Sing for Blair - Fund a Cure
Blair is 12. Her life story can be found at www.TheBlairBanner.com
There is promising research and we are close to finding a cure. A cure that could help Blair and other children with Sanfilippo.
Blair no longer talks and she is unstable on her feet. Our day is designed around keeping her as comfortable as possible.
One thing that comforts Blair is music and songs. As a father, I've always wanted to "fix" Blair. It is a helpless situation. Instead, I sing to her. I'm hoping to find others...musicians, actors, athletes... to "Sing for Blair and Fund a Cure" before it is too late.
Please consider donating (100% for research) or "sharing". With every share or "like" we just might convince others to "sing for Blair"!
Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc
Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie
Love you Blair!
Here you go Blair! http://youtu.be/DgSsnpp7FN8
Dear Blair God bless you!