Sing for Blair - Fund a Cure
At the age of 6, our daugter Blair was diagnosed with Sanfilippo Syndrome. We were told she would slowly slip into the depths of the disease. First she would stop talking, become unable to feed herself, lose her ability to walk, then eventually her body would give up. We were informed her life expectancy is in her teens.
Blair is 12. Her life story can be found at www.TheBlairBanner.com
There is promising research and we are close to finding a cure. A cure that could help Blair and other children with Sanfilippo.
Blair no longer talks and she is unstable on her feet. Our day is designed around keeping her as comfortable as possible.
One thing that comforts Blair is music and songs. As a father, I've always wanted to "fix" Blair. It is a helpless situation. Instead, I sing to her. I'm hoping to find others...musicians, actors, athletes... to "Sing for Blair and Fund a Cure" before it is too late.
Please consider donating (100% for research) or "sharing". With every share or "like" we just might convince others to "sing for Blair"!
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Blair is 12. Her life story can be found at www.TheBlairBanner.com
There is promising research and we are close to finding a cure. A cure that could help Blair and other children with Sanfilippo.
Blair no longer talks and she is unstable on her feet. Our day is designed around keeping her as comfortable as possible.
One thing that comforts Blair is music and songs. As a father, I've always wanted to "fix" Blair. It is a helpless situation. Instead, I sing to her. I'm hoping to find others...musicians, actors, athletes... to "Sing for Blair and Fund a Cure" before it is too late.
Please consider donating (100% for research) or "sharing". With every share or "like" we just might convince others to "sing for Blair"!
Friends of Sing for Blair: Our sweet Blair went to be with her Lord earlier this morning. Susan, Grey and I were by her side and her beloved dog Henri at her feet when she passed. We so appreciate all the loving wishes and kindness displayed to us during this journey. Her entire family grieves and misses her so much, but we know she will no longer be bound by her earthy struggles.

Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc
Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie
Love you Blair!
Here you go Blair! http://youtu.be/DgSsnpp7FN8
Dear Blair God bless you!