Making Moves For Cerebral Palsy

$6,880 of $50,000 goal

Raised by 46 people in 18 months
They may struggle to walk, but they shouldn’t struggle to laugh and dream. You can help us change the destiny of the 500,000 children living with Cerebral Palsy by making a tax-deductible donation.


Cerebral Palsy is the number 1 motor disability in the country. It impacts 1 in every 323 children born, making it the # motor disability in America, and yet national funding dedicated to CP rehabilitation is extremely limited.

A diagnosis can be one of the worst moments for parents, and often leads to a loss of hope, and the feeling that all of their dreams are destroyed. For CP families, hope is a rare occurrence.

Imagine being a parent trying to create a sense of "normalcy" for your CP child, but being unable to take part in so many of the activities and events that them. So many CP families feel isolated and alone, and fear that there is no safe or comfortable way to explore the world with their CP child. That isolation is not only terrible for their mental health, but it prevents them from becoming part of the broader community, one that offers them the support they desperately need. 

Each year, more than 10,000 babies are born with Cerebral Palsy (CP) – a movement disability caused by damage to the developing brain during pregnancy or shortly after birth. The symptoms of CP can range from issues with posture and walking to seizures, problems swallowing, and mental impairments. Up until now, Cerebral Palsy has been treated as a permanent, life-long condition, with little ability for improvement.
 
CCPM founder Debbie Fragner clearly remembers the moment she heard that her daughter had CP. After the initial shock faded, she dedicated herself to helping parents and kids who deal with CP on a daily basis, finding a way to prove to them that their dreams can still happen by giving these precious children the chance to do things they thought impossible.

 
It is this motivation that has helped CCPM continue to grow, and given Debbie the chance to meet other parents and show them that they can dream again, that they aren’t alone in the world, and that they don’t need to hide any longer. There are thousands of families in the country that have are going through the same struggles, and we are dedicated to helping them navigate the trials and tribulations that come with CP, provide the tools to help educate others and to build strong support systems across the country.


As we help bring families together and offer unique experiences for children with CP, we continue to prove that we are so much stronger together. With your help, we hope to show the whole world that Cerebral Palsy is a diagnosis, NOT a destiny!

Research shows that adult stroke victims can recover from brain injuries, so why not children who have experienced brain injuries, too? We believe that with early intervention and a whole-body approach to healing, children can achieve great improvements in their quality of life and long-term function.

We are on a mission to create programs for both caregivers and children because we believe it’s essential to not only address the physical development needs of children with CP, but also to provide a support system for the entire family.


What We’ve Done:

As a part of our first successful initiative, CCPM designed an innovative therapeutic dance program in the guise of a group ballet class – later dubbed Ability Ballet. Guided by neuroscientific research, the goal was to improve gait, balance, and overall quality of life using rigorous repetitive movements, intellectually engaging activities, and live music.  We extend gratitude to our collaborators at University of California-Irvine’s Pediatric Exercise and Genomics Research Center, UCI’s Dance Department, Chapman University, and CHOC Children’s Hospital of Orange County, as their expertise was instrumental in testing the validity of this innovative technique’s success. The results of this innovative pilot study showed statistically significant improvements in the participating children’s cognition, physical function and feelings of self worth. The Ability Ballet protocol was subsequently transferred into a community setting so that CP children with a passion to dance ballet, could do so safely and with therapeutic benefit.

As well, we just finished producing our First Annual Cerebral Palsy Kids Fun Run in MissionViejo, CA that was a huge success. It was an opportunity to break through important societal barriers that dictate that physically impaired children are not welcome to participate in running events. As well, it was a time of joy, as CP children of all presentations got to participate side by side with able-bodied children, as well as their parents.  Just imagine the joy when these same children crossed the finish line amidst cheers, to be given a beautiful medal celebrating their accomplishment! It was a sight to behold!

We just completed a CP Family Forum in collaboration with the UCLA Orthopedic Institute, where we spoke on the importance of “exercise and movement” for CP children.

Our Recipe for Caring program at Tutto Fresco Kitchen & Bar was a defining moment for us, one that brought out over 100 local Orange County residents to show their support of these incredible children. The partnerships and friends we made have continued to push us farther, and made this year the best yet!

For the holiday season, we created our Dare To Dream Christmas Extravaganza, a magical holiday event created to give CP families a night of love and support with an event made just for them! Open to CP families and able-bodied families, it was a chance for families that are often isolated during the Christmas season to enjoy a party with the entire family. More than 220 individuals, many CP children and adults, joined up for this beautiful event, and the joy and magic in the children's eyes is something we will never forget.


Please, help us to transform the belief of improved quality of life into a reality. Your donation today means a better future for a child with Cerebral Palsy tomorrow. 

Help spread the word!

Please, help us to transform the belief of improved quality of life into a reality. Your donation today means a better future for a child with Cerebral Palsy tomorrow.
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Frontline Communications – a premiere national medical publisher – does an annual issue of Rare Neurologic Disease. It is published in March. This year they decided to run a ‘special child neurology section’ on pediatric spasticity, and Ipsen Pharmaceuticals was gracious enough to sponsor it.

Children’s Cerebral Palsy Movement was invited to write two sections of a three-section article on Pediatric Spasticity, thanks to our colleagues at the Child Neurology Foundation. Please click on the link to the special report and click on the Pediatric Spasticity tab. Our section can be found on page 17 of this prestigious publication.

It is being distributed directly to 18,500 Health Care Practitioners, as well as being distributed at all 10 major industry meetings that Neurology Reviews attends throughout the year.

Please share this good news with your network of friends as this shows that Children’s Cerebral Palsy Movement is on the move. So thankful for your continued support!

https://www.neurologyreviews-digital.com/neurologyreviews/nord_supplement_0318/MobilePagedReplica.action?oc_slh=22e4a0db7a62fbb426b9797785d2d5d9ad18e33cc21c8066798f99523752c4e8&pm=2&folio=16#pg18
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$6,880 of $50,000 goal

Raised by 46 people in 18 months
Created June 22, 2017
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SB
$50
Susan Blinn
19 days ago

It is a wonderful organization dedicated to assist children reach their full potential.

DP
$100
Dennis Pham
2 months ago
1
1

Love

$50
Anonymous
4 months ago
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