Let's help Addyson Stoll and family
Baby Addyson was recently diagnosed with Ewing's Sarcoma. For those of you that don't know, Ewing's Sarcoma is is a very rare type of cancerous tumor that grows in your bones or the soft tissue around your bones, such as cartilage or the nerves. It usually affects people from the ages of 10 to 20 and has a high rate of being cured. Ewing’s sarcoma affects about 200 children and young adults every year in the United States. Addyson faces a long road ahead that will include 34 weeks of chemo therapy treatments including some inpatient 2 to 5 day stays in a hospital that is over an hour away from her home.
I have known Addyson's mom, Heather, for many years. One of the benefits of living in a small town I guess. While we were mainly just acquaintances, we became friends after we started working together full time in the spring of 2014. During our time working together there were a few things that I discovered about Heather. One was her devotion to her family and the other was her yearning for a child. Within the last two years, Heather married Dan and had baby Addyson. She was on top of the world. That all changed a few short weeks ago. When Heather told me about Addyson's diagnosis, my heart sank and I struggled for words. It's true that when you hear news like this it's hard to find consoling words. What do you say? How do you act? What can you do?
Here is what we can do; we can help! I want to help Heather and Dan during this trying time. Heather had to take a leave of absence from her job to give Addyson the care she needs. Dan works hard to support his family which entails long hours and being away from home most of the week. I know that raising a family on two salaries is a difficult task. Now with this family relying solely on one income with unexpected travel and medical costs, this journey will be extremely difficult and taxing.
Let's join together and help alleviate some of this burden for the Stoll family. Please remember that anything you can give will help tremendously. Let's all keep baby Addyson and her family in our thoughts and prayers and do what we can to help.
Addyson's Facebook Page for status updates
11/8/17- Mandy and I stopped up to see Heather and Addyson on Monday at their home. Heather said the traveling nurse had just came by and took some blood from Addyson. Chemotherapy drugs can stop your bone marrow producing enough red blood cells, white blood cells and platelets. So before a chemo treatment starts, people need to have a blood test to check their levels of these. Looks like this is going to be a weekly occurrence for Addyson. Poor thing! Heather showed us her little notebook filled with notes, med lists, and daily must do's for Addyson. Heather is on it and she is doing a great job. I know this is taxing and taking its toll on her and her family, but Addyson is in great hands! Addyson's labs came back good and she was cleared to go to Rochester to Golisano Children's Hospital to start her in patient chemo treatment. She was admitted on Tuesday and is staying until Saturday the 11th. I will continue to follow up with Heather and follow her updates on Facebook. I would recommend everyone read through the comments section of this campaign site as Heather continues to post updates and pictures showing Addyson's journey so far. I personally want to thank all that have visited this site and donated to this family. We have surpassed the goal I initially set and now I am hopefully we can double it! Again, thank you everyone. #StepupforStoll
11/2/17: If you all are wondering how I get my Chemo, meds and blood drawn it’s through this power port - I had to have a operation to have it put under my skin - the Dr told my mommy I can’t feel it. When the nurses come to take my blood at home or I have to go for Chemo my mom has to put this special numbing cream on my skin 1 hour before they want to access my line. It scares my mom every time they poke the 20 gauge x 3/4” long needle into my skin and then into the port. I hope this is not too much information for people, we are just being real.
11/1/17: Tuesday morning I had my first outpatient chemo - Went out and showed a few people my Halloween costume - this morning when I woke up at 5:30 I had a fever of 100.6 my mommy is supposed to call Golisano if my temperature gets to 100.4. My Dr from Golisano told my mom to take me to Jones Memorial ER - we got there @ 6:30 am and a few hours later after my blood results came back we were told we had to go to Rochester because my counts were very low - we had to ride in the Medical Transport Van. We are now in Rochester and will be here until my counts come back up - a minimum of a 2 day stay. Thank you for praying and thinking of us Addyson
My Doctor is Dr. Angela Girvin - she likes me
My Doctor is Dr. Angela Girvin - she likes me