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Addy’s Heart

$31,365 of $35,000 goal

Raised by 738 people in 3 months
Created November 19, 2017
Adalynn Rogers was born with HLHS on January 11th, 2016! She has been a fighter and heart hero since that day! Addy recently had a decline in her medical status and was admitted to Vanderbilt’s PCICU! Her mother, Kristi Rogers posted her most recent update on Facebook as follows....

“The results from Addys echo along with her BNP showed that her little half a heart is very tired. It has done the job of a whole heart for 22 months but it’s not strong enough to keep her alive on its own! So with the teams recommendation we have decided to put Addy on the heart transplant list! This is probably the scariest thing we have gone through to date with our heart hero but for her to live the life we dream of for her a new heart is her only option! She’s not officially listed yet as all of the tests required to get her on the list haven’t come back we are hoping she will be listed next week sometime! We don’t know how long she will wait for heart but we do know she has to stay in the hospital until we get that call! Then after transplant we have to stay in Nashville until she’s discharged from hospital and 6 weeks after that so the doctors can keep a close eye on her! That means a long time away from home and her brothers! We are so thankful for the support system we have both at home and in people who have mostly never met Addy! I have a few heart moms who have gone through this and are helping me answer questions and figure out the benefits of insurance! We just want to see our girl grow up and a heart transplant is how we do that!”

Kristi and her family live in KY and as you can imagine the travel, food, medical and other expenses add up quickly! They also have 2 precious boys at home to care for and Kristi is expecting baby #4 in just a few weeks! I created this page with permission from Kristi to ask specifically for your prayers as these mean the most to them in this most difficult time. Also any donation, big or small, will go directly to this family in their time of need! Thank you all so much for your support and for loving sweet Addy! You can follow their journey on FB through their page as well: Prayers for Adalynn! (Link for page is posted below)

Additionally cards and other items for Addy can be sent directly to her at the following address:

Monroe Carell JR
Children’s Hospital at Vanderbilt
2200 Childrens way
Nashville TN 37232
Adalynn Rogers room 5741 PCICU
25497862_1511133765.3766_funddescription
https://www.facebook.com/Prayersforadalynn/
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Kristi’s post 1/28/18

Today we approved a tiny casket for Addy to be buried in. We answered questions about her for her obituary and wrote out what we hope she would have loved. I also learned just how much it cost to bury your child. Something no parent should have to know. The funeral home was beyond amazing at making sure we knew how loved Addy was and that they were going to take great care of her! We also got to see her today, and as painful as it was to see her and feel her ice cold skin I missed her, I missed playing with her hair, kissing her cheek, and telling her how much I love her. #ADDYSTRONG #myangel #CHDawareness
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Kristi’s update:

Tell me, what does it look like in heaven?
Is it peaceful? Is it free like they say?
Does the sun shine bright forever?
Have your fears and your pain gone away?

'Cause here on earth it feels like everything good is missing since you left
And here on earth everything's different, there's an emptiness

Oh-oh, I,
I hope you're dancing in the sky
I hope you're singing in the angel's choir
I hope the angels know what they have
I'll bet it's so nice up in heaven since you arrived

So tell me, what do you do up in heaven?
Are your days filled with love and light?
Is there music? Is there art and invention?
Tell me are you happy? Are you more alive?

'Cause here on earth it feels like everything good is missing since you left
And here on earth everything's different, there's an emptiness

Oh-oh, I,
I hope you're dancing in the sky
And I hope you're singing in the angel's choir
And I hope the angels know what they have
I'll bet it's so nice up in heaven since you arrived

I hope you're dancing in the sky
And I hope you're singing in the angel's choir
And I hope the angels know what they have
I'll bet it's so nice up in heaven since you arrived
Since you arrived
#FOREVERADDYSTRONG #myangel
Addy gained her wings
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From Kristi

Our family is extremely grateful for all the prayers and love everyone has extended for us and Addy. Tomorrow our family will have to say goodbye to the sweetest, bravest, strongest little girl I’ve ever known. Her brain injury is too severe for her to be a candidate for heart transplant. I’m broken. I don’t know how to live in a world that doesn’t have Addy in it. She’s fought so hard and been through more than anyone deserves. It’s not fair. I keep wishing this was all a bad dream and I will wake up tomorrow to it never happening. She’s had family in and out all day, we’ve watched Trolls and Finding Dory. We took a nap cuddling together and made keepsakes with her hand and foot prints! I don’t think I’m strong enough to do this. I shouldn’t have to be thinking about what outfit and bow to bury my daughter in but I am. I don’t think I can go home to all of her toys and clothes without her beside me. She’s going to be the prettiest angel and not be in anymore pain or scared ever again. No more surgeries or iv pokes or struggling to live. She’s going to give all the high fives and say too slow every time, run fast and say I’m runnin fast. I’m jealous they get to see her run and be happy. I can’t deal with the fact that I won’t ever hear her say Mickey mommy or love you mommy again. I don’t think I can do this but have to be strong for her. #ADDYSTRONG
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Lastest update from Kristi! Please, please keep them in your thoughts and prayers in the coming days!

My beautiful girl! ❤️ “Let her sleep for when she wakes she will move Moutains”

Yesterday they put her in a pentobarbital coma and are cooling her body to let her brain rest, since then she’s not clinically showing signs of seizures anymore but is having burst on her EEG still. She has a brain injury we’re just not sure how bad it is yet. Tomorrow morning they will start turning the pentobarbital off every 30 mins to allow her to try and wake up, but pentobarbital is a long lasting drug so it will take 2-3 days to get a good neurological exam on her. The wait is literally tearing me apart. I’m exhausted physically and mentally (of course having a newborn who is awake most of the night doesn’t help) but I want to be with Addy as much as possible begging her to keep fighting and stay strong because mommy can’t live without her. I know she can come out of this, she’s been through way to much for this to be what ends her life. She’s the strongest person I know and her strength and love are what get me through each day! She’s sooo loved by everyone on social media and by everyone at this hospital. She has nurses/doctors who come by just to see her and cry with me. Everyone is devastated to see her like this especially after everything she’s already been through! She has to pull through and be ok and I’ve pleaded and pleaded with God for her to do just that! She needs a miracle! #ADDYSTRONG #mygirl #pleasekeepfightingbabygirl
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$31,365 of $35,000 goal

Raised by 738 people in 3 months
Created November 19, 2017
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