Matthew's Eye Cancer Fight

£37,056 of £60k goal

Raised by 706 people in 31 months
Matthew Parsons, a father of three was diagnosed with choroidal melanoma (Eye Cancer) in November 2012. This deadly and incurable form of cancer has now spread to his liver and we need your help to raise funds for Matthew.  Unfortunately standard chemotherapy has no effect on this rare form of cancer however, the funds raised will help Matthew gain access to treatment which is not available to NHS patients. It will also help with costs associated with his endless appointments at Southampton University Hospital.

Please support Matthew in his fight with this disease, your donations will help him gain access to new treatments available allowing him to be a father, husband, son and brother, creating many more memories with his family in years to come.

Please help us to raise £30,000 for Matthew to receive another PHP treatment. We are grateful for all your donations and support, no matter how small.

Matthew's story so far....

Matthew Parsons, a father of three was diagnosed with choroidal melanoma in November 2012, after a routine eye examination. He was quickly referred to a specialised eye cancer centre in Liverpool which confirmed the diagnosis from a biopsy. A few weeks later he received the life changing news that his tumour was a very aggressive form of cancer that was likely to spread to other parts of his body, in particular his liver. In early 2013 Matthew received Proton Beam Therapy (PBT) to kill the tumour in his eye, unfortunately he has been left with a permanent vision impairment that causes constant double vision and no peripheral vision in his right eye.

After regular 6 monthly scans of his liver, in April 2014 Matthew was told that the cancer had spread to his liver. After many funding issues in May 2014 Matthew managed to gain access to a new treatment available in Southampton University hospital. PHP (Percutaneous Hepatic Perfusion) from Delcath also known as Chemostauration was performed firstly in May 2014 and then also in July 2014. This treatment is liver-directed high dose chemotherapy which is currently only used for research purposes and has yet to be approved by NICE. Scans taken at the end of 2014 have showed that this treatment is working!

Matthew then benefited from the systematic therapy Ipilimumab (IPI) (also known as Yervoy)  which may also help to prolong his life. As we approach 2015 Matthew is currently undergoing treatment known as Anti-PD-1 (or Pembrolizumbab). This is courtesy of the Early Access Program, which basically means that the drug company is giving it away for free before it gets approval.

Next steps….

Matthew is raising money for another liver directed treatment which appears to be the most effective form of treatment that may help to prolong his life.

About Matthew Parsons Eye Cancer Fight

This fund has been set up by Matthew's family whose primary objective is to raise funds for any necessary treatment Matthew may require in his fight against Ocular Melanoma.

In the tragic event that Matthew looses his battle with this disease, any remaining funds shall be equally divided and given to OcuMel UK and contribute towards Matthew's funeral costs.

About Ocular Melanoma (OM)

Ocular Melanoma is a very rare incurable form of cancer of the eye that can spread (metastasise) to other organs, typically the liver.

Approximately 50% of patients will develop metastatic disease of the original diagnosis, and once the liver is involved the cancer is currently incurable. However, if the spread is found early enough there are localised treatments that can potentially extend life expectancy or help improve quality of life for those affected.

The most common place for ocular melanoma to spread is into the liver. Other common sites of metastases include the lungs, bone and the brain, although tumours can be anywhere in the body as they are spread via the blood stream. Unfortunately standard chemotherapy has shown to have no effect in treating metastatic cancer however, new innovative treatments that work by enhancing the patient’s own immune system have given OM patients some hope. There are also new treatments available for metastatic liver cancer, however as with all treatments for OM none of these are routinely available on the NHS and funding continues to be an huge problem for patients.

For more information please visit OcuMel UK http://www.ocumeluk.org/

http://www.walesonline.co.uk/news/health/i-diagnosed-incurable-cancer-after-3659445

http://www.walesonline.co.uk/news/local-news/i-cant-swim-dont-bike-7744814

http://www.walesonline.co.uk/news/health/cancer-sufferer-matthew-parsons-anguish-7999255
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Update 9
Posted by Matthew Parsons Eye Cancer Fight
2 months ago
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On behalf of Matthew's family I would like to thank you all for your unbelievable support and kind words during this very difficult time.

We would love you all to join us to celebrate Matthew's life tomorrow, Tuesday 24th January at Thornhill Crematorium, Thornhill Road, Cardiff. CF14 9UA at 4.15pm in the Wenallt Chapel. At Matthew's request there is no particular dress code so please dress as you wish.

