Sing for Blair - Fund a Cure

$95,424 of $100,000 goal

Raised by 435 people in 51 months
Roger Chapin
for Sanfilippo Research Foundation, Inc.
 ORLANDO, FL
At the age of 6, our daugter Blair was diagnosed with Sanfilippo Syndrome. We were told she would slowly slip into the depths of the disease. First she would stop talking, become unable to feed herself, lose her ability to walk, then eventually her body would give up. We were informed her life expectancy is in her teens.

Blair is 12.  Her life story can be found at  www.TheBlairBanner.com

There is promising research and we are close to finding a cure. A cure that could help Blair and other children with Sanfilippo.

Blair no longer talks and she is unstable on her feet. Our day is designed around keeping her as comfortable as possible.

One thing that comforts Blair is music and songs. As a father, I've always wanted to "fix" Blair. It is a helpless situation. Instead, I sing to her. I'm hoping to find others...musicians, actors, athletes... to "Sing for Blair and Fund a Cure" before it is too late.

Please consider donating (100% for research) or "sharing".  With every share or "like" we just might convince others to "sing for Blair"!
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Friends of Sing for Blair: Our sweet Blair went to be with her Lord earlier this morning. Susan, Grey and I were by her side and her beloved dog Henri at her feet when she passed. We so appreciate all the loving wishes and kindness displayed to us during this journey. Her entire family grieves and misses her so much, but we know she will no longer be bound by her earthy struggles.
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This week from the Grand Ole Opry, Riders In the Sky performed a video dedication for Blair, singing a song from one of her favorite Barney episodes.
Riders in the Sky Sing for Blair
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Blair turns 14 tomorrow (Dec 21st). Thank you for your support for "Sing for Blair, Fund a Cure". Here's hoping you have yourself a "Merry Christmas" and that your "troubles will be miles away". Thank you to Michael Andrew for performing for Blair.
Michael Andrew Sings for Blair
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Read a Previous Update
Lauren Capitani
51 months ago

Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc

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Orange Grove
51 months ago

Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie

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Cary Hollfelder
51 months ago

Love you Blair!

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Nicole Bowen
51 months ago

Here you go Blair! http://youtu.be/DgSsnpp7FN8

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Judith Lergier
51 months ago

Dear Blair God bless you!

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$95,424 of $100,000 goal

Raised by 435 people in 51 months
Created May 13, 2014
Funds raised will benefit:
Sanfilippo Research Foundation, Inc.
  Certified Charity
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Wellesley, MA
EIN: 043565765
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
  2. After the deduction of GoFundMe platform and payment processing fees, PayPal Giving Fund delivers the funds it receives to the chosen charity on a monthly basis.*
* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
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$200
Anonymous
3 months ago
$25
Anonymous
9 months ago
LL
$300
Lynn Joiner Lusby
15 months ago

Blair fought a courageous battle and I know that the family all misses her so. My prayer is that her death will continue to bring research for this rare disease. With my love, Lynn

SS

Our prayers are with you..the Spring Family friends on Niki

FF
$100
Fiordalis Family
16 months ago

In loving memory of your sweet Blair.

Lauren Capitani
51 months ago

Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc

+ Read More
Orange Grove
51 months ago

Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie

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Cary Hollfelder
51 months ago

Love you Blair!

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Nicole Bowen
51 months ago

Here you go Blair! http://youtu.be/DgSsnpp7FN8

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Judith Lergier
51 months ago

Dear Blair God bless you!

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