A Cure For Ryan
"We shall draw from the heart of suffering itself the means of inspiration and survival."
In July 2013, Ryan was diagnosed with an extremely rare brain tumor - a pineal parenchymal tumor of immediate differentiation. The tumor was found via MRI after Ryan suffered a dizzy spell atop a ladder while working. He went through brain surgery, radiation, and many, many CT scans. A few scans after surgery (every 3 months), the tumor was finally found to be stable and unchanged, and his symptoms faded enough to allow him to work again. Then, after a year into working and getting on a steady routine with home life, Ryan's symptoms returned and again pulled him from work and, well... life. Mowing the lawn, playing with the kids, family gatherings, friends... everything made his headaches worse, which in turn, made all other symptoms appear and caused him to be basically bedridden. After many attempts at trying different medications, life routines, doctor appointments, doctors... we decided it was time to find another opinion/option. The doctors we worked with in Michigan had nothing left for us. This is when I reached out to a surgeon's office in Houston, Texas. Little did we know, through this communication, we would get Ryan answers and hope for a long, healthy life spent watching his children grow.
Dr. Dong Kim, whom specializes in pineal gland tumors, met with us in Houston a couple weeks after reviewing his MRI's and is willing to operate. This Dr. is confident he can provide Ryan and our family, a better life. A life free of this pain and suffering.
Dr. Kim is confident he can remove the tumor in its entirety leaving Ryan a strong possibility that he could be cancer free! We have been fighting so long for this, we are NOT giving up now!
Unfortunately, Ryan's insurance is not accepted outside of Michigan and a surgery of this nature will surely exceed any possible amount of affordability. With Ryan already being off of work for 3 months and the bills from previous appointments still piling up, we have hit a wall. We can't fight financially anymore, and our emotions have been through the roof. The continuous support and prayers from our friends, family, and strangers have gotten us this far. I know we can make it to the end of this battle. So many of you have already helped we know but this is our chance. Our chance to help this man to be free of pain and suffering. Our chance at a cure.
We are required to relocate to Texas for approximately 3-4 weeks for surgery/recovery, which means we will also be bringing our children Conner and Lily(1 and 2 years old), as well as provide care for our pets that will remain at home. All proceeds will go to this surgery and our travel and stay in Houston. If you cannot donate a monetary value, we ask that you please share this and keep us in your prayers. All support is welcomed and sincerely appreciated. <3
Thank you in advance, God bless.
Ryan has been a roller coaster since surgery, mainly downs. He's had two nights that he was able to eat dinner with us, but he has been nauseous and dry heaving the others. We thought he was past that, but the dry heaving returned again tonight. Of course, with the dry heaving comes more pain, and then healing becomes harder. I wish I could take it all away.
We saw the surgeon on Tuesday and he said Ry is healing fairly well, but they may need to place a shunt due to hydrocephalus. His next follow up appointment is on the 20th - this is when we will learn the final prognosis (his tumor was sent out again for testing), determine whether the shunt will be placed or not, and hear whether or not we have the okay to fly home on the 21st.
It has been a very stressful few weeks and we cannot wait to be back home. Lily keeps asking when we will be going home and if Daddy is better yet. Conner bolts into his room every time I open the door. It pulls at your heart strings when they're not able to love on him like they want to, but all I can do is pray for healing. Pray for them to have their Daddy back, and for us to be... Us again.
Our trip to Texas and our stay while here has been quite the struggle... Missed and delayed flights, hospital valet shattering a window out of our rental car, a struggle getting a new vehicle, a car accident after getting that vehicle, trying to manage care for Ry, care for the kids, work from 9-5 and 8-3 almost daily to try to stay caught up... I am extremely grateful to have my mother in law, Shirley, here to help.
I just ask that you all keep sending prayers our way; we could all we can get right now.
I know I haven't been doing too well at keeping up with pages, so please feel free to visit my personal Facebook page for updates from surgery and after. I have made the posts public for all to see as that is where most updates have been posted.
Thank you all for your continued love, prayers, and support. I cannot wait until we are pulled back together and can show you all our gratitude.
I love you, Ry.
I also have friends in Houston looking for a place as well. Praying for all hands that touch you and your family will bless you in every way possible!
I know some people in the area, they are looking for you, but wanting to know what hospital you will be at.