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Tryna's fight against disability

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A 5 year old little princess, named Tryna is the reason I (David Barton) am starting this fundraising campaignI have . to raise enough money to give Tryna the equipment and medical care she needs to win her fight...

Tryna is undiagnosed which makes it very hard to find the proper treatment.. Tryna's health issues are seizure disorder, (on the average she has maybe 20-30 seizures a day), hypertonia which causes her fatigue very fast, she gets fed through feeding tube, (but she loves to taste all different types of foods so i have to let her have little bites for taste only. She has prolonged QT which is a heart issue that is life threatening.

At the moment she doesn't walk but I do believe that she will be able to one day with the proper physical therapy, equipment and braces... Her learning capabilities are so impaired mostly caused from her seizure medication

I seek to raise enough money to get her the proper equipment she needs ( a standing machine and body braces). Also to find different alternative methods and medicine for her seizures.. She has Medicaid insurance that provides her with the minimum medical Service she needs which I'm grateful for the equipment that we have gotten from them took a year and a half two years ago which was a Pediatric wheelchair.. Her primary doctor and physical therapist and myself put the order in first for braces then a standing machine it's been almost a year and a half and have gotten nowhere with it she has developed 20% scoliosis from not having the proper braces it's getting worse and I can't let this happen so I must raise money to be able to give her the proper equipment and braces she needs..

To let you know the strength and amazing will of this little girl, last year she had cardiac arrest!! almost impossible to get an IV she was unable to be put on life support at the time.. the er team and other nurses had to administrate CPR and manual chest compression for 1 hour and 15 minutes with no pulse!! Consistently asking me if I wanted to let her go and that I should let her go but I refused.. finally we were able to get her on an IV which then were able to put her on life support by she did not give up or did I give up on her after a long recovery she came home thank God for the most amazing blessing giving me back my baby

She recovered from that amazingly the doctors had no explanation!

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Donations 

  • Anonymous
    • $100 
    • 8 yrs
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Organizer

David Maslin Barton
Organizer
West Palm Beach, FL

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