Reboot Me with HSCT

£27,346 of £50k goal

Raised by 86 people in 15 months
A little update,

A few people wanted me to let them know when I would be paying the balance on my hospital treatment.

It was going to be the end of June, but as the ££ Pound is dropping against the $$ Dollar  we may be bringing the date forward to very very soon, aka April (not an April Fools joke either)

So those that wanted to help, time is up help is needed now :) and a huge thank you to each and every one of you have have helped, look at what you have done.

Any money over will be going towards my antiviral drugs and physio for after to ensure all this was not a wasted life journey.

And after that... some news on it a little later but there is a NEW Charity from those with MS who have and will have HSCT, it's all getting exciting, I most certainly will be donating, #Fabfudge will be too, this is for the future generations who need the treatment, those that have it now are the ones who set things in stone, I am proud to be one of them.

A huge thank you to you all <3 your amazing , you have done something special, remember that.


***********************************************************





wow just spent a few thousand pounds in a click of the mouse button. Deposit for my treatment has now been paid $2000 USD.

This secures my date for the treatment, only another $27000 to find by April. Not sure how that is going to happen, Been turned down for an extension on the mortgage, seriously wondering what are we going to do, we've scrimped back on everything. Heating only goes on when the duvets don't keep me warm. I always liked to be frugal, but this is becoming challenging. So glad we don't go and splurge at Christmas, so it's not going to be a disappointment that we don't splurge again this year. I've asked that no one buys presents or cards for me this year, instead donate what you would of spent on a present / card instead. contact@rebootmewithhsct.co,uk (paypal) / or donate here.   (charges apply)

Have a lovely Christmas everyone <3






Hi, my name is Jill.
I'm 46 years old and live in Bristol, UK.

I currently work part time, as I am unable to work full time owing to Multiple Sclerosis.

Prior to 2000, I was a happy mother of one going about my life without a care in the world, looking forward to raising my son and enjoying life being a parent.

 How wrong was I?

Then I started to fall ill with muscle pains, memory problems & constant fatigue. The GPs were baffled and I was sent to various hospitals for blood tests, MRI scans, lumbar punctures, physio - always to be told that there was nothing wrong with me, I was just lazy.

Around 2003 I started to have problems with my eyes. Floaters started to appear and a year or so later I lost the sight in my left eye.

I watched as, section by section like a pie chart, the sight disappeared. I described this to the doctors at the eye hospital, who tested me with various optical devices which then printed out exactly what I had described. I was told then I had Posterior Uveitis, a rare form of Uveitis most associated with loss of vision.

The consultant told me that if my sight came back it would be a clear sign of MS. Fortunately the sight returned, but it then took until 2010 before a formal diagnosis of MS was given.

The type of MS I have is RRMS (Relapse-Remitting). Alas, I did not show the classic clinical signs which is why it took so long to diagnose.


I am raising money for HSCT ('bone marrow/stem cell transplant') which has about an 87% chance of halting my MS. I have chosen to undertake treatment in Russia, as HSCT is not available on the NHS - it is only in the experimental stage in the UK, but has been used as a standard treatment in Russia for ten years. Even so, the waiting list is two years long.

The money I'm trying to raise is for pre-treatment (MRI scans), treatment in Russia and follow up care & treatment here in the UK, all of which I will have to pay for.

I will donate any funds that remain to others needing this treatment and independent research into HSCT for MS too.

We have 2 years to make this happen. Please find it in your heart to help bring about a chance for me to live a normal life, that so far has been taken from me.

I have also a Amazon wish list to help with cost of making things to sell. 
http://www.amazon.co.uk/gp/registry/wishlist/GABQSBM44XWA/ref=cm_wl_list_o_1?




Fudge making for fund raising :)



*************************************************************************************
https://en.wikipedia.org/wiki/Hematopoietic_stem_cell_transplantation

http://www.bbc.co.uk/iplayer/episode/b06ss17g/panorama-can-you-stop-my-multiple-sclerosis

https://www.healthline.com/health-news/stem-cell-transplants-first-ms-treatment-reverses-disability-012215

Success stories
https://fromrussiawithlisa.wordpress.com/a-a-maximov-department-of-cellular-therapy/

http://my-end-to-ms.blogspot.co.uk/

http://themscure.blogspot.co.uk/
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Update 15
Posted by Jill Marriner
12 days ago
   Share
Heartache

It is with sadness that I had to cancel my treatment for HSCT at Artemis Hospital in India.
We were so close to me starting my treatment.

There are issues with infection control there especially with Klebsiella pneumoniae.
It is with regret that two wonderful women in the past week have lost their lives during treatment. With patients contracting infections whilst in hospital, although being treated, it was too much for me. HSCT is a horrific treatment for your body to endure, complications can be deadly if not dealt with and kept under control. The staff are loving and caring but watching videos and blogs of past patients, it is worrying for me that not all staff in your isolation room wear appropriate apparel at all times, gloves or masks missing.
It is a terrible time of sadness of two warriors who lost their battle, my heart goes out to their families at this most difficult time. I will leave their names out, the families need time to grieve.

I have cancelled my treatment for India due to being scared, I will be there on my own with no family or friends, lost in translation. The hospital I believe is not ready for international patients.

I had already given up my previous Russian date for HSCT in favour for the cheaper treatment in India money which we (thanks to you all) had managed to raise $30k. I have emailed The A.A. Maximov Department of Haematology and Cellular Therapy, National Pirogov Medical Surgical Centre in Moscow, asked if I could be added back onto the list knowing I will be at the back of the queue. They accepted me again. I will now need to raise a further $20k. I guess you get what you pay for. Moscow is one of the leading if not the best treatment centres in the world for HSCT.
And so back of the queue so maybe be 2018. Of course, as and when I have the full $50k I can let them know I have the money and ready to go.
It is with a heavy heart one step forward, two steps back. But I am now halfway with the fundraising.
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Update 14
Posted by Jill Marriner
1 month ago
   Share
Great news look at what you have all helped to do. £5k left to get. We have just a few more weeks left.

We can do this.
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Update 13
Posted by Jill Marriner
2 months ago
   Share
Reboot Me with HSCT has reached 80% of its goal. Thanks to Donations, Zip Wire , friends and FabFudge. Only £6,083 needed by the end of May to pay for Jill's Treatment in India August this year. Please do spread the word. Thank you so much to everyone who has been on this adventure with me so far.
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Update 12
Posted by Jill Marriner
4 months ago
   Share
It's that time of year again.

A time to spend with our loved ones & remember absent friends.

Most will have time off work, although there will be those that will work all over Christmas.

Those that will have the best of everything, those that will less.

I'd like to raise a toast to everyone.

Season's Greetings.

Let's hope we all get what we wish for.

Well we know what I wish for.

But next year who knows what will happen. <3
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£27,346 of £50k goal

Raised by 86 people in 15 months
Created January 18, 2016
CK
£20
Catriona Kay
6 days ago
1
1
BG
£30
brian griffiths
10 days ago
1
1
NS
£10
Nicola Stewart
1 month ago
1
1

Sorry it's not much but every little helps xx

HH
£20
Helen Holloway
1 month ago
1
1

You have done so well raising the money. Good luck on the next part of your journey. X

£50
Sharon Fell
1 month ago
1
1
AC
£50
Alison Capey
1 month ago
1
1
£1,878
Anonymous
1 month ago (Offline Donation)
LB
£15
Laura Bacon
1 month ago
1
1
HH
£20
hippo hunk
1 month ago
1
1
IB
£10
Ilona Buchanan
1 month ago
1
1
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