How about you help Caesar, now?
NICE RETURN: now from on, for each donation, you'd have music < www.caesarviolin.com> from his Heavens Gates first album that he finally started record it.
Like any other child, Caesar is a very special boy and since very little.:
Although he was born with bad anemia --sickle cell -- we believe that Education best way to pave new opportunities and open new doors so that IT helps with many ways. Therefore, at the very early, he started this process to support his natural abilities. So, he started taking violin lesson at 2 with incredible skill and joy; the Kumon (a Math & Reading) program. By 4, he was reading fluently. At 5 he was doing the third-grade math. Since he was a toddler he started learning different languages such as Greek, Chinese, Russian, German, Hebrew. At 5 he earned the black belt (Little Dragon’s) in Karate. Then, the anemia which blood disorder is more than tricky starts to be more severe bringing strokes to him = nightmares. The 3rd one (the last, 2014) as you can see his store here well documented by the National Geographic, depicts a fairly summary of he has undergone. On the other hand, he is the happiest person you can imagine. I have no idea from where such positive comes from. Certainly, it comes from his inner which the main source is God. (KEEP READING BELOW)
NOW, WE FINALLY moved to Memphis/TN (below photo) in order of he has his bone marrow transplant. Here is his 1st blood transfusion at St Jude. The transplant will be likely to happen in the coming Summer. In the months ahead, all the exams need will be done as part of the actual pre-transplant evaluation. Caesar keeps smiling with his happiness, what lovely contagious us all
Although the previous two o strokes did not cause much neurological damage, the third one (June 2014) left him temporarily paralyzed and unable to walk by himself for 6 months. Basically, he got to a stage where even his eyes were not moving. As a result, he had to relearn everything from the scratch: the violin and Math parts, he greatly recovered,
(Read more below)
Although most sickle cell patients receive blood transfusions after strokes to prevent another crisis, Caesar’s parents knew that more blood transfusions would only ease the symptoms, not cure them. The only and best outcome if go through a bone marrow transplant that can (~95%) cure this anemia. Then, we decided the best option was to work in such a direction by having a sibling.
He is currently under chronic/monthly blood transfusion. Yes, it doesn't cure anything. It's mitigated (decreases) the changes of new strokes, on the other hand, it being a number of side effects among them organ demages, iron overloading, multiple antibodies etc.
THANKS TO THE SUPPORTERS LIKE YOU, Caesar's vital organs are good, he doesn't have many antibodies, his iron overloading is NOT overloading at all (we learned how control/take it down and totally naturally. But all these are very costly finanaially, emotionally....(I was dead for 30 min with a heard stopped/attached last June and by God miracles, I came back), but in the end, it's the parents' job number one to DEVOTE to the children. That's the core of my family. Yes, it's a complicated business, but it's a kind of thing that you have to have patience, faith, hope to work hard and leave ALL on God's hand to make the final decision.
After all this: we decided to go through in vitro fertilization (IVF) in order to ensure that we do not pass along the sickle cell gene to another child, as well as to find a 100% bone marrow match for Caesar. Then, we were able to have one healthy and beautiful child (baby Helen, born in December 2014), who can preserve Caesar's life
NOW, by end of next month/Feb we'll be in Memphis and months ahead --from that point, ALL will work accord the St Jude Transplant Center schedule -- things will move accordingly. While we'll do what we've been doing, trying to have a 'normal' live, we'll our best to support Caesar throughout this process. Again, though the Transplant Specific Medical Costs free, the related cost associated to it are even complicated to calculate.
