John's Glioblastoma Battle Fund
Anyone who has had the opportunity to meet the Berkeley’s knows how much of a loving and caring family they are. John and Lois Berkeley are parents of 10-year-old twins, Mallory & Zachary, and are active members of their community in Bellingham, MA. Their twins attend Bellingham Memorial school and participate in town sports, Girl Scouts and other activities. John is a coach for his son’s Youth baseball and football teams. Lois sits on the American Youth Football & Cheer board, has served as a member of the school PTO and is a lunch lady at Stallbrook Elementary. They give a lot to their community and their family, and now they could use some help.
John takes part in cancer studies at the National Institute of Health in Maryland on a yearly basis. At his most recent visit, a mass was found on his cerebellum on August 29th during an MRI. He underwent brain surgery at Brigham & Women’s Hospital on September 1st, 2016. The pathology report diagnosed John with a Glioblastoma, Stage IV brain tumor. This is the most aggressive kind of brain cancer, which there is no cure, only treatment. Not only is this a rare cancer it is located in a rare location as well. John will undergo radiation and chemotherapy treatments starting in October at the Dana Farber Cancer Institute. Being a two-time cancer survivor already dating back to 1975 at 5 years old, John was devastated with this news, for himself and more importantly for his family. Their world has suddenly been turned upside down.
Along with this distressing diagnoses, the Berkeley family will have to deal with many medical bills, lost wages during treatments and appointments, and other related medical expenses. In light of this diagnosis, the family was considering a vacation between John's treatments so he can spend as much quality time as possible now with