Bringing smiles to sick kids Noelle

$6,469 of $5,000 goal

Raised by 127 people in 42 months

http://www.myfoxboston.com/story/29826738/local-girl-with-spine-condition-delivers-toys-to-local-hospital 


This will be Noelle's second year, raising money to bring fun items to the children at Tufts Floating Hospital in Boston.

This summer, Noelle will swim 1.5 miles across Province Lake in East Wakefield, NH. She has been an outpatient since the age of 5 when she was diagnosed with a rare spinal condition which causes constant pain and numbness in her legs along in addition to other problems. She spent 3 years with restricted mobility in a rigid back brace. Each time she went through a procedure or difficult situation, the hospital would provide a prize or reward which kept her spirits up. When she endured a 1:30 minute MRI in Feb of 2014, she noticed that the reward closet was quite empty. She asked what would happen to the child after her and they said there would be nothing for them. The prizes were all donations, mostly from the staff. Seeing as though the small reward was so important to her throughout her time at Tufts, she has decided to raise money to fill their closets and bring smiles to inpatients and outpatients at the hospital.

NOELLE'S STORYNoelle was diagnosed with Dysplastic spondylolisthesis at the age of 5. (Dysplastic spondylolisthesis is a rare congenital spondylolisthesis occurring because of a malformation of the lumbosacral junction resulting in small, incompetent facet joints.) I know that's a lot of medical lingo. Basically, Noelle 4th Lumbar is slipped and twisted over the 5th squeezing the spinal cord. Certain movements or falls could cause paralysis. Noelle was placed in a rigid back brace for 3 years. During those 3 years, she couldn't play outside, participate in physical education, recess or even ride a bike. It was a very difficult time but she remained consistently positive. She found ways to keep herself busy with sewing, piano and reading. Last summer her doctor said that although her condition remained, it had stabilized to a degree where she would be able to do some physical activity and slowly wean from the brace. In October, Noelle began swimming and loved eve
ry moment of it. In January, she joined a swim team and recently had her first swim meet! She is slowly regaining strength and muscle and thriving in the pool. 2014: The Mary Jo Brown Spreading Smiles Kindness Banquet. They are an amazing organization and surely life up to their mission of spreading smiles!

2014: Noelle brought over $4,000 worth of toys and small prizes to Tufts Floating Hospital in Boston.

2014: We fit over 2,000 toys in one trip! I'm still not sure how we got it all to fit.

2014: She made it across the lake! What a huge accomplishment after being so physically restricted for most of her life.




2014 Spreading Smiles Kindness Award Winner from the Mary Jo Brown Foundation. 



Noelle's supporters! She loves seeing those shirts on everyone.


We've come so far and we appreciate everyone's support. Before you leave, here is a short clip to bring you a smile. This is Noelle in her very first rigid back brace. She was able to move some and figured out how to make some fun noises. As always, she's laughing and smiling. enjoy!



All set up for the big swim! Thank you to everyone who came out to cheer her on and support her swim.

Finished the 1.5 mile swim and still smiling! It was a difficult swim this year as she did it without stopping. She was in a lot of pain afterwards (even though she's still smiling as always), however she said, "A bit of pain for me is worth the smiles I'm bringing to kids sicker than I am."

Unfortunately, Noelle doesn't think she will be able to swim again next year. Her back has gotten progressively worse. We'll see what next year brings. Weather or not she can do the big swim, she plans to continue fundraising and helping other kids regardless of her own physical condition.


