Manny's Hope - Fight For Sight!
Spende geschützt
This isn't just a fight for my eyesight anymore. This is a fight for my chance at actually living life.
For years everyone has asked me one question, "What can I do to help?" I'm Manny, and since I was young I have struggled with debilitating chronic illnesses. Very recently I have been diagnosed with Keratoconus; a condition that causes the corneas to degenerate and develop scar tissue. I need surgery on both eyes to strengthen and correct my corneas. The longer I wait for surgery the higher risks are of complications; like developing more scar tissue, or losing my eyesight permanently. My eyesight is already affecting my life by increasing my seizures, conflicting with my hearing loss, and preventing me from living a 'normal' life. Cornea Cross Linking Surgery and treatment are not covered by insurance in any way, and neither are some other treatments I receive...My family and I cannot afford this treatment alone, and we need to act quickly. "What can I do to help?" for a long time we have been able to manage, but now is the time to ask for help.
● My Story:
Above I made a general overview that could be read quickly about what I need. Now I wan't share why this is so important to myself and my family. I have been very ill since I was 15months old. I've always been a fighter, but over the years I have had more and more to battle. Since I was a kid I have almost been accustomed to dealing with debilitating illness, testing, and surgeries. It wasn't unusual for me to miss school for long periods of time, or spend extended time in medical facilities. Even with my medical state, I still had a dream for my life and a goal to fight towards.
Five years ago I was in high school with an aspiration to graduate with honors, be a member of our schools sign language honors society, complete collage courses offered by my high school, and start my journey for my dream career of being a Deaf Education - Special Education Teacher. Not even halfway through my sophomore year I got very ill. I couldn't eat anything, I could barely drink, I was in severe almost unmanageable pain, I was on high doses pain medications around the clock, and I could no-longer attend school. Our administration told me to "Drop out and get your GED" and also said "You are too sick for us to help you." The administration gave up on me. Part of it was for the best. Doctors did find the source of my extreme abdominal pain, and inability to consume any sustenance and diagnosed me with Gastroparesis.
Gastroparesis is a condition that slows your stomach down resulting in an inability to digest sustenance. For me, it stopped my stomach almost completely. They suggested that I get a feeding tube, and go to the hospital for IVs every other day. When we got my feeding tube a lot of my pain started to ease up...but I have remained a very sickly person. I still struggle daily with pain that feels almost unmanageable, major hearing loss, more than 20 seizures a day, and now loss of vision. Loosing my eyesight is actually making most of my conditions worse! Especially my seizures and hearing loss. I am trapped in my body that acts 90 years old instead of 20, and my family takes care of me around the clock.
I had a dream to become a teacher and make a difference...Now my family and I all dream that I will get well enough just to get out of the house on my own. And I need to get this eye surgery to make it happen. If I get surgery I could have a better chance at a 'normal' life. I want to go back to school and get my High-Set diploma; which is a high school equivalency course, and not a GED. I still want to be a teacher, and make a difference. Especially in a system where I know other kids need help. I want to go back to my hobbies that I have had to put aside like my baking and art. And I want to go outside with my family and friends; without anyone worrying about when my next seizure will hit, can I hear whats around me, can I see in-front of me, or what time I need to take my next medication.
● What Ailments Do I Struggle With? I have struggled with many ailments since I was a child. However the ones the effect me the most are Gastroparesis, Hashimoto's Disease, Autonomic Nephropathy, Sensory Nephropathy, Meniere's Disease, Seizures Caused by a Genetic Disorder, and now Keratoconus.
● What Are My Current Treatments? I am on a number of medications; ranging from over the counter anti-inflammatory medications, to prescription seizure control medications. Aside from the large number of medications; I see a chiropractor weekly, have my feeding tube changed regularly, and go to countless doctors appointments. (Including those out of state)
● How Will Your Donations Help? All donations will go towards medical expenses. Namely the Cornea Cross Linking Surgery. We also hope to have the funds to continue other treatments and medications; which are not covered under insurance such as chiropractics and over the counter medications. Donations will also contribute towards food, gas, and board for out of state appointments and treatments.
A Message From Family:
● I am Athena, Manny's Mother and primary caregiver. Manny has struggled with many ailments, over the years. She has always kept a good attitude and a fighting spirit throughout it all. This new diagnosis is no different. Many people would be overwhelmed, and dragged down by their prognosis; but she keeps fighting! Manny is hopeful that these treatments will make a drastic change in her life. She wants recover her health, continue her education, and achieve her dreams of becoming a special needs teacher. Thank you for your support; for Manny and our Family.
