You can help Caesar Sant !
Caesar Sant turned 8 years old in this past August. We just got a new website for him https://caesarviolin.com/
as many of you have suggested us over these two years, but only now we were able to put it to work. We'll try our best to do a daily posting on it. Please, consider to share, subscribe to get inside of his journey.
He was born in Providence (RI) but currently, lives in Winston-Salem (NC). Here is his Facebook to get to know more about him and follow his journey. He plays the violin with incredible skill and joy. At 2 he started Kumon and violin. By 4, he was reading fluently. At 5 he was doing the third-grade math. Since he was a toddler he started learning different languages such as Greek, Chinese, Russian, German, Hebrew. At 5 he earned the black belt (Little Dragon’s) in Karate.
Caesar was born with sickle cell anemia what brought three strokes to him
in a span 2 years, though until the age of 4 he never ever needed any hospitalization.
Although the previous two o strokes did not cause much neurological damage, the third one (June 2014) left him temporarily paralyzed and unable to walk by himself for 6 months. Basically, he got to a stage where even his eyes were not moving. As a result, he had to relearn everything from the scratch: the violin and Math parts, he greatly recovered, though his limbs and fingers (mainly on the right hand) are still weeks); the languages not too much --with slight exception for Hebrew and Russian that he got to managed again, and the others got in 'slow motion'. But hope is everything!!
a documentary on him. More recently, Make-A-Wish Foundation granted him with a wonderful wish to play for his idol, the icon and great violinist, Mr. Itzhak Perlman that happened in Richmond (VA) - in Sep 2016.
Without hope-faith-love, we certainly would be that far.
Although most sickle cell patients receive blood transfusions after strokes to prevent another crisis, Caesar’s parents knew that more blood transfusions would only ease the symptoms, not cure them. The only and best outcome if go through bone marrow transplant that can (~95%) cure this anemia. Then, we decided the best option was to work on such direction by having a sibling.
We decided to go through in vitro fertilization (IVF) in order to ensure that we do not pass along the sickle cell gene to another child, as well as to find a 100% bone marrow match for Caesar. Then, we were able to have one healthy and beautiful child (baby Helen, born on December 2014), who can preserve Caesar's life and be spared from suffering herself. Her umbilical cord blood -- that has the perfect compatible cells -- was collected and store for the transplant.
We aimed to have the transplant done in 2015 or 2016, but it's not an easy proce
ss. We didn't have money.
The hard learning is simple: as we don't have the money to pay such expensive procedure process which goes way beyond the bills itself such as the post-transplant needs etc... we are hoping that it will be done in 2017.
We have traveled and spoke with many transplant centers and specialist. Basically, we got stuck with the lack of money to move ahead.
Caesar has enriched our lives in so many ways- his bright smile, his beautiful music, and his unwavering passion for learning. It has been torturous as a parent to watch him struggle to sit up, ho
ld his violin, or run and play with his five-year-old sister, Maria-Anita. Please, if you are able, help us cure Caesar. Please give whatever you can. Many of you have reached out and asked how you can help, this is the best possible way. We need your help, my friends. Caesar needs your help.
With love and gratitude,
God bless you
We would like to take the opportunity to thank everyone who had come along and helped us in many ways. Among those, not limited to, are Make-A-Wish, Foundation, Mr. Itzhak Perlm
an, Father Demetri, Greek Orthodox School; Dr. Sam Deadwyler; Dr. Hunter Bradley.