There will only be family flowers but should you wish to make a donation, our preferred charities are either The Marie Curie Hospice Bridgeman Road, Penarth CF64 3YR; OcuMel UK, https://ocumeluk.org or George Thomas Hospice, Whitchurch Hospital Grounds, Park Road, Whitchurch, Cardiff CF14 7BF.

Following the service, around 5.45pm, we welcome you all to join us at The Discovery Inn, Celyn Avenue, Cardiff CF23 6FH. Refreshments will be served and we will continue to celebrate Matthew's life and share our many happy memories.

If you are unable to attend the service at the crematorium but would like to pay your respects, we encourage you to join us at The Discovery Inn afterwards. We welcome all friends and colleagues of Matthew, regardless of how long you knew him.


Thank you,

Matthew's family xxx
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Update 8
Posted by Matthew Parsons Eye Cancer Fight
2 months ago
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Yesterday our amazing family was torn apart as we said goodbye to our beloved Matthew. He dealt with his illness in the most courageous manner we could ever imagine and we are so proud of the man he became.

We are truly grateful for the fantastic care and support he received at the Marie Curie hospice in Penarth during his final weeks and cannot imagine how he would have coped without this wonderful facility.

We would also like to thank all our family and friends for their continued support during the passed few years and all those who donated and helped to raise money which enabled Matthew to receive specialist treatment to prolong his life. Matthew was truly touched by all of your extraordinary efforts.

To our OM community - your love, commitment and support is unbelievable and we know that Matthew forged special relationships with many of you. This is a cruel disease but you must not give up the fight.

Much love, the Parsons family xxx
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Update 7
Posted by Matthew Parsons Eye Cancer Fight
7 months ago
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Dear Friends
My time on this planet is once again being challenged by the monster that is Cancer and unfortunately it now has the upper hand. My tumours have grown wildly out of control since April and I'm now in the position where my options for treatment are very limited.
The Oncology team in Southampton have run out of options that could prolong my life and as a result we have parted ways with with them. They have done a fantastic job but they’re hands are tied when it comes to the only treatment we know that has an impact on my Tumours, Chemosat. At roughly £30k it is not cheap and there is the obvious impact on my already deteriorating health but I must try something for the sake of my family.
I’m well aware that all of you have already donated but I find myself in a situation where I must swallow my pride and ask for help once more. No crazy idea to raise funds will be discounted, except those that involve me being nude! So please let us put our heads together and see what we can come up with.
The next week or so will see me chasing up Oncologists all over the World in the hope that we can find a solution to get some kind of meaningful treatment be it Chemosat or maybe SIRTS again. I hope that I can report back in a few weeks with positive news so fingers, toes and everything else crossed.
As Chumbawamba once sang 'I get knocked down, but I get up again, your never going to keep me down’.
Love
Mat
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Update 6
Posted by Matthew Parsons Eye Cancer Fight
11 months ago
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Yesterday was yet another long day at Southampton Hospital that consisted of scans, multiple bloods taken and clinic appointments, which has taken it’s toil on me today. Preliminary scan results from my visit have shown that growth of my many tumours has stalled since January and in some places receded. The last 6 months has gone way to quickly and seen me undergo 2 Delcath treatments, which have obviously worked. The funding for further treatments, is as ever unknown and I can only cross my fingers that the team in Southampton can once again find the money for more. Many thanks to those of you who continue to keep in touch and support me, I now look forward to celebrating lazy summer days with a beer in hand.
Love, Mat
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Read a Previous Update
Joanne Stevens
2 months ago

I'm so sorry to hear of your loss - I'm sure Matt will always be considered part of the Springwatch family and much missed by all who worked with him. Thinking of you. xx

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Kathryn Page Curtis
2 months ago

I'm so sorry to hear this news. Mat was a very special person and he will be sorely missed. It's hard to believe he is no longer with us when he fought so hard to keep going. I'm glad he found the Marie Curie hospice and hope that has been of some comfort. Please let me know if I can do anything at all for any of you. I will be thinking of you over the coming days, weeks and months. With all my love, Kathryn x

+ Read More
Adrian Gooch
2 months ago

Terribly sad news, he was a lovely and brave guy, my thoughts are with you at this sad time.

+ Read More
Wayne Jones
2 months ago

Extremely sad news - very sorry for your loss from a brave guy.

