You can help Caesar Sant !
Caesar Sant turned 8 years old in this past August. We just got a new website for him https://caesarviolin.com/
as many of you have suggested us over these two years, but only now we were able to put it to work. We'll try our best to do a daily posting on it. Please, consider to share, subscribe to get inside of his journey.
He was born in Providence (RI) but currently, lives in Winston-Salem (NC). Here is his Facebook to get to know more about him and follow his journey. He plays the violin with incredible skill and joy. At 2 he started Kumon and violin. By 4, he was reading fluently. At 5 he was doing the third-grade math. Since he was a toddler he started learning different languages such as Greek, Chinese, Russian, German, Hebrew. At 5 he earned the black belt (Little Dragon’s) in Karate.
Caesar was born with sickle cell anemia what brought three strokes to him
in a span 2 years, though until the age of 4 he never ever needed any hospitalization.
Although the previous two o strokes did not cause much neurological damage, the third one (June 2014) left him temporarily paralyzed and unable to walk by himself for 6 months. Basically, he got to a stage where even his eyes were not moving. As a result, he had to relearn everything from the scratch: the violin and Math parts, he greatly recovered, though his limbs and fingers (mainly on the right hand) are still weeks); the languages not too much --with slight exception for Hebrew and Russian that he got to managed again, and the others got in 'slow motion'. But hope is everything!!
a documentary on him. More recently, Make-A-Wish Foundation granted him with a wonderful wish to play for his idol, the icon and great violinist, Mr. Itzhak Perlman that happened in Richmond (VA) - in Sep 2016.
Without hope-faith-love, we certainly would be that far.
Although most sickle cell patients receive blood transfusions after strokes to prevent another crisis, Caesar’s parents knew that more blood transfusions would only ease the symptoms, not cure them. The only and best outcome if go through bone marrow transplant that can (~95%) cure this anemia. Then, we decided the best option was to work on such direction by having a sibling.
We decided to go through in vitro fertilization (IVF) in order to ensure that we do not pass along the sickle cell gene to another child, as well as to find a 100% bone marrow match for Caesar. Then, we were able to have one healthy and beautiful child (baby Helen, born on December 2014), who can preserve Caesar's life and be spared from suffering herself. Her umbilical cord blood -- that has the perfect compatible cells -- was collected and store for the transplant.
We aimed to have the transplant done in 2015 or 2016, but it's not an easy proce
ss. We didn't have money.
The hard learning is simple: as we don't have the money to pay such expensive procedure process which goes way beyond the bills itself such as the post-transplant needs etc... we are hoping that it will be done in 2017.
We have traveled and spoke with many transplant centers and specialist. Basically, we got stuck with the lack of money to move ahead.
Caesar has enriched our lives in so many ways- his bright smile, his beautiful music, and his unwavering passion for learning. It has been torturous as a parent to watch him struggle to sit up, ho
ld his violin, or run and play with his five-year-old sister, Maria-Anita. Please, if you are able, help us cure Caesar. Please give whatever you can. Many of you have reached out and asked how you can help, this is the best possible way. We need your help, my friends. Caesar needs your help.
With love and gratitude,
God bless you
We would like to take the opportunity to thank everyone who had come along and helped us in many ways. Among those, not limited to, are Make-A-Wish, Foundation, Mr. Itzhak Perlm
an, Father Demetri, Greek Orthodox School; Dr. Sam Deadwyler; Dr. Hunter Bradley.
Lucas & Aline - Caesar's parents
Also, below are a few links with the latest news and +info about him:
1) National Geographic documentary about him after the 3rd stroke - launched on March 12, 2015
2 Caesar story feature on Our State Magazine, 2014 - before the 3rd stroke
3) Playing US National Anthem in the same month he turned to 5-yr-old - it was after the 2nd stroke)
4) Playing the Brazilian National Anthem at the 4-yr-old
5) News on the 2nd stroke http://www.huffingtonpost.com/2013/05/25/caesar-sant-four-year-old-violin-prodigy-north-carolina-debilitating-disease_n_3331356.html
6) News on the 2nd stroke http://www.journalnow.com/multimedia/videos/news/video_8f4aebea-a6ce-11e2-9771-0019bb30f31a.html
7) He doing Math at 4-yr-old, after the 2nd stroke
8) Doing a spontaneous fun thing he always enjoys do that in the mornings: Conducting Tchakovisty at 3-yr-old
God's bless you
Lucas & Aline - Caesar's parents
As a transfusion day, our journey roughly starts right after around 5 AM when we start working to get ready to get early in Charlotte. And our yesterday journey ends (when we went to bed) almost 2 AM.
Caesar asked me for something special after the transfusion and then I promised him to cook something very special for him when we get home. Then, traveling back from Charlotte to Winston-Salem, I stopped by in Greensboro to buy a fish. As soon as I got home, I started working on it (then; mama/Aline also got sick: a cough) while he was watching his favorite cartoons with his sisters. So, by midnight, they were eating a "moqueca de peixe a la Baiana" - a fish AfroMediterrane special recipe. They were so happy eating this special fishing and see their happiness as well as hearing from their multiply gratitude words for the food after a very long rough day - you get to be happy and believe in God even more because He is practical, too
After that, he (and me) took a bath. He went to his bed while I went to return the rental car to Enterprise. He slept like a baby until around noon today. Woke up, took our Golden Juice that I did .... ate more the fish and have been playing with his sisters until now ..... but next month we have to do the same (transfusion) for the above reason mentioned.
Have a great weekend and feel free to like and share the post, and thanks again for the support.
THE POST: Although it's a rough long day (we woke up at ~5 AM to travel to Levine Children's Hospital/Charlotte), it works. In the end, our job is to do all possible efforts to make such procedure as smoothy as possible. We got an additional -and rare- issue to deal with at this time: he got cold (after Maria-Anta and Helen got it first) with a bit of a cough. After the super bath with essential oils including eucalyptus, Epson salt, and a lot of doubles (it was already almost middle night), he slept ok and he is currently playing with his sisters.
Nice UPDATE: Time Warner/Spectrum is making a TV Documentary on Caesar's story and by next month it will be aired. It sounds like it'll be big or even bigger than the last one made by the National Geographic. We can't wait to see it. Caesar deserves. In a meanwhile, You are more than welcome to give your direct support to him via here GoFundMe
I just made the 'The Mean Tea' and we all drank it. This tea is of Apple, Cinnamon, Lemon, Garlic, Onion, Pomegranate, Clove, Fennel with Haney. It helps a lot,.
Thank you for like/share the post,
Love & Peace,
Here is a video of our princes' baby Helen 3rd birthday celebration done on Dec 8th, though she was born on Dec 7th. It's hard to describe this thing because first of all, it's quite surreal to believe on this whole thing given what we have been undergoing. Watch the whole video and read the description for you see. Like and share it, if you feel good about it too.
Peace and Love,
500K for what?!
I hope everything goes well and you reach your goal i have yet to recieve a donation for my campaign but i donayed to yours we hopeful future moms and current moms must supoort each other
Don't have any money to contribute right now, but am wishing for the best for your family. My niece was just diagnosed with Leukemia on Christmas. Stay strong for little Caesar ❤️