Peytons Brain
Donation protected
For those of you that don't already know our beautiful daughter Peyton, here she is. Peyton Hope Barron, a beautiful (almost 5) year old, that loves Play-Doh, Swimming, and Disney world. She has been battling Brain Cancer for almost 3 years now.
Peyton was diagnosed in October 2014 with an Anaplastic Ependymoma grade 3 in the 4th ventricle of her brain. She had brain surgery, followed by 30 rounds of radiation, and 2 rounds of clinical trial IV chemo. A little over a year later, the cancer spread to her spine. She was admitted to the hospital the 23rd of Christmas, and she had her second surgery the day after Christmas, along with another 30 rounds of radiation. From there, the tumors just continued to come. Within a few months, and a couple of clinical trials, the tumors were spread in different areas of her brain and spine. We recently just finished a clinical trial in Texas, that showed some shrinkage on several of her tumors, but there are 4 tumors that grew, two of which are very large and compressing her spinal cord now. Thankfully she isn't symptomatic, but her doctor believes it could be any day now as it's very large in 6 weeks time.
With all that said, we are now looking at the only clinical trial that she qualifies for, but thankfully, it is a great and promising immunotherapy trial in Chiciago. We are sending her records there now, and as long as they don't see anything wrong on her MRI, it sounds like she is a good candidate. We just have to get the records sent and get her there so she can have her spinal surgery and they can take a part of her tumor to make her clinical trial vaccine. If she becomes symptomatic before we get there and needs local surgery, it may comprimise her getting on the trial. So please send prayers and love our way that we still have some time on our side.
Any support is appreciated and has helped so much. I've put 50k on my car in 14 months from all the back and forth medical traveling, and it's not going to be slowing down any time soon since we are not local to Chicago. Medical bills, travel, and all other expenses add up so quickly. This also helps me, since I can not work, as I am a full time care giver to Peyton. It helps me to take care of her at home with any needs she has on a daily basis and with our bills, while I am trying to get her on disability and sign up with the state to be her caregiver. I am SO thankful for all the love and support you have all helped us with so much over the past couple of years. There is no way to ever say thank you enough, but please know we carry you all with us in our hearts every day.
We will never give up fighting for Pey!
#TeamPeytonsBrain #TeamPeyton #NotTodayCancer #PeytonsBrain
www.facebook.com/PeytonsBrain
God Bless!
--Team Peyton
Peyton was diagnosed in October 2014 with an Anaplastic Ependymoma grade 3 in the 4th ventricle of her brain. She had brain surgery, followed by 30 rounds of radiation, and 2 rounds of clinical trial IV chemo. A little over a year later, the cancer spread to her spine. She was admitted to the hospital the 23rd of Christmas, and she had her second surgery the day after Christmas, along with another 30 rounds of radiation. From there, the tumors just continued to come. Within a few months, and a couple of clinical trials, the tumors were spread in different areas of her brain and spine. We recently just finished a clinical trial in Texas, that showed some shrinkage on several of her tumors, but there are 4 tumors that grew, two of which are very large and compressing her spinal cord now. Thankfully she isn't symptomatic, but her doctor believes it could be any day now as it's very large in 6 weeks time.
With all that said, we are now looking at the only clinical trial that she qualifies for, but thankfully, it is a great and promising immunotherapy trial in Chiciago. We are sending her records there now, and as long as they don't see anything wrong on her MRI, it sounds like she is a good candidate. We just have to get the records sent and get her there so she can have her spinal surgery and they can take a part of her tumor to make her clinical trial vaccine. If she becomes symptomatic before we get there and needs local surgery, it may comprimise her getting on the trial. So please send prayers and love our way that we still have some time on our side.
Any support is appreciated and has helped so much. I've put 50k on my car in 14 months from all the back and forth medical traveling, and it's not going to be slowing down any time soon since we are not local to Chicago. Medical bills, travel, and all other expenses add up so quickly. This also helps me, since I can not work, as I am a full time care giver to Peyton. It helps me to take care of her at home with any needs she has on a daily basis and with our bills, while I am trying to get her on disability and sign up with the state to be her caregiver. I am SO thankful for all the love and support you have all helped us with so much over the past couple of years. There is no way to ever say thank you enough, but please know we carry you all with us in our hearts every day.
We will never give up fighting for Pey!
#TeamPeytonsBrain #TeamPeyton #NotTodayCancer #PeytonsBrain
www.facebook.com/PeytonsBrain
God Bless!
--Team Peyton
Organizer
Kait Barron
Organizer
Piney Grove, GA