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Marie Belson
2 months ago

Hi Matt I often think about you and pray you are doing well. You made such a huge impression on me when you stayed at my home in Southampton. A true gentleman. It goes without saying really that I wish you and your family the very best. Stay strong. Marie X

+ Read More
Helen Thomas
7 months ago

Hi Matt - so glad to be making contact as I've thought about you so often, wondering how you are. I've never forgotten your encouragement when you called to see me at my home in Bethesda. With all my heart I hope this treatment becomes available, so that the time you gain will be shared with those you love - your precious family. Much love Helen x

+ Read More
Ceri Hughes
16 months ago

naturalsociety.com/turkey-tail-mushroom-immune-system-fight-cancer. Don't know if this something you could try ...? Maybe when you're not getting treatment. Good luck with your continued fight.

+ Read More
Mair Davies
16 months ago

Keep fighting Matt

+ Read More
Mair Davies
17 months ago

Hi Mat. sorry to hear you news. Don't beat yourself up about this you have not let anyone down you have to explore all avenues. Keep up the good fight and never give in. We are all behind you. X

+ Read More
Kathy Durrant
17 months ago

You've got to keep going Mat, we are all rooting for you and hope all goes well for you in November xx

+ Read More
Stephen Clark
20 months ago

Just received your latest update, Matt. Keep going, mate, enjoy the summer and I'm sure it'll be onwards and upwards come the Autumn. All the very best to you and your family. SC.

+ Read More
Matthew Parsons
31 months ago

You are all amazing, thank you so much for your help

+ Read More
Ayesha Hounsell
31 months ago

Sorry to here Matth love to you and your family ayesha hounsell

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£37,056 of £60k goal

Raised by 706 people in 31 months
Created August 14, 2014
KH
£15
Kate Howell
2 months ago
TB
£10
TARA BOYLE
2 months ago
KT
£30
Kim Targett-Adams
2 months ago

Thinking about all at this very sad time xxxxxxxxxxxx

LL
£100
Louise Lester
2 months ago
JM
£50
James Morgan
2 months ago

Sending Matthew's amazing family love and strength. James x

KD
£30
Kathleen Durrant
2 months ago
£50
Anonymous
2 months ago
£1,000
Anonymous
5 months ago
1
1
HW
£25
Hywel Williams
5 months ago
1
1
MD
£100
Mike D
6 months ago
1
1
Joanne Stevens
2 months ago

I'm so sorry to hear of your loss - I'm sure Matt will always be considered part of the Springwatch family and much missed by all who worked with him. Thinking of you. xx

+ Read More
Kathryn Page Curtis
2 months ago

I'm so sorry to hear this news. Mat was a very special person and he will be sorely missed. It's hard to believe he is no longer with us when he fought so hard to keep going. I'm glad he found the Marie Curie hospice and hope that has been of some comfort. Please let me know if I can do anything at all for any of you. I will be thinking of you over the coming days, weeks and months. With all my love, Kathryn x

+ Read More
Adrian Gooch
2 months ago

Terribly sad news, he was a lovely and brave guy, my thoughts are with you at this sad time.

+ Read More
Wayne Jones
2 months ago

Extremely sad news - very sorry for your loss from a brave guy.

+ Read More
Marie Belson
2 months ago

Hi Matt I often think about you and pray you are doing well. You made such a huge impression on me when you stayed at my home in Southampton. A true gentleman. It goes without saying really that I wish you and your family the very best. Stay strong. Marie X

+ Read More
Helen Thomas
7 months ago

Hi Matt - so glad to be making contact as I've thought about you so often, wondering how you are. I've never forgotten your encouragement when you called to see me at my home in Bethesda. With all my heart I hope this treatment becomes available, so that the time you gain will be shared with those you love - your precious family. Much love Helen x

+ Read More
Ceri Hughes
16 months ago

naturalsociety.com/turkey-tail-mushroom-immune-system-fight-cancer. Don't know if this something you could try ...? Maybe when you're not getting treatment. Good luck with your continued fight.

+ Read More
Mair Davies
16 months ago

Keep fighting Matt

+ Read More
Mair Davies
17 months ago

Hi Mat. sorry to hear you news. Don't beat yourself up about this you have not let anyone down you have to explore all avenues. Keep up the good fight and never give in. We are all behind you. X

+ Read More
Kathy Durrant
17 months ago

You've got to keep going Mat, we are all rooting for you and hope all goes well for you in November xx

+ Read More
Stephen Clark
20 months ago

Just received your latest update, Matt. Keep going, mate, enjoy the summer and I'm sure it'll be onwards and upwards come the Autumn. All the very best to you and your family. SC.

+ Read More
Matthew Parsons
31 months ago

You are all amazing, thank you so much for your help

+ Read More
Ayesha Hounsell
31 months ago

Sorry to here Matth love to you and your family ayesha hounsell

+ Read More
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