Many THANK YOU for ou SUPPORT,
With love and gratitude,
God bless you
Lucas & Aline - Caesar's parents -- < www.caesarviolin.com>
Also, below are a few links with the latest news and +info about him:
1) National Geographic documentary about him after the 3rd stroke - launched on March 12, 2015
2 Caesar story feature on Our State Magazine, 2014 - before the 3rd stroke
3) Playing US National Anthem in the same month he turned to 5-yr-old - it was after the 2nd stroke)
4) Playing the Brazilian National Anthem at the 4-yr-old
5) News on the 2nd stroke http://www.huffingtonpost.com/2013/05/25/caesar-sant-four-year-old-violin-prodigy-north-carolina-debilitating-disease_n_3331356.html
6) News on the 2nd stroke http://www.journalnow.com/multimedia/videos/news/video_8f4aebea-a6ce-11e2-9771-0019bb30f31a.html
7) He doing Math at 4-yr-old, after the 2nd stroke
8) Doing a spontaneous fun thing he always enjoys do that in the mornings: Conducting Tchaikovsky at 3-yr-old
God's bless you
Lucas & Aline - Caesar's parents
Yesterday was the second monthly blood transfusion that Caesar had here in Memphis (St Jude). Extra exams were done and more will come in the next month once his bone marrow transplant will be done in this Summer.
It's the so-called 'pre-transplant' phase that demands the best available efforts of a transplant candite person which is like a 'routine' done in any transplant center. It was a long day but did make it. The good thing is the fact that we are getting close to finishing this long chapter. VERY IMPORTANTLY: his vital organs are in a great health shape and his ferritin/iron in under control. We did all using natural medicines: expensive stuff but it works and without side effects. Hope is the most important in this sort of business because it plays with faith quite well -- in the end, it never left you to give up of the real love -- God!
Today, he woke up normally and with a beautiful smile. His smile makes anyone with pain, sadness, worries, feels like all the life sacrifices will pay off. You must feel happy too with hope even more real.
Love and Peace,
So, the option to have this transplant here (as long as the person lives no further than 100 miles from the hospital) is free of charges through the costs and the family burden to reach here are quite indescribable. We are still living with a friendly family. The important ---and even super blessing -- is the fact the Caesar has some elevation spiritual (it must be from God) that radiate us all; without saying that, no matter what, he is always smiling.
He'll keep his monthly blood transfusion here while all the exams, evaluations need, is being done for this last 'act' of his bone marrow transplant within the months ahead.
Please praying and let's keep in touch,
We just moved to Memphis/TN: I drove the truck last Thursday and my crew in being driven now by a great friend, Leo, and will arrive later tonight. It's the first --and huge-- step toward Caesar's bone marrow transplant that will take place months ahead but as the first requirement was to move to the transplant center, then it's done.
We are still looking for a house. It's tough as it can get, but God always blessing my family and this time He will not let as down. No way! There is a purpose for everything though.
Stay tuned for more updates.
Love & Peace,
It's before and after the. Though it was a long day it was good because we had a farewell (we are moving to Memphis for Caesar has his bone marrow transplant at St Jude) where everyone was happy
and it after roughly 5 years of every monthly having the same battle. Once again, we are very blessed for the support (human respect, care, compassion) this great hematologist provided to Caesar. There is no way to express enough about!. I spent years since of Providence/RI, his born city/estate, looking for a great hematologist. Though we never asked nonsense special favor, we've been asked only to my son be treat with human respect, dignity, with nos discrimination bias as well as to listen to his parents, our rights. It's not too much. We met two then, but there were about to go be retired. Then, in 2014, after my bow had three strokes, almost by coincidences, we finally fund the physician, Dr. McMahon, and then nothing (no strokes) happened since then. It has been like a straightforward deal as this photo says! Now, in weeks to come, we'll be going to Memphis for he has his bone marrow transplant at St Jude. Our hope is right (very positive) as usual. I just can't wait to see Caesar free of needles with no more blood transfusion and finally cure of this craze anemia.
Love & Peace,
500K for what?!
Thank you Caesar for reminding us: Matthew 18:3-6 (KJV) (3) And said, Verily I say unto you, Except ye be converted, and become as little children, ye shall not enter into the kingdom of heaven. (4) Whosoever therefore shall humble himself as this little child, the same is greatest in the kingdom of heaven. (5) And whoso shall receive one such little child in my name receiveth me. (6) But whoso shall offend one of these little ones which believe in me, it were better for him that a millstone were hanged about his neck, and that he were drowned in the depth of the sea.
Don't have any money to contribute right now, but am wishing for the best for your family. My niece was just diagnosed with Leukemia on Christmas. Stay strong for little Caesar ❤️