Sing for Blair - Fund a Cure

$82,889 of $100k goal

Raised by 369 people in 26 months
Roger Chapin
for Sanfilippo Research Foundation Inc
  ORLANDO, FL
At the age of 6, our daugter Blair was diagnosed with Sanfilippo Syndrome. We were told she would slowly slip into the depths of the disease. First she would stop talking, become unable to feed herself, lose her ability to walk, then eventually her body would give up. We were informed her life expectancy is in her teens.

Blair is 12.  Her life story can be found at  www.TheBlairBanner.com

There is promising research and we are close to finding a cure. A cure that could help Blair and other children with Sanfilippo.

Blair no longer talks and she is unstable on her feet. Our day is designed around keeping her as comfortable as possible.

One thing that comforts Blair is music and songs. As a father, I've always wanted to "fix" Blair. It is a helpless situation. Instead, I sing to her. I'm hoping to find others...musicians, actors, athletes... to "Sing for Blair and Fund a Cure" before it is too late.

Please consider donating (100% for research) or "sharing".  With every share or "like" we just might convince others to "sing for Blair"!
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Update 41
7 months ago
1
1
This week from the Grand Ole Opry, Riders In the Sky performed a video dedication for Blair, singing a song from one of her favorite Barney episodes.
Riders in the Sky Sing for Blair
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Update 40
7 months ago
1
1
Blair turns 14 tomorrow (Dec 21st). Thank you for your support for "Sing for Blair, Fund a Cure". Here's hoping you have yourself a "Merry Christmas" and that your "troubles will be miles away". Thank you to Michael Andrew for performing for Blair.
Michael Andrew Sings for Blair
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Update 39
7 months ago
1
1
Blair turns 14 tomorrow (Dec 21st). Thank you for your support for "Sing for Blair, Fund a Cure". Here's hoping you have yourself a "Merry Christmas" and that your "troubles will be miles away". Thank you to Michael Andrew for performing for Blair.
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Update 38
7 months ago
Today, Orlando's own O-Sky stopped by to sing for Blair, performing Ed Sherran's "Thinking Out Loud". O-Sky ( www.oskysings.com) is 13 and has known Blair for many years. Blair will turn 14 on December 21st and we are taking a little time this Holiday Season to refocus our efforts to meet our goal of raising $100K for Sanfilippo Syndrome Research (100% proceeds to research).
O-Sky Sings for Blair
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Read a Previous Update
Help spread the word!
 9.4K total shares
Lauren Capitani
26 months ago

Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc

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Orange Grove
26 months ago

Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie

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Cary Hollfelder
26 months ago

Love you Blair!

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Nicole Bowen
26 months ago

Here you go Blair! http://youtu.be/DgSsnpp7FN8

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Judith Lergier
26 months ago

Dear Blair God bless you!

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$82,889 of $100k goal

Raised by 369 people in 26 months
Created May 13, 2014
All funds raised go directly to:
Sanfilippo Research Foundation Inc
  Certified Charity
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  Wellesley, MA
Tax ID: 043565765
How it Works
  1. You make a donation. Payments are processed by FirstGiving.
  2. Checks are issued. Once a month, a check will be sent directly to the charity.
  3. Charity receives money. The listed charity receives their check directly.
AB
$100
Alex Bowen
3 days ago
CW
$25
Cate Walsh
4 days ago

From a friend of Alex Bowen

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EG
$25
Emily Gordon
4 days ago

Donation at the suggestion of Alex B (Blair's cousin) for Alex's birthday.

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DB
$20
David Bernsohn
6 days ago
BF
$100
Bowen Family
1 month ago
RB
$250
Rita Bornstein
5 months ago

The love and devotion of the extended Chapin family are priceless.

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$25
Lindsay Chamberlin
6 months ago
WG
$200
Whitney Goin
6 months ago
GA
$500
Glenn and Stacey Adams
7 months ago
$400
Anonymous
7 months ago
Lauren Capitani
26 months ago

Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc

+ Read More
Orange Grove
26 months ago

Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie

+ Read More
Cary Hollfelder
26 months ago

Love you Blair!

+ Read More
Nicole Bowen
26 months ago

Here you go Blair! http://youtu.be/DgSsnpp7FN8

+ Read More
Judith Lergier
26 months ago

Dear Blair God bless you!

+ Read More
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