Sing for Blair - Fund a Cure

$83,369 of $100k goal

Raised by 377 people in 33 months
Roger Chapin
for Sanfilippo Research Foundation, Inc.
 ORLANDO, FL
At the age of 6, our daugter Blair was diagnosed with Sanfilippo Syndrome. We were told she would slowly slip into the depths of the disease. First she would stop talking, become unable to feed herself, lose her ability to walk, then eventually her body would give up. We were informed her life expectancy is in her teens.

Blair is 12.  Her life story can be found at  www.TheBlairBanner.com

There is promising research and we are close to finding a cure. A cure that could help Blair and other children with Sanfilippo.

Blair no longer talks and she is unstable on her feet. Our day is designed around keeping her as comfortable as possible.

One thing that comforts Blair is music and songs. As a father, I've always wanted to "fix" Blair. It is a helpless situation. Instead, I sing to her. I'm hoping to find others...musicians, actors, athletes... to "Sing for Blair and Fund a Cure" before it is too late.

Please consider donating (100% for research) or "sharing".  With every share or "like" we just might convince others to "sing for Blair"!
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 9.4K total shares
Update 41
Posted by Roger Chapin
14 months ago
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This week from the Grand Ole Opry, Riders In the Sky performed a video dedication for Blair, singing a song from one of her favorite Barney episodes.
Riders in the Sky Sing for Blair
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Update 40
Posted by Roger Chapin
14 months ago
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Blair turns 14 tomorrow (Dec 21st). Thank you for your support for "Sing for Blair, Fund a Cure". Here's hoping you have yourself a "Merry Christmas" and that your "troubles will be miles away". Thank you to Michael Andrew for performing for Blair.
Michael Andrew Sings for Blair
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Update 39
Posted by Roger Chapin
14 months ago
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Blair turns 14 tomorrow (Dec 21st). Thank you for your support for "Sing for Blair, Fund a Cure". Here's hoping you have yourself a "Merry Christmas" and that your "troubles will be miles away". Thank you to Michael Andrew for performing for Blair.
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Update 38
Posted by Roger Chapin
14 months ago
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Today, Orlando's own O-Sky stopped by to sing for Blair, performing Ed Sherran's "Thinking Out Loud". O-Sky ( www.oskysings.com) is 13 and has known Blair for many years. Blair will turn 14 on December 21st and we are taking a little time this Holiday Season to refocus our efforts to meet our goal of raising $100K for Sanfilippo Syndrome Research (100% proceeds to research).
O-Sky Sings for Blair
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Help spread the word!
 9.4K total shares
Read a Previous Update
Lauren Capitani
33 months ago

Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc

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Orange Grove
33 months ago

Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie

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Cary Hollfelder
33 months ago

Love you Blair!

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Nicole Bowen
33 months ago

Here you go Blair! http://youtu.be/DgSsnpp7FN8

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Judith Lergier
33 months ago

Dear Blair God bless you!

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$83,369 of $100k goal

Raised by 377 people in 33 months
Created May 13, 2014
Funds raised will benefit:
Sanfilippo Research Foundation, Inc.
  Certified Charity
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Wellesley, MA
EIN: 43565765
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
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* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
$20
Katy Roberts
2 months ago

Happy 15th birthday Blair. Love,the Roberts family

DD
$30
Diane Daniels
2 months ago
D
$250
Demetree's
2 months ago
TC
$50
Tonya Crosley
3 months ago
JL
$30
Jennifer Lynch
3 months ago
JW
$30
Joanna Werner
3 months ago
EB
$30
Elizabeth Brandon
3 months ago
GN
$40
greg and meg van newkirk
7 months ago

from friends of alex bowen

AB
$100
Alex Bowen
7 months ago
CW
$25
Cate Walsh
7 months ago

From a friend of Alex Bowen

Lauren Capitani
33 months ago

Not sure how we upload, but here is out song for Blair. https://www.youtube.com/watch?v=FaRGUMOjuIc

+ Read More
Orange Grove
33 months ago

Wish I could sing on line but you are the only one who likes to listen to me. Hugs, Sugie

+ Read More
Cary Hollfelder
33 months ago

Love you Blair!

+ Read More
Nicole Bowen
33 months ago

Here you go Blair! http://youtu.be/DgSsnpp7FN8

+ Read More
Judith Lergier
33 months ago

Dear Blair God bless you!

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