleep she isn't allowed any naps today!! Please keep sharing our #GOFUNDME link on your social media! Thank you!
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Read a Previous Update
Susan Hudson
18 months ago
1
1

My heart is broken for her! I have a very similar condition, but not to her extreme. Please run, don't walk to an alternative functional medicine dr. She needs to be tested for the root cause of this debilitating condition. Hidden gut problems are almost 100% the cause. God Bless!!!!

+ Read More
Joyce Hardison Newman
18 months ago
1
1

Has Aeverie been tested to know if she is allergic to the Dog? That's the first thing that came to my mind!! GOD BLESS HER!!! I will share this with my friends to hopefully raise more money!!! Hang in there Aeverie..God is with you!!! ♥ ♥

+ Read More
Lynn Freeman
20 months ago
1
1

We look forward to bringing a community together to achieve the goal of getting Aeverie her much needed service dog!

+ Read More
Kimberly Souza Iribarren
20 months ago
1
1

Let's get this sweet girl her pup!!! Xoxo

+ Read More
Diane Perdue-Davani
20 months ago
1
1

You're the best, Kimberly.

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Liseetsa Mann
14 months ago

My son was diagnosed with anaphylaxis to peanuts in 2009. Duke study was conducting a clinical trial that desensitized children from their life-threatening food allergies. With an 85-100% success rate, other studies were conducted and private allergists began offering the treatment. Oral-immunotherapy (OIT) has restored life to thousands of children over the last few decades. I invite you to join as us OIT 101 on facebook to be with parents and board-certified allergists as we unite to free our children and selves from anaphylaxis.

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Karen Wood Neill
15 months ago

I feel for you Averie. There are many people who have service dogs for your condition. Not only do they alert to potential triggers, they alert to anaphylaxis itself. It's made a huge difference for Brynn http://www.cosmopolitan.com/lifestyle/news/a37077/medical-mystery-allergy-disorder/. By the way, you don't mention MCAS, just severe allergies. If she has EDS, I would bet that she has some form of mast cell disease. Good luck on your campaign

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$13,294 of $15k goal

Raised by 237 people in 20 months
Created August 20, 2015
SL
Stephanie Labile  
on behalf of rosina labeaune
$5
Anonymous
13 months ago
$50
Anonymous
16 months ago
$5
Juan N Jessy
17 months ago
1
1
DJ
$410
Denise Jacques
18 months ago
1
1
RH
$500
Roberta Halls
18 months ago
3
3

Auction item: picture with speakers. So happy to be a small part of the event for this beautiful girl!

BV
$120
Brandi Vanderbeek
18 months ago
2
2
$50
Amber Heydinger
18 months ago
1
1

Payment for the basket won online. Thanks!

CV
$70
Carol VanderWende
18 months ago
1
1

Payment for #1017

LS
$5
Leslie Simpson
18 months ago
1
1

Hope all goes well. Good luck!

LM
$50
Laura Mazzulo
18 months ago
1
1
Susan Hudson
18 months ago
1
1

My heart is broken for her! I have a very similar condition, but not to her extreme. Please run, don't walk to an alternative functional medicine dr. She needs to be tested for the root cause of this debilitating condition. Hidden gut problems are almost 100% the cause. God Bless!!!!

+ Read More
Joyce Hardison Newman
18 months ago
1
1

Has Aeverie been tested to know if she is allergic to the Dog? That's the first thing that came to my mind!! GOD BLESS HER!!! I will share this with my friends to hopefully raise more money!!! Hang in there Aeverie..God is with you!!! ♥ ♥

+ Read More
Lynn Freeman
20 months ago
1
1

We look forward to bringing a community together to achieve the goal of getting Aeverie her much needed service dog!

+ Read More
Kimberly Souza Iribarren
20 months ago
1
1

Let's get this sweet girl her pup!!! Xoxo

+ Read More
Diane Perdue-Davani
20 months ago
1
1

You're the best, Kimberly.

+ Read More
Liseetsa Mann
14 months ago

My son was diagnosed with anaphylaxis to peanuts in 2009. Duke study was conducting a clinical trial that desensitized children from their life-threatening food allergies. With an 85-100% success rate, other studies were conducted and private allergists began offering the treatment. Oral-immunotherapy (OIT) has restored life to thousands of children over the last few decades. I invite you to join as us OIT 101 on facebook to be with parents and board-certified allergists as we unite to free our children and selves from anaphylaxis.

+ Read More
Karen Wood Neill
15 months ago

I feel for you Averie. There are many people who have service dogs for your condition. Not only do they alert to potential triggers, they alert to anaphylaxis itself. It's made a huge difference for Brynn http://www.cosmopolitan.com/lifestyle/news/a37077/medical-mystery-allergy-disorder/. By the way, you don't mention MCAS, just severe allergies. If she has EDS, I would bet that she has some form of mast cell disease. Good luck on your campaign

+ Read More
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