How about you help Caesar, now?
NICE RETURN: now from on, for each donation, you'd have music < www.caesarviolin.com> from his Heavens Gates first album that he finally started record it.
Like any other child, Caesar is a very special boy and since very little.:
Although he was born with bad anemia --sickle cell -- we believe that Education best way to pave new opportunities and open new doors so that IT helps with many ways. Therefore, at the very early, he started this process to support his natural abilities. So, he started taking violin lesson at 2 with incredible skill and joy; the Kumon (a Math & Reading) program. By 4, he was reading fluently. At 5 he was doing the third-grade math. Since he was a toddler he started learning different languages such as Greek, Chinese, Russian, German, Hebrew. At 5 he earned the black belt (Little Dragon’s) in Karate. Then, the anemia which blood disorder is more than tricky starts to be more severe bringing strokes to him = nightmares. The 3rd one (the last, 2014) as you can see his store here well documented by the National Geographic, depicts a fairly summary of he has undergone. On the other hand, he is the happiest person you can imagine. I have no idea from where such positive comes from. Certainly, it comes from his inner which the main source is God. (KEEP READING BELOW)
Although the previous two o strokes did not cause much neurological damage, the third one (June 2014) left him temporarily paralyzed and unable to walk by himself for 6 months. Basically, he got to a stage where even his eyes were not moving. As a result, he had to relearn everything from the scratch: the violin and Math parts, he greatly recovered,
(Read more below)
Although most sickle cell patients receive blood transfusions after strokes to prevent another crisis, Caesar’s parents knew that more blood transfusions would only ease the symptoms, not cure them. The only and best outcome if go through a bone marrow transplant that can (~95%) cure this anemia. Then, we decided the best option was to work in such a direction by having a sibling.
He is currently under chronic/monthly blood transfusion. Yes, it doesn't cure anything. It's mitigated (decreases) the changes of new strokes, on the other hand, it being a number of side effects among them organ demages, iron overloading, multiple antibodies etc.
THANKS TO THE SUPPORTERS LIKE YOU, Caesar's vital organs are good, he doesn't have many antibodies, his iron overloading is NOT overloading at all (we learned how control/take it down and totally naturally. But all these are very costly finanaially, emotionally....(I was dead for 30 min with a heard stopped/attached last June and by God miracles, I came back), but in the end, it's the parents' job number one to DEVOTE to the children. That's the core of my family. Yes, it's a complicated business, but it's a kind of thing that you have to have patience, faith, hope to work hard and leave ALL on God's hand to make the final decision.
After all this: we decided to go through in vitro fertilization (IVF) in order to ensure that we do not pass along the sickle cell gene to another child, as well as to find a 100% bone marrow match for Caesar. Then, we were able to have one healthy and beautiful child (baby Helen, born in December 2014), who can preserve Caesar's life
NOW, by end of next month/Feb we'll be in Memphis and months ahead --from that point, ALL will work accord the St Jude Transplant Center schedule -- things will move accordingly. While we'll do what we've been doing, trying to have a 'normal' live, we'll our best to support Caesar throughout this process. Again, though the Transplant Specific Medical Costs free, the related cost associated to it are even complicated to calculate.
Many THANK YOU for ou SUPPORT,
With love and gratitude,
God bless you
Lucas & Aline - Caesar's parents -- < www.caesarviolin.com>
Also, below are a few links with the latest news and +info about him:
1) National Geographic documentary about him after the 3rd stroke - launched on March 12, 2015
2 Caesar story feature on Our State Magazine, 2014 - before the 3rd stroke
3) Playing US National Anthem in the same month he turned to 5-yr-old - it was after the 2nd stroke)
4) Playing the Brazilian National Anthem at the 4-yr-old
5) News on the 2nd stroke http://www.huffingtonpost.com/2013/05/25/caesar-sant-four-year-old-violin-prodigy-north-carolina-debilitating-disease_n_3331356.html
6) News on the 2nd stroke http://www.journalnow.com/multimedia/videos/news/video_8f4aebea-a6ce-11e2-9771-0019bb30f31a.html
7) He doing Math at 4-yr-old, after the 2nd stroke
8) Doing a spontaneous fun thing he always enjoys do that in the mornings: Conducting Tchaikovsky at 3-yr-old
God's bless you
Lucas & Aline - Caesar's parents
We just moved to Memphis/TN: I drove the truck last Thursday and my crew in being driven now by a great friend, Leo, and will arrive later tonight. It's the first --and huge-- step toward Caesar's bone marrow transplant that will take place months ahead but as the first requirement was to move to the transplant center, then it's done.
We are still looking for a house. It's tough as it can get, but God always blessing my family and this time He will not let as down. No way! There is a purpose for everything though.
Stay tuned for more updates.
Love & Peace,
It's before and after the. Though it was a long day it was good because we had a farewell (we are moving to Memphis for Caesar has his bone marrow transplant at St Jude) where everyone was happy
and it after roughly 5 years of every monthly having the same battle. Once again, we are very blessed for the support (human respect, care, compassion) this great hematologist provided to Caesar. There is no way to express enough about!. I spent years since of Providence/RI, his born city/estate, looking for a great hematologist. Though we never asked nonsense special favor, we've been asked only to my son be treat with human respect, dignity, with nos discrimination bias as well as to listen to his parents, our rights. It's not too much. We met two then, but there were about to go be retired. Then, in 2014, after my bow had three strokes, almost by coincidences, we finally fund the physician, Dr. McMahon, and then nothing (no strokes) happened since then. It has been like a straightforward deal as this photo says! Now, in weeks to come, we'll be going to Memphis for he has his bone marrow transplant at St Jude. Our hope is right (very positive) as usual. I just can't wait to see Caesar free of needles with no more blood transfusion and finally cure of this craze anemia.