If you would like to send a donation via mail you can make donations payable to and addressed the following: 

Laps 4 Backs
C/O Haverhill Bank
PO Box 1656
Haverhill, MA 01831

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On to 2016! If you would like to follow this year's goal, please head over to www.gofundme,com/laps4backs2016

Thanks for your support!
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What an incredible year it is been. One of the biggest roller coaster rides of our lives so far. With all bad comes good and boy was that evident this year. Noelle struggled through her pain to make her swim this year, but finished with a smile as always. Then the charity account was hacked which led to crazy publicity and meeting amazing new people! What a ride that was! Her condition continued to decline leading to surgery. Her courage and positive attitude showed everyone just how incredible this little girl can be. Now on to 2016! Noelle is hoping she'll be able to help even more this year. Thank you to everyone who has boarded our coaster and came for the ride. It was amazing to know there are so many caring people in the world. I can only image what she will accomplish. It certainly had been the year of Noelle.
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3 weeks post surgery and Noelle had already graduated from the walker! She's doing amazing. As always, she's smiling! We can tell she's feeling a lot better now too because she's very chatty!
3 weeks post surgery - she's amazing!
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On Monday we were Heading into Tufts Floating Hospital Boston for Noelle's post op appointment. We decided since we were out of the house we would stop by the mall to visit Santa. It was meant to be too because after a few moments of chatting, Santa revealed had a very similar surgery as Noelle last January! (Carrying all those toys takes a toll!) He was able to spend time talking to her about his recovery and she was all smiles knowing what to expect over the next year. Noelle's visit gave her a sense of peace.
It was like that moment from Miracle on 34th Street when speaks another language and signs to the deaf girl. Thank you Santa!
Santa visit
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Read a Previous Update
Sarah Coletti
36 months ago
1
1

Hi There, UNO Haverhill would very much like to support Noelle by hosting a dining fundraiser for you and donating up to 20% of ticketed sales for the day back to her cause. Please contact me any time if would interested in us hosting this for you to help support her. Great job Noelle. Sarah Coletti, 978-914-0514, scoletti@unos.com

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Christen Molina
13 months ago

I was wondering if the brackets were still available I wanted to purchase one

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Jennifer Lay
32 months ago

Happy Thanksgiving Noelle and family!

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Jennifer Lay
32 months ago

You've got this! Keep on keeping on ☺

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Sherry Oliveri
32 months ago

Keep your head up Noelle! Praying for you! :)

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Richard Pedrick
32 months ago

Thoughts and prayers for a speedy recovery - you've got this Nicolle!

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Jennifer Lay
35 months ago
Jennifer Lay
35 months ago

Praying for you Noelle (and your family)! I want you to know how awesome you are! I live in N.E. Texas but if I can help in any way, please let me know. Thank you for being you! ☺

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$6,469 of $5,000 goal

Raised by 127 people in 42 months
Created February 5, 2015
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$5
Anonymous
24 months ago
W
$10
Wendy
31 months ago (Offline Donation)

Thank you Wendy! Noelle has already started collecting toys for the next delivery thanks to online shopping!

JC
$10
Joanne Fabric's Customer
34 months ago (Offline Donation)

Thank you!

$25
Maureen McKean
34 months ago

So impressed by your positive attitude and the positive impact you are making in so many lives!

GL
$20
Gary Pilgrim Lanes
34 months ago (Offline Donation)
$10
Anonymous
34 months ago (Offline Donation)
$25
Anonymous
35 months ago (Offline Donation)
Sarah Coletti
36 months ago
1
1

Hi There, UNO Haverhill would very much like to support Noelle by hosting a dining fundraiser for you and donating up to 20% of ticketed sales for the day back to her cause. Please contact me any time if would interested in us hosting this for you to help support her. Great job Noelle. Sarah Coletti, 978-914-0514, scoletti@unos.com

+ Read More
Christen Molina
13 months ago

I was wondering if the brackets were still available I wanted to purchase one

+ Read More
Jennifer Lay
32 months ago

Happy Thanksgiving Noelle and family!

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Jennifer Lay
32 months ago

You've got this! Keep on keeping on ☺

+ Read More
Sherry Oliveri
32 months ago

Keep your head up Noelle! Praying for you! :)

+ Read More
Richard Pedrick
32 months ago

Thoughts and prayers for a speedy recovery - you've got this Nicolle!

+ Read More
Jennifer Lay
35 months ago
Jennifer Lay
35 months ago

Praying for you Noelle (and your family)! I want you to know how awesome you are! I live in N.E. Texas but if I can help in any way, please let me know. Thank you for being you! ☺

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