How about you help Caesar, now?
Caesar featured on the National Geographic
WHEN THE TRANSPLANT WILL OCCUR? Accord to the Hospital, it'll take place this Summer. Probably by the end of this upcoming August or beginning of September. It's all due to the current phase so-called pre-transplant when ALL the exams/evaluations possible are made: brain and vital organ images, vision/audition, etc, etc plus FULL analysis of this whole thing. In a meanwhile, Caesar keeps asking EVERYDAY when he will be free of this crazy anemia -- being 'normal' like his sister, Helen -- that he was born with. We do hope that by the end of the current year this whole thing is over.
WHERE WE ARE? St Jude is providing physical therapy (3x a week) for Caesar's legs gets stronger; he keeps under the monthly blood transfusion, a medical approach aimed to mitigate the possibility of new strokes while the transplant is not done. Again, this bone marrow transplant has around 95% chance of cure for this anemia.
UNBELIEVABLE PLACE = St Jude. You do feel indeed respected. It's a not match place where you see it from everyone --from security, nurses, medical personnel -- the mean of ' I care for you ' literally. It has so much love around it !!! It's above all expectations. I also think that as it's a 'research' hospital, they are open mind looking for the best throughout every single procedure and steps... a simple -- but crucial example -- for you have a clue: the way they get access to the veins (Caesar has a very tiny ones) is quite very 'customized' and unparallel carefully... Also, the workers are happy. It clearly sounds that St Jude treats them well so that they treat the patients with more love!
NICE AND LOVELY RETURN: Now from on, for each donation, you'd have a music track of Caesar's 'Heaven's Gates' album that he started working back last year. He has two tracks available at his site: < www.caesarviolin.com>. Your e-mail address is needed for we send the music track. We hope that he could finish the recording of the whole album before the transplant, though there are two things completely independent, not related.
Like any other child, Caesar is a very special boy and since very little.:
Although he was born with this bad anemia --sickle cell -- we believe that Education is the best way to pave new opportunities and open new doors so that IT helps with many ways to move ahead. Therefore, at the very early, we started this process to support his natural abilities. So, he started taking violin lesson at 2 with incredible skill and joy; the Kumon (a Math & Reading) program. By 4, he was reading fluently. At 5 he was doing the third-grade math. Since he was a toddler he started learning different languages such as Greek, Chinese, Russian, German, Hebrew. At 5 he earned the black belt (Little Dragon’s) in Karate. Then, the anemia which blood disorder is more than tricky starts to be more severe bringing strokes to him = nightmares. The 3rd stroke (2014), and the last one literally almost killed him. He had to relearn pretty much everything. As you can see his store here well documented by the National Geographic, depicting a fairly summary of he has undergone.
Unbelievable, but Caesar is the happiest person you can imagine. I have no idea where such positivity comes from. Certainly, it comes from his inner which the main source is God. (KEEP READING BELOW)
HERE IS CAESAR WITH HIS SISTER (Maria-Anita and Helen) outside of St Jude (June 26, 2019) while the blood for his transplant was up to come
NOW, WE FINALLY moved to Memphis/TN (below photo) in order of he has his bone marrow transplant. Here is his 1st blood transfusion at St Jude. The transplant will be likely to happen in the coming Summer. In the months ahead, all the exams need will be done as part of the actual pre-transplant evaluation. Caesar keeps smiling with his happiness, what lovely contagious us all
Below: February 208: were packing to move from Winston-Salem/NC to Memphis/TV
Although the previous two o strokes did not cause much neurological damage, the third one (June 2014) left him temporarily paralyzed and unable to walk by himself for 6 months. Basically, he got to a stage where even his eyes were not moving. As a result, he had to relearn everything from the scratch: the violin and Math parts, he greatly recovered,
(Read more below)
Although most sickle cell patients receive blood transfusions after strokes to prevent another crisis, Caesar’s parents knew that more blood transfusions would only ease the symptoms, not cure them. The only and best outcome if go through a bone marrow transplant that can (~95%) cure this anemia. Then, we decided the best option was to work in such a direction by having a sibling. It was very costly. And we got our lovely baby Helen, she by far much more than Caesar's donor, she is the heart of our house.
He is currently under chronic/monthly blood transfusion. Yes, it doesn't cure anything. It's mitigated (decreases) the changes of new strokes, on the other hand, it being a number of side effects among them organ damage, iron overloading, multiple antibodies, etc.
THANKS TO THE SUPPORTERS LIKE YOU, Caesar's vital organs are good, he doesn't have many antibodies, his iron overloading is NOT skying hocking as it normally does after a long period of blood transfusions. We learned how to control/take it down and totally naturally. But all these are very costly financially, emotionally....June last (2018) had a heart attack: I was dead for 30 min and by God miracles, I brought me back. In the end, it's the parents' job number one to DEVOTE to the children. That's the core of my family. Yes, it's a complicated business, but it's a kind of thing that you have to have patience, faith, hope to work hard and leave ALL on God's hand to make the final decision.
