Lee Lee Jones - In A Moment

$70,075 of $100,000 goal

Raised by 336 people in 12 months
AM
Anita Motion
on behalf of Lee Lee Jones
 COATESVILLE, PA


I am writing today as a friend of the Dutton and Jones family and someone who admires and loves Lee Lee.  As many of you know on December 22, 2016 Lee Lee suffered a traumatic brain injury in a riding accident.  Lee Lee spent 7 1/2 weeks in ICU at Christiana Hospital with multiple complications to her brain injury.  When stable she was transferred to Bryn Mawr Rehabilitation Hospital in Media, PA.  Lee Lee has made significant and definite steps forward in her recovery. It has taken an enormous amount of determination by Lee Lee with a lot of support from her friends and family.  As her  Doctors, nurses and therapists say "this is a marathon, not a sprint".
Lee Lee remains at Bryn Mawr Rehab where she receives around the clock care and copious amounts of therapy - Speech, Occupational, Physical and Recreational.  Once she is discharged from BMR, Lee Lee will continue with outpatient therapy at Bryn Mawr Rehab and will need additional nursing help at home.
Her release date has been set to the last week of August.
A wheelchair accessible house, van, home nursing support and daily therapy are just a small list of things that Lee Lee will need that won't be covered by insurance.
Lee Lee's family have been overwhelmed by the love, encouragement and support given by friends and the whole community.
As friends we can help relieve the financial burden facing Lee Lee's family.  
#LeeLeeStrong #TeamLeelee
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I first want to thank the many people who continue to ask about Lee Lee's progress and are sending their best wishes and love. It is so inspiring and comforting to know that Lee Lee is still in everyone's thoughts and prayers. Also, to the many people who have contributed to her medical support fund - a huge thank you! Her days are filled with caregivers, therapy and special treatments that are not covered by insurance - so this is a huge help in making this possible and helping tremendously in her recovery!

It has been a little over a year and a half since that terrible day of Lee Lee's accident. She has made incredible progress since then and with Lee Lee's hard work and determination we will be doing everything within our power to keep up the progress. Lee Lee's head injury has really opened our eyes to the massive variations in Traumatic Brain Injuries. No TBI is the same and each individual's brain repairs differently. Lee Lee's head injury is what is called a Diffused Axonal injury which means that her whole brain is affected from the brain moving inside the skull and tearing of neurons in the process. This means that the damage is widespread and not localized to one side or one area of her body. There is still a massive amount of work to do by Lee Lee and a lot of support needed from all of us.

As a family, we are now transitioning from the shock and sadness and the critical care phase to an understanding of what is needed for Lee Lee long term and trying to incorporate all of this into our daily lives. It takes a lot of organizing but we are starting to make it feel normal. Every day we are excited and rewarded by Lee Lee's progress, although it is slow.

Great Meadow will be Lee Lee's first overnight stay away from home or the hospital. We couldn't ask to be staying with anyone better than our role model, Forrest Allen.

Again, thank you all. We really appreciate your support.

Phillip & Team Lee Lee
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I recently spoke with Evie, Lee Lee's Mom. She was so excited about the progress Lee Lee is making I urged her to help me with an update. Here goes!

I am excited to share with you an update on Lee Lee as we approach the year and a half mark since her accident. This morning when I came into her room and said Good Morning Lee Lee replied "Good Morning" in a loud and clear voice and then said "how are you?" Her voice is getting stronger and stronger and her ability to converse continues to improve.

Lee Lee now eats nearly 100% by herself, although using a spoon is a bit more challenging. We had a big milestone last month, when her feeding tube was removed. Another big milestone - Lee Lee got a new wheelchair that she can propel herself by using her right leg. It requires a great deal of core strength as there is no head rest, trunk support or tilt. This is a monumental step forward and is helping Lee Lee get stronger and stronger. Her ability to control her trunk helps with her walking - we hope to have a walker at home soon so she can motor around at home as well.

Lee Lee continues to work with her wonderful therapists at Bryn Mawr Rehab three days a week. She also works with the wonderful Lindsay for Occupational Therapy at home on Tuesdays and Thursdays, as well as Music Therapy on Saturdays. This past month we have started acupuncture twice a week. She is one busy girl.

During her down time, which isn't much, Lee Lee enjoys going to the barn to see Ollie, taking walks around the farm, listening and singing to music with "Alexa" and most of all visiting with family and friends.

" I haven't come this far to only come this far" is our mantra that we say daily! She is strong and determined as are we!

Thank you for your continued love and support.

#teamleelee #leeleestrong
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Lee Lee continues to inspire us with her progress. Three days a week she goes to Bryn Mawr Rehab as an out patient for therapy along with Hyperbaric Oxygen Therapy twice a week. Recently Lee Lee started music therapy which has shown to have great results with TBI patients. Check out the video (Gracie in the background as back up singer!)
Also shown photo from recent visit with friends L to R Becca, Liz and Marissa.
Thank you for your continued support - please share!!
L to R Becca, Lee Lee, Liz and Marissa
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We wanted to share this photo from Tuesday afternoon of Lee Lee peacefully watching a movie while undergoing her HBO therapy.
Lee Lee in the hyperbaric oxygen chamber
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Read a Previous Update
Wendy Hunter
2 months ago

Such great and wonderful news...it may not seem like all that much to you, but it's HUGE. Keep on rollin', Lee Lee!!!

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Wendy Hunter
8 months ago

Lee Lee, You are the best - and so lovely, too! We are all thinking of you!!

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$70,075 of $100,000 goal

Raised by 336 people in 12 months
Created August 7, 2017
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$25
Anonymous
1 month ago
AE
$250
Anne Eldridge
1 month ago

Always thinking of Leelee and her Family ... never give up! Hope is a Powerful motivator.

JB
$50
Jillian Barrett
1 month ago

Aiken Audiology is honored to support Lee Lee and her family!

BM
$100
Beth Morris
1 month ago

So glad to hear about LeeLee’s awesome continuing progress.

$150
Anonymous
1 month ago
Wendy Hunter
2 months ago

Such great and wonderful news...it may not seem like all that much to you, but it's HUGE. Keep on rollin', Lee Lee!!!

+ Read More
Wendy Hunter
8 months ago

Lee Lee, You are the best - and so lovely, too! We are all thinking of you!!

+ Read More
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