Love & Peace,
Yesterday was Caesar's last monthly blood transfusion done at Levine Children's Hospital, Charlotte, NC. Next step will be at St Jude, Memphis/TN to where we are moving have his bone marrow transplant done. Yesterdays almost everyone cried: a farewell that, though we didn't get the final job done yet -- his transplant to be cured --- we ALL fell the power of teamwork = for these 5 years, the Caesar didn't get sick, no strokes anymore, and his vital organs, accord to his Hematologist, Dr. McMahon are doing great! What it's NOT a trivial task once the person has to undergo such chronic blood transfusion it's often expected: a number of antibody formations, iron overload at the roof, vital organ damages etc. With Caesar, NONE of this has happened. So, we are undescribable thankful to Dr. McMahon, the best Dr. we have met --a reason why even folks from many other countries have been chosen him -- in name of his institution and ALL his colleagues, nurses for this. Sure, without so many supports, like yours (because money speaks) we couldn't reach here with him in good shape health-wise speaking.
It's worth to mention that his brain has been behaving greatly besides what the physicians say. In fact, the best way to 'check it out', as always, it's by doing a behavior testing. Luckily, as the violin is the most demand instrument to play, his brain functions are being 'tested' every day with noticeable improvement skills. To summarize, yesterday he just played Bach Sarabanda --though with IV on his arm -- to his physician and colleagues. It's a very challenger piece for young violinists with no many able to do that so. The brain functions need to be fully optimized in order to perform such integrated functions, but he had three strokes in the past... Above all, we are a blessing family because God, the super Boss, never let's down
Now, as we are going to St Jude, another top, the best, institution, and we hope that the final job, his transplant, will be done and our Caesar will get his life fully back to grow up healthy with no more blood transfusions so that reach is full development to be a happy man
GREAT News: Caesar Transplant is about to happen. We moving to Memphis, TN, next month/Feb to do his transplant there, at St. Jude. Ah, before no further, please see a New Year simple gift from him to you, his Hallelujah track of his Heavens Gates that he started work on it, finally. (Ops, I couldn't find yet a way to attach the mp3 file to all contributors. I'll keep trying)
St Jude DOESNT’T charges for such bone marrow transplant, it’s FREE, as long the family/patient is a local resident (at least in this of bone marrow transplant for sickle cell anemia), living in Memphis. We just can't afford anymore trying to get the money to pay for it. We are currently packing to move. We just created a NEW and specific GoFundMe https://bit.ly/2U13GlF to support this big process of moving: staying there which time span could range around 1 year. Without saying that the post-transplant phase is the most tricky one once the patient is under medication that retains the defense/immunological system low to avoid complications/rejections. So, the post-transplant environment (house arrangements and around) is the is the crucial, top attention due to the fragile of the defense system: it could take a year based on medical community and families who underwent this process. It's a long process, though the specialists say that Caesar’s transplant will have a quickly recovery. I hope so too!
LAS WEEK/FIRST we had the first MEETING with a Physician and a Social Worker and Caesar’s referral is already underway to St. Jude.
Please, let's keep in touch via here and Caesar's site www.caearviolin.com or his Facebook. Ah, we’ll keep this page here open. We’ll keep update here accordingly.
ANOTHER Wonderful NEWS: Caesar finally working on his Heavens Gates album album, slowlly but he is moving. Please, have his speical track, his Hallelujah, as a simple Happy New Year. Also, you are more than welcome to help us to spread this news,
Once again, although he’s doing pretty good, and he’s kept under a chronic/monthly blood transfusion as a medical approach that mitigates of having new strokes, we just no longer have the means to stay here anymore. It without saying that the family got in bankruptcy mode, I had a heart attack last June. Who knows what could happen if we do make this move right now.
Yes, our best efforts were not null. Why? We have to remember that after the last/3rd stroke (2014) a physician said that ‘he wouldn't go to die, but to do not expect much from him...' Nothing is harder to than hear such thing. That’s where you meet God --the truth time, where ‘l love you’ is tested -- without jocking around. If our/your relationship with HIM is ok, He may list to us.
Well, in fact, he was in terrible shape. Since then, our lives have been completely devoting to bring him to back, to be normal. Many thanks to you too, without money in this world things are more than complicated. Now, Caesar sounds very close to 'normal' though his legs tell you that they are still not there yet (for example, he is not able to stand up at one leg), and one of his arm is similiary at the missing leval. The most importantly, his happiness, positivism and sweet smiling are always there -- it rediateds you by staying around him, and you feel it more strongely through is music.
Thank you and God may bless you,
Love & Peace
500K for what?!
Don't have any money to contribute right now, but am wishing for the best for your family. My niece was just diagnosed with Leukemia on Christmas. Stay strong for little Caesar ❤️