Keep Gregg at Home
Thank you for taking the time read the story of Gregg Smith and his family's story to learn more about what life is like with ALS and, if possible, make a donation so his family can provide the best care possible for their amazing family member, husband and father Gregg Smith. ￼ ￼Watch the video below to learn more how your support will help keep Gregg at home.
In March of 2008, Gregg's oldest daughter, Destiny, was 10 years old, his youngest Kaelyn was 1 and his wife Alicia were expecting another baby (Sierra) in October. They were enjoying life just like most families - juggling life with young kids and planning for their growing family, not a life changing diagnosis. ￼
At that time, the doctors at Duke University diagnosed Gregg with ALS - Amyotrophic Lateral Sclerosis, commonly known as Lou Gehrig's Disease or the Ice Bucket Disease.
ALS is a muscle wasting disease that causes eventual paralysis and death. There are a few treatment options that have modest results but as of now, no known cure. People with ALS use wheelchairs for mobility and other assistive devices to help aid in their function and care. The typical life expectancy is 3-5 years. ￼
Now, 10 years later, his family is happy to say that Gregg has beaten the odds and is still with them! ￼ For their family, these last 10 years have been full of great joys but lots of lessons learned as well as they continue to navigate living with ALS. Destiny's teen years were much different than those of other kids her age. Because she was caring for her father, it was hard to participate in sports, after school activities or spend time with friends. Now she is 19 years old and still is caring for her dad. Kaelyn and Sierra are now 11 and 10 years old. They will never have the opportunity to feel their father’s touch, hugs or being held in his arms. They too work to care for their father. Alicia stopped working her 9-5 job so she could work around his needs. They all take turns feeding, dressing, changing, and assisting him. There are not many support resources. In fact, the more things got worse it became harder on his wife and children. His condition is not getting better and he needs round the clock care now. Alicia has tried all she could to get in-home care for Gregg. Unfortunately Medicare does not cover this kind of care and he's not eligible for Medicaid. The goal in coordinating this fundraiser is to be able to provide the best quality and care for Gregg at home. At home he is able to be with his wife and children. It gives him a purpose and a drive to keep fighting and staying strong. The money raised through this campaign will help keep Gregg home by paying for in-home care. Your support and time to learn more about ALS and Gregg's story is greatly appreciated. Any help is will help keep Gregg at home. Thank you.