My Eyes Need You!
$8,760 of $12,000 goal
"One of the most difficult losses I've experienced since my vision loss has been not being able to see faces of the people I love, especially my grandchildren."
My name is Doug Oliver. I live in Nashville with my wife Ann. Thank you for taking a moment to read my story!
About 10 years ago, I was diagnosed with Malattia Leventinese (a rare "juvenile" form of inherited macular degeneration, leading to blindness). At age 44, this had a major impact on my life, and still does.
But, the most difficult loss for me, is not being able to see the faces of the people I love. Especially my grandchildren, while they are growing up.
"How My Three Grandchildren Appear To Me"
"My Eyes Need You"
In late April, I was selected to participate in the SCOTS Clinical Trial a U.S. full-treatment, privately-funded clinical trial that will use stem cells taken from my own bone marrow and insert them near the damaged areas of my eyes.
The trial costs $21,600. The reason for this is that the U.S. Government still limits funding of research using stem cells, even though the treatment I'm receiving uses only my own stem cells.
"Clip From Steven Levy, MD -- S.C.O.T.S. Director"
YOU REALLY CAN HELP treat my blindness... and potentially contribute to the healing for many others.
If you are interested in the science behind the treatment study, here is a link to the trial's inititial findings in Neural Regeneration Research Journal, published just this week.
Please, donate what you can, tape a poster (click here)
and share this campaign with your friends...
P.S. Here's some recent coverage my story has received, as well as my selection letter for the treatment trial.
Nashville Affiliate Fox 17 Coverage Of My Story
My Selection Letter:
I just wanted to provide you with an update after my stem cell clinical trial treatments.
I'm now at 20/25 in both eyes, have my drivers license, and am today seeing clearly for the first time the faces of my grandchildren!
Today at 11:30am I got my Tennessee Drivers License. Thanks in no small part to all of you! I have decided to develop an advocacy network on Facebook called the Mud Pak Advocacy Network. Search it on Facebook, and find out all about it! It is starting to bring together people with blindness and those interested in keeping abreast of services, such as stem cell treatments. We are starting to reach out to large groups online, with the goal of eventually creating a foundation to grant funds to seekers of treatment, perhaps to help pay for transportation and lodging, or, in some cases, direct treatment. I'll keep you all posted on progress... And THANK YOU for making today not only possible, but symbolic of changes about to happen in many people's lives as a direct result of your giving. Happy New Year!
At 2:00pm this afternoon, I will be conducting my 2nd Reddit IAMA question-answer session in the world-wide Optometry category (subreddit). The moderator is very excited!
Big News Next Week!!!!
IMPORTANT MESSAGE:~~Hi Everybody! TODAY, October 27th at 2pm U.S. Central Time, I will begin conducting a series of Reddit “iAMA" (world-wide live question/answer discussion) announcing my stem cell treatment successes, and raising awareness for others with Macular Degenerative diseases.
There will be 4 IAMA sessions, each on a Tuesday afternoon. Each Tuesday, I’ll conduct discussions with 2 separate Subreddit communities. The first will be at 2pm CT, and the second will be at 3pm CT. The series will run each Tuesday through November 16. The series will begin TODAY at 2:00pm CT
The session will broadcast simultaneously at the following “subreddits”:
IF YOU HAVE loved ones, friends, colleagues, neighbors who would be interested in logging into Reddit (a free account will need to be set up at reddit.com), PLEASE CONTACT THEM and let them know to get online. They should click on the announcement that says:
"From legally blind to legal to drive! I’m Doug Oliver and two months ago I was legally blind with untreatable Macular Degeneration. Today I am 20/40 in both eyes and legal to drive! Ask Me Anything!"
The two Reddit discussion links, for each date are shown below:
2:00pm CT https://www.reddit.com/r/upliftingnews/
3:00pm CT https://www.reddit.com/r/maculardegeneration/
2:00pm CT https://www.reddit.com/r/science/
3:00pm CT https://www.reddit.com/r/optometry/
2:00pm CT https://www.reddit.com/r/stemcells/
3:00pm CT https://www.reddit.com/r/ophthalmology/
2:00pm CT https://www.reddit.com/r/gerontology/
3:00pm CT https://www.reddit.com/r/blind/
Please share and help me raise awareness of the emerging availability of treatment for retinal diseases!
Doug, congratulations on your good success with SCOTS. I am in the process of getting all of the information together so that I can enroll in the study, but I wanted to ask if you know anyone who has participated in the study who has retinitis pigmentosa, and if you do, do you think they would be willing to talk with me. Please let me know if you know anyone and how I can get in touch with them. Thanks!
Congratulations on your success!!! You are an inspiration to all!!! It would be extremely beneficial for me to be able to communicate with you via email, since i need to make my final decision to go ahead with SCOTS!! Please reply where you can be reached! i would greatly appreciate it!!
My daughter went blind at age 18. Two eye specialist said there was nothing that could be done. We we're sent to Ohio State University only to confirm what the two previous doctors had concluded. I took charge of this and got her eyesight back in two weeks by treating with Natural Medicine. America stop listening to all the experts lie! Dr. Linus Pauling ,two time Nobel Laureate said, "all disease can be explained."
Incredible journey Doug! I am very happy for you that your risk of participating in a clinical study paid off. I saw your story on Fox News and instantly I could relate to your story and the slow struggle you had to go through while gradually losing your vision. I was diagnosed with an inherited eye condition called vitelliform macular degeneration in my mid 20's and now in my mid 30's I am adapting to not being able to read menus at restaurants with out Magnifying glass or using my smart phone to zoom in and I am very close to losing my drivers license which would seriously damage my sense of freedom and career ambitions. Your story has given me a renewed sense of hope for a brighter future and I want to thank you for sharing your story! Best regards Halli Hallgrimsson
Dear Doug - My husband is scheduled for SCOT treatment for March 1, 2016. We would love to visit with someone who has actually undergone treatment. How might we connect?
Congratulations on your TDL ! Cara has kept me posted and I am thrilled for you ! Happy New Year and remember: THE BEST IS YET TO COME!