Tristans Medical Fund 'His Future'
You're looking at our youngest little boy Tristan aka Mr.T. He's 20mths old now. Our little man has been diagnosed with Dravet Syndrome a rare & Severe form of Epilepsy. It's intractable, medications don't control his seizures for very long.
We have gone through most meds at this stage.
Tristans seizures have lasted up to 1hr. Tristan will get up to 20 seizures daily. Some days are better some worse. This won't get better without help.
He's had to learn to walk & talk again as a result of his seizures. We're very lucky he recovered so well & is recieving Physio & Speach Language Therapy to help.
The medication Tristan needs to help his seizures remain under control & hopefully grow up to be a wonderful young man is in America as the laws are not permitting shipping or administering of this in Ireland YET.
This is CBD OIL &THCA to control the remaining seizures. We are in consult with wonderful Neurologists there, willing to help Tristan. We just need a little help to get there.
Daddy & Oscar who's 3 will be staying in Ireland to continue school.
This fund will help cover Medical Costs & Living Expenses while we are in America. These are extensive. This fund could keep us there for up to 18months where we would hope to come back with the medications for Tristan at the end.
Any donation you can give to help Tristan on his journey for a better life, a future & seizure control, we would be forever grateful.
You can also make a difference by signing Change.org for Whole Plant Medicine for Tristan & everone aswell.
Thank you John Yvonne Oscar & Tristan.
Since leaving Ireland in Dec 2015 for Colorado we are so thrilled with Mr.Ts progress.
Not only is he after weaning off (7) drugs, he is (70) doses less weekly, 20 seizures daily to ZERO.
Tristan is now 3 Months seizure free, thanks ti Whole Plant Cannabis Medicine.
We really wanted to do this LEGALLY & with the support of Medical Professionals who have been a huge support to us.
To everyone who has donated, who is sharing, who is signing Ts petition, thank you for all your help and support.
We continue to work with Political,Medical & Legal departments so everyone can benefit like Tristan has.
We hope we are able to come home soon to be a family again.
Whole Plant Cannabis Medicine works.
Up to 20 seizures a day..
98-99% seizure free with Cannabis..
79% of the population want Cannabis Medicine LEGALLY available..
We need action for all who need this valuable plant.
We will be updating you all on Tristans progress.
Tristan is babbling, imitating, speaking new words, walking steadier, bending his knees in play, kicking a ball.
Eating better & eating for himself to the point he no longer needs Occupational Therapy.
And very importantly seizure reduction from the first day he was introduced to Cannabis.
I want everyone to know this is your triumph aswell.
Without all your donations, fundraising & support Tristan would not have made it to Colorado to have a better future.
I'll forever be grateful to you all.
Now, we fight to come home with Tristans Medical Cannabis that has changed his life & ours in a wonderful way.
Thank you all once again for all your support please continue to sign & share the petition for Medical Cannabis for Tristan & everyone else who needs it in Ireland.
Just heard you on the radio now and yes I know what you ar going through because I am going through it too but differently than you. The ignorance in the program and with the presenter made my blood boil. Medical marijuna is hippies disappointment you don't get high from it but it has none of the sided effects that all the other medications have. Like you I thought marijuana was just another drug not so bad as the other ones but still a drug that needed to be illegal. Not so anymore as I have done may research. It should be prescribed by a doctor who understand the different strains of it and prescribe the right one and dispense from a pharmacy just like any other medication. It should be monitered by a doctor and not re-prescribed if it does not help the condition prescribed for like any other medication. Hence it is medication. I suffer from Dystonia the third most common movement disorder. My muscles move uncontrallable and goes into spasm and I go into storms seizures. My treatment is Botox injections around my eye lids as I can't keep my eyes open. Botox into the vocal chords in order to have a comphrehensive voice. Botox in the jaw muscles as I constantly cleenche and move the mouth into akward postions and bite of the teeth. I get Botox in the neck muscles as they are taught and painful like they are going to snap any minute. I get medications for my dystonic bladder and I am still waiting to get some help with my breathing as my diaphragm is dystonic. Imagine chocking on air etc. etc. I have tried a no. of bad medications with horrendeoues side effects and no relief. I have become addicted to Valium ( a Benzo that is a narcotic that is seriously bad compared to MM). It is legal!!!! The medications make me drowsy unstable and I have fallen many times. Lately I have cut down on many medicatins and live with the raw dystonia apart from the Botox. The Botox has destorted my face as it has taken wrongly (the deadlies poison ever). I live on my own rural in West Cork too, I am 70 years old totally isolatd due to my illness . Can't drive because my eyes close incoluntary. Very few are giving a helping hand. I want to help the fight to get MM recognised as a proper drug for a lot of illnessess. I know I could get my life back and I don't buy the excuse that is is not sientifically proven. The resarch is there and it is too many people who have sucess with it. The problem is the finacial with the big pharmacepticals, they would be the looser if many with difficult illnessess would have the opportunity to be treated with MM. I am delighted that you little boy is doing so much better and I know he would. If you read this Yvonne please contact me. I am not a nut case I am an occupationl therapist by profession. I got sick I did my research and I am looking for the help so many need legally. In an idel world no one should have to take any medication but it is not so. Then we need the right to be treated by the least harmfull and most effective "medication". The effect can so easy be seen it does not need pages of pages with word that someone is going to dispute or pass apatraonising statement "I am glad that you think it is working for your son". You know it is working.
Wishing ye the very best of luck, hope this works for Tristan, ye are such an amazing family. Thinking of ye! Best of luck Tristian beautiful boy xxxxx
Please contact me as I am from Dublin originaly and have dispensaries here in the states and access to oils etc. if I can help on supply of medication etc let me know I would love to help and can offer more than just a one time donation unless that is all you need then I will just donate. I am involved in a lot of different states so please let me know how I can help.