For years everyone has asked me one question, "What can I do to help?" I'm Manny, and since I was young I have struggled with debilitating chronic illnesses. Very recently I have been diagnosed with Keratoconus; a condition that causes the corneas to degenerate and develop scar tissue. I need surgery on both eyes to strengthen and correct my corneas. The longer I wait for surgery the higher risks are of complications; like developing more scar tissue, or losing my eyesight permanently. My eyesight is already affecting my life by increasing my seizures, conflicting with my hearing loss, and preventing me from living a 'normal' life. Cornea Cross Linking Surgery and treatment are not covered by insurance in any way, and neither are some other treatments I receive...My family and I cannot afford this treatment alone, and we need to act quickly. "What can I do to help?" for a long time we have been able to manage, but now is the time to ask for help.
● My Story:
Above I made a general overview that could be read quickly about what I need. Now I wan't share why this is so important to myself and my family. I have been very ill since I was 15months old. I've always been a fighter, but over the years I have had more and more to battle. Since I was a kid I have almost been accustomed to dealing with debilitating illness, testing, and surgeries. It wasn't unusual for me to miss school for long periods of time, or spend extended time in medical facilities. Even with my medical state, I still had a dream for my life and a goal to fight towards.
Five years ago I was in high school with an aspiration to graduate with honors, be a member of our schools sign language honors society, complete collage courses offered by my high school, and start my journey for my dream career of being a Deaf Education - Special Education Teacher. Not even halfway through my sophomore year I got very ill. I couldn't eat anything, I could barely drink, I was in severe almost unmanageable pain, I was on high doses pain medications around the clock, and I could no-longer attend school. Our administration told me to "Drop out and get your GED" and also said "You are too sick for us to help you." The administration gave up on me. Part of it was for the best. Doctors did find the source of my extreme abdominal pain, and inability to consume any sustenance and diagnosed me with Gastroparesis.
Gastroparesis is a condition that slows your stomach down resulting in an inability to digest sustenance. For me, it stopped my stomach almost completely. They suggested that I get a feeding tube, and go to the hospital for IVs every other day. When we got my feeding tube a lot of my pain started to ease up...but I have remained a very sickly person. I still struggle daily with pain that feels almost unmanageable, major hearing loss, more than 20 seizures a day, and now loss of vision. Loosing my eyesight is actually making most of my conditions worse! Especially my seizures and hearing loss. I am trapped in my body that acts 90 years old instead of 20, and my family takes care of me around the clock.
I had a dream to become a teacher and make a difference...Now my family and I all dream that I will get well enough just to get out of the house on my own. And I need to get this eye surgery to make it happen. If I get surgery I could have a better chance at a 'normal' life. I want to go back to school and get my High-Set diploma; which is a high school equivalency course, and not a GED. I still want to be a teacher, and make a difference. Especially in a system where I know other kids need help. I want to go back to my hobbies that I have had to put aside like my baking and art. And I want to go outside with my family and friends; without anyone worrying about when my next seizure will hit, can I hear whats around me, can I see in-front of me, or what time I need to take my next medication.
● What Ailments Do I Struggle With? I have struggled with many ailments since I was a child. However the ones the effect me the most are Gastroparesis, Hashimoto's Disease, Autonomic Nephropathy, Sensory Nephropathy, Meniere's Disease, Seizures Caused by a Genetic Disorder, and now Keratoconus.
● What Are My Current Treatments? I am on a number of medications; ranging from over the counter anti-inflammatory medications, to prescription seizure control medications. Aside from the large number of medications; I see a chiropractor weekly, have my feeding tube changed regularly, and go to countless doctors appointments. (Including those out of state)
● How Will Your Donations Help? All donations will go towards medical expenses. Namely the Cornea Cross Linking Surgery. We also hope to have the funds to continue other treatments and medications; which are not covered under insurance such as chiropractics and over the counter medications. Donations will also contribute towards food, gas, and board for out of state appointments and treatments.
A Message From Family:
● I am Athena, Manny's Mother and primary caregiver. Manny has struggled with many ailments, over the years. She has always kept a good attitude and a fighting spirit throughout it all. This new diagnosis is no different. Many people would be overwhelmed, and dragged down by their prognosis; but she keeps fighting! Manny is hopeful that these treatments will make a drastic change in her life. She wants recover her health, continue her education, and achieve her dreams of becoming a special needs teacher. Thank you for your support; for Manny and our Family.
Spendenteam: Family (3)
Manny Marcy
Organisator
Casper, WY
Tim Marcy
Spendenbegünstigte
Athena Marcy
Team member