After all this: we decided to go through in vitro fertilization (IVF) in order to ensure that we do not pass along the sickle cell gene to another child, as well as to find a 100% bone marrow match for Caesar. Then, we were able to have one healthy and beautiful child (baby Helen, born in December 2014), who is much more than at it's called "a savior' life, our baby Helen became the central heart of our family and Caesar's best friend aside of his other sister, Maria-Anita. Basically, her Her umbilical cord blood -- that has the perfect compatible cells -- was collected and stored for the transplant.
Many THANK YOU for your SUPPORT,
With love and gratitude,
God bless you
Lucas & Aline - Caesar's parents -- < www.caesarviolin.com>
Also, below are a few links with the latest news and +info about him:
1) National Geographic documentary about him after the 3rd stroke - launched on March 12, 2015
2 Caesar story feature on Our State Magazine, 2014 - before the 3rd stroke
3) Playing US National Anthem in the same month he turned to 5-yr-old - it was after the 2nd stroke)
4) Playing the Brazilian National Anthem at the 4-yr-old
5) News on the 2nd stroke http://www.huffingtonpost.com/2013/05/25/caesar-sant-four-year-old-violin-prodigy-north-carolina-debilitating-disease_n_3331356.html
6) News on the 2nd stroke http://www.journalnow.com/multimedia/videos/news/video_8f4aebea-a6ce-11e2-9771-0019bb30f31a.html
7) He doing Math at 4-yr-old, after the 2nd stroke
8) Doing a spontaneous fun thing he always enjoys do that in the mornings: Conducting Tchaikovsky at 3-yr-old
God's bless you
Lucas & Aline - Caesar's parents
God bless us all with this special DAY
Lope & Peace,
As you know, for since March we moved to Memphis TN for Caesar has his bone marrow transplant here at St Jude. We are all doing the best to push this thing forward to get it done in the current summer, though things are totally uncertain at thing point: we have not met any of the transplant team yet. On the other hand, pretty much all the basic exams were already done so far: today was of the brain and everything went well. Tow days ago, it was MRI of vital organs; vision, eyes, heart were done too...etc. The iron overloading affected his liver -- chronic blood transfusion is not a trivial thing like some medical folks tray to sell around. It's serious stuff. For all the years (in NC) his iron was under control, but with our moving to here (Memphis) and super stress, things got out of control.... but with the help of new medication, it will be brought down.
We are trying to put short updates for you all pretty 1-2 days about where we are and what has been done.
We'll try to arrange this meet with the transplant team for no later than next week for giving you a better assessment of dates for Caesar's transplant.
It was yesterday the third blood transfusion that Caesar had here in Memphis -- St. Jude. A lot of exams (yesterday: hearing, heart: all good! other will come soon: eyes, brain images, liver, kidney +etc...), as part of transplant protocol, started to be done. We left from there almost 9 pm but we woke up around 5 because some exams started after 7 am. One of the nice things is the fact that we are living around 20min away from the hospital. In the end, we all got so tired. They are very professional as quite nice too -- as everyone says about them. Other than his iron level that got higher (more because we are still in a settlement with an old house that we got -- even the central AC is not working yet) everything looks good. The transplant will take place this Summer, though we haven't met the transplant team yet.
A very good thing: they will provide 3X physical therapy for Caesar's legs to make it stronger -- it's his weak point that he hasn't overcome yet but now it seems that we'll get it done. Moreover, such deficit has to de overcome regardless of his bone marrow transplant that has nothing, directly, with it. We hope that when the actual transplant occurs, his legs will be already working better and they will keep working on it. God is saying that be the end of the current year my boy will be free of this horrible anemia that he was born with and running normally for the happiness of everyone. Please stay tuned via site www.caesarviolin.com (or one of his social media) where we are quite often posting small/daily updates.
Love & Peace and God bless you,
Yesterday was the second monthly blood transfusion that Caesar had here in Memphis (St Jude). Extra exams were done and more will come in the next month once his bone marrow transplant will be done in this Summer.
It's the so-called 'pre-transplant' phase that demands the best available efforts of a transplant candite person which is like a 'routine' done in any transplant center. It was a long day but did make it. The good thing is the fact that we are getting close to finishing this long chapter. VERY IMPORTANTLY: his vital organs are in a great health shape and his ferritin/iron in under control. We did all using natural medicines: expensive stuff but it works and without side effects. Hope is the most important in this sort of business because it plays with faith quite well -- in the end, it never left you to give up of the real love -- God!
Today, he woke up normally and with a beautiful smile. His smile makes anyone with pain, sadness, worries, feels like all the life sacrifices will pay off. You must feel happy too with hope even more real.
Love and Peace,
500K for what?!
Thank you Caesar for reminding us: Matthew 18:3-6 (KJV) (3) And said, Verily I say unto you, Except ye be converted, and become as little children, ye shall not enter into the kingdom of heaven. (4) Whosoever therefore shall humble himself as this little child, the same is greatest in the kingdom of heaven. (5) And whoso shall receive one such little child in my name receiveth me. (6) But whoso shall offend one of these little ones which believe in me, it were better for him that a millstone were hanged about his neck, and that he were drowned in the depth of the sea.
Don't have any money to contribute right now, but am wishing for the best for your family. My niece was just diagnosed with Leukemia on Christmas. Stay strong for little Caesar ❤️