Lucas & Aline - Caesar's parents
Also, below are a few links with the latest news and +info about him:
1) National Geographic documentary about him after the 3rd stroke - launched on March 12, 2015
2 Caesar story feature on Our State Magazine, 2014 - before the 3rd stroke
3) Playing US National Anthem in the same month he turned to 5-yr-old - it was after the 2nd stroke)
4) Playing the Brazilian National Anthem at the 4-yr-old
5) News on the 2nd stroke http://www.huffingtonpost.com/2013/05/25/caesar-sant-four-year-old-violin-prodigy-north-carolina-debilitating-disease_n_3331356.html
6) News on the 2nd stroke http://www.journalnow.com/multimedia/videos/news/video_8f4aebea-a6ce-11e2-9771-0019bb30f31a.html
7) He doing Math at 4-yr-old, after the 2nd stroke
8) Doing a spontaneous fun thing he always enjoys do that in the mornings: Conducting Tchakovisty at 3-yr-old
God's bless you
Lucas & Aline - Caesar's parents
April 29" https://bit.ly/2I2dFVe today: rest day of legs working and a good violin worked one
April 28: https://bit.ly/2vTmKuY Working outside with Caesar: challenging terrain: to go up-down
April 27: https://bit.ly/2vYHlOt Caesar's sister best friend, Maria-Anita, who got a full scholarship at Sawtooth
April 26: https://bit.ly/2JEntSP Working on Caesar's leg reflex: A big suggestive text where I describe with more details many topics about Caesar
April 25 https://bit.ly/2r8lHCB Caesar treating his teeth
April 24 https://bit.ly/2r5P4p6 Caesar having fun on his bike (reward) in the of our hard working on his legs
April 23 https://bit.ly/2FebyIy Working on Caesar's legs yesterday evening. Our hard work never stops
Basically, as you can see in the posts, Caesar is steadily health, his legs are getting even stronger, but this coming week is the week battle: it the week of his blood transfusion (he has to have one monthly) which is aiming to avoid the chance of new strokes. He really getting more and more resistant to do that and well understand it. However, we don't have many other options, we get to do it anyway.
HOT GOOD NEWS: We are getting new lights of hope that it sounds like we'll be able to have his transplant done by end of the year or so. It's a very promise thing that I'll be able to disclose it further in time to come -- it sounds real.
Thank you again for the wonderful donations it' simple like that: we won't be today with his gained without you. So, you are already part of his journey.
Also, consider sharing his story with your best friends/family and/or social media as a simple way to further help him.
With Please & Love, have a great week. Thank you again,
Here is a summary of our last posts (#7) about Caesar's daily life as I got another reminder that some of you don't get access to Social Media on the daily bases and others even don't have it:
-April 24th, 2018: https://bit.ly/2FebyIy (working on his legs)
-April 23rd, 2018: https://bit.ly/2qY03Qk (singing his music/lesson with a violin teacher)
-April 22nd, 2018: https://bit.ly/2JnAbFi (cooking fish)
-April 21st, 2018: https://bit.ly/2HsAbTZ (working outside on his legs)
-April 17th, 2018: https://bit.ly/2JnAAY8 (cleaning his practice room in the morning)
April 16th, 2018: https://bit.ly/2HqAXRa ("Ok it's not good" a short clip from his Nat Geo Doc)
April 15th, 2018: https://bit.ly/2HPI21n (rolling with his sisters in the morning)
So, now from on, I'll put a weekly post here to cover this communication gap.
To those who have Social Media, please: how about you check one of Caesar Social Media such as Facebook http://on.fb.me/1UwERbw or Instagram: http://bit.ly/2pMnpqd or his site www.caesarviolin.com and follow him so that you get this little small updates?
Caesar is overall doing great until over a week ahead when his monthly blood transfusion comes and then all trauma comes with it. Ironically, sometimes it's quite a challenger to explain to new fellows what happened to him as well as his current situation at a slow pace to get the money to get his transplant. I try my best to do not fall too much into complains and lamentations that doesn't help much. Instead, though my life goal is to help to get this transplant done to his boy, which would give him a healthy life, so while we still not able to move ahead with it, we have been focused on a) giving him the proper care to avoid new strokes: his monthly blood transfusion; b) keep working on his muscles, mainly his legs that are not 100% yeat (he still --it's getting close -- not able to stand up at one leg) and c) keep helping him with his vioin study which special skills is the LAST one only real hope left. It's brought us to meet, have spread his story broadly which attention resulted in practical help that brought him back from where he was. It's a lot was done so far and we still have a way to go -- his transplant. For instances, the Spectrum (the former Time Warney) recently finished a big documentary about him which will be aired on this upcoming September. The kind of problem with this approach is that we don't control nether its time nor when it will happen. There are a few good things like that up in the air that could happen at any giving time, though. One thing is for sure, we never stop working and it'll get the job done in the end -- with your help. That's the reason we do believe in God above all: we do our simple part, and He will make the final decisions. Besides of the hard-working, I pray for him every day. He never let me down before.
I have to repeat once again: if wasn't your contribution, we weren't be survived until here. Thank you so much and please even consider to do another one as well as share Caesar's story with your Social Media and friends. It certainly will help.
Las the IMPORTANT THING: we are still needing help with our SOCIAL MEDIA. We do need ao Social media guru help. If you are or know you, please, let's know.
Please, let's keep in touch. If you have suggestions, please do not hesitate to send a direct message to us.
Caesar's father, Lucas
HERE IS CAESAR'S MONTHLY BLOOD TRANSFUSION done yesterday, April 5th. PLEASE, READ THE WHOLE DESCRIPTION.
It was posted https://bit.ly/2uRLNOd today on his Facebook. Also, follow him to do not miss the other small updates that we put there almost on every day about his daily life.
It was quite a rough day for us: it's not like an 'ordinary'/ normal' thing, though it's being 4 years that we have been done it every single month. Instead of just complain, we are very blessed to have a really outstanding Hematologist, Dr. McMahon, of whom we dreamed since the beginning but unfortunately we fund him only in 2014 after Caesar had three strokes. On the other hand, for a while, Caesar has been refused to go to the transfusion with his 'logical' argument that he is not sick therefore he doesn't it. We work hard saying that 'yes, he is not sick but it's exactly for he doesn't get sick that he has to go. Mostly incredible, for except a short moment, he is always smiling and feeling happy. It makes me 'dizzy' because my spirituality is quite scanty to 'understand' it. To me, it sounds where his power holds making him overcome so much. We have just thanks to God for such thing that he was born with.
Now, besides you like and share this post, how about you please consider to place your donation http://bit.ly/1OmH0RM
for him? He really needs it. While his bone marrow transplant that is being held due to the lack of money, here are a few URGENT things (not limited to) that he really needs the money for:
A.) go back to his physical therapist
for him walk better - I keep work with him every single day but this phase is very trick which
progress is very slow -- full of
frustrations. Though he is walking/running, he is not able to
Take a two steps stair by himself.
B) buy a natural medication that
he has been taking for about two years and has been helped him a
lot. A company that was giving it to him had a recent issue and for over 2 months he is not taking such medication.
(Luckily, we got covered since last for another new medicine quite expensive
(10K monthly) which by NO means we'd be able to buy it.
Yes, Caesar is doing great and it's all results of the support his story has been built over the years and the donations from really wonderful folks. To those, THANK YOU from the deep of our hearts.
Do not hesitate to reach out
Please see this big raw update http://bit.ly/2pmQJph that I put out there. If you watch the whole thing, it'll probably make you laugh and bless you too. It even may make you cry as it does to me very often when I go back and watch our posts.
Also, as many of you either don't spend much time Social Media or don't follow Caesar on his social media, here is a post of his last monthly blood transfusion http://bit.ly/2FYiiyI done on the 8th of the current month at Levine Children's Hospital for which we had a post on his Facebook. If you are not yet, please, follow us on Caesar's Social Media: Facebook http://on.fb.me/1UwERbw and/or Instagram: http://bit.ly/2pMnpqd for you don't miss our little updates
Above all, you are already part of Caesar's journey because without YOUR SUPPORT, by no means we were reached the current level, by contrary: we were for sure away back full sadness only. So many thanks for YOUR CONTRIBUTIONS. We also encourage you to share his story with your family/friends and social media because we always can do more.
With Love & Peace, God bless us al
500K for what?!
I hope everything goes well and you reach your goal i have yet to recieve a donation for my campaign but i donayed to yours we hopeful future moms and current moms must supoort each other
Don't have any money to contribute right now, but am wishing for the best for your family. My niece was just diagnosed with Leukemia on Christmas. Stay strong for little Caesar ❤️