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A Gift of Time for Jolean Scott

$70,774 of $105,000 goal

Raised by 616 people in 8 months
Created September 6, 2018
A Gift of Time for Jolean Scott

We are living every family’s darkest nightmare.  In late August, Jolean Scott, my happy, athletic, nine-year-old granddaughter was diagnosed with a rare and aggressive type of brain tumor that takes children’s lives.

The diagnosis had a shattering impact on our family.  It’s like a bomb went off.  In an instant our lives were turned upside down.  We were devastated, frightened, and shocked into disbelief.  Jolean?  A brain tumor?  What?  Why?  How could this be?  Our sweet Jolean.  Oh, dear God this can’t be true!

Inoperable Tumor
But tragically, it is true.  The doctors say Jolean’s tumor is inoperable – they can only shrink it.  Right now, she is undergoing daily radiation and steroid treatment at Children’s Hospital in Denver, 350 miles from our home here in southwest Colorado. Once released, Jolean and her parents will stay in Denver for 6-weeks of outpatient care by the hospital’s pediatric neuro-oncologist team.

A Year to Live
The long-term prognosis couldn’t be worse, and we are struggling to come to terms with it.  We’ve learned that this virulent strain of cancer, Diffuse Intrinsic Pontine Giloma (DIPG), is terminal.  It is just a matter of time.  The doctors are giving Jolean a year to live. 

Life Goes On for a Sister and Brother
Meanwhile, life goes on at home for Jolean’s 11-year-old sister Cassidy, and 6-year-old brother Cecil. With mom and dad in Denver, we grandparents are charged with getting them to school, soccer practice, gymnastics, fed, bathed and put to bed.  It is exhausting.  Everyone’s helping out.  We’re doing the best we can.  But thoughts of the future worry me all the time.  Maybe one more year with Jolean?  This is hard enough for me to write, let alone comprehend.

A Gift of Time
We are asking for a gift of time. Quality time for Jolean and our family. Time for her to enjoy life as fully as she is able. Time to allow us to bring comfort to her and to each other. Time free from the burden of financial worry so that we may bring all our love, goodness and strength to the remaining days we have with her.

Please help us.  Our goal is to raise $105,000 – enough money to help us cover these estimated costs:

· Travel expenses to Denver for medical treatments/therapy:   $10,000
· Household expenses while mom and dad are unable to work: $30,000
· Medical expenses not covered by insurance: $65,000

Your generosity and the gifts of many others will help bring light to these dark days. It will help our family see our way through this painful time. It has been said that it takes a village to raise a child.  Now, more than ever, I know this is true.  I thank you for being part of our village.

Eric Scott, Jolean's father has been added as the beneficiary to this account.   As you can see, your family is blessed with the kindness of many people. 
 

 

 

 
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A deep gratitude of thanks to all of you who contributed to a Gift of Time for Jolean Scott.
Your generosity helped our family in so many ways.

As you can imagine, our final months with JoJo were an emotional roller coaster. Your gifts allowed us to drop everything else and focus our time, energy and love on Jolean without the added burden of financial worry.

Jolean quietly left us on January 21. But her spirit of life lives on in our hearts. Her bright light will never be extinguished. I see it in the beauty of every sunrise. I hear it in every bird song and mountain stream. I feel her buoyant spirit on the wind, lifting me up, carrying me higher, urging me to have the courage she had, to live as she did, fully alive, free and full of joy.

Thank you Jolean for your gift of time! You will live on in our hearts and in the hearts of countless others whose lives you touched. Rest easy sweet child until we meet once again.
With love, Your family
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Reminder! This Saturday, Feb 16, we will be celebrating Jolean’s life at 11 am at the Pine Valley Church. Please stay and join us for the big lunch following. If inclined, dinner rolls or a dessert would be appreciated.
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Change of DATE and VENUE!
Jolean’s “Celebration of Life” is going indoors. Please join us on Feb. 16, at 11 am at Pine Valley Four Square Church with lunch to follow the ceremony.
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Please join us for Jolean's "Celebration of Life" on Sat., Feb. 9, 11 a.m. at Joe Stephenson Park (Ball Park) in Bayfield. Barbeque lunch to follow.
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$70,774 of $105,000 goal

Raised by 616 people in 8 months
Created September 6, 2018
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$17
(Jackie) Jacquelyn Jolly
1 month ago
WW
$100
Will and Barb Whiton
3 months ago
JA
$100
James Antipas
3 months ago
$15
Tara Jackson
3 months ago
EH
$100
Etoile Hening
3 months ago
JC
$50
Jim Class
3 months ago
SO
$100
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3 months ago
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3 months ago
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