In 2008 I gave birth to a beautiful girl called Kaitlyn who was born 10 weeks premature. At 3 months of age Kaitlyn caught a bug in hospital and got put on oxygen 24/7 and was a very sick baby, at 6 months of age a Doctor took Kaitlyn off oxygen and now she has brain damage due to lack of oxygen.
Kaitlyn is now 8 years old and has spent 18 months all up in and out off hospital, Kaitlyn has already underwent 3 hip operations, 4 back operations, 100's of chest xrays, MRI's, CT Scans and she is due to have several back operations every 6 months for her scoliosis, she is in severe pain day in and day out due to the severe Scoliosis and is meant to have Endone which knocks her out.
Kaitlyn has been diagnosed with several medical conditions listed below:
Hypertonia with central origin
Global Development Delay
Unusual thymus covering her whole right lung
Chronic Lung Disease
Obstructive Sleep Apnea / hypoventilation
Esophagus Dymotility which is why she is fed by a gastrostomy button in her belly
Epilepsy and a recent diagnosis of Cerebal Palsy.
Kaitlyn often has several seizures and stops breathing, the only medicine what stops her seizures is whole plant cannabis oil. I have lost count of how many times I have given her CPR or how many times the Doctors told me she would not make it to her first birthday or make it through the night, they would also say she would never be able to have head support, sit, crawl, stand, walk, communicate and eat. Kaitlyn has surprised each and every one of us as although she still has constant seizures and stops breathing she has gained full head control, sits, crawls, stands up with support, eats orally but all liquids is still by her button in her belly. Kaitlyn can now say Mum and Hello, I can't wait for the day my princess takes her own first steps. Kaitlyn amazes everyone with her contagious smile even when she is sick in hospital. I am a single Mum with 4 children as I have seperated from my husband 3 years ago as he was no help what so ever. I have already spent over $55,000 on hopsital admissions, specialised equipment for Kaitlyn and private physio since she was born.
To help my daughter continue to make progress this is how you could help, pray for my daughter and donate to my daughter for her to continue to make progress she needs private extensive and continual therapy, physio, speech and occupational therapy. I am happy with my daughters achievements, even if they may seem small they are big to me. The road ahead is LONG sometimes I have difficulty seeing the light at the end of the tunnel.
Kaitlyn still needs a lot of specialised medical equipment, standing frame, vehicle modifications so I can get my daughter in and out easily without breaking my back , All donations over $2.00 is tax deductable. Email my page and share my video with your friends, family and colleagues and invite them to donate.
PLEASE DONATE ON GOFUNDME under Kaitlyn's Journey.
I have already noticed a big difference in her back since her first surgery, I just wish that was it and she didn't have to have surgery every 6 months until she is 15yrs.
I can't wait to raise all the money I need to get my vehicle modified for her wheelchair so I can take her out and we aren't house bound.
Thank you to everyone for your support and generosity every dollar helps.
I have been informed Kaitlyn has to have an Mri and a big back operation for her scoliosis within six months, she will then need operations ever six months until she is 15 to extend the growth rods in her back.
I nearly lost her last time she went to theatre to have General Anesthetic.
Our luv, thoughts, and prayers r with u guys give her big kisses and cuddles from us xxx Something needs to change in the system and soon id luv to make a donation but things r hard rite now but hopefully i wil b able to contribute in july
I wish I had some money to donate but things are tough atm. I love everything you’re fighting for Katrina!!! I’m epileptic with bowel disease and severe spinal damage requiring anti epileptics and pain relief. If they hurry up and legalise it I won’t need the rubbish medications for my 10 medical conditions!!!
Bless this beautiful family
I am so sorry you have to go thru this she is a beautiful girl and I'm praying for Kaitlin everyday May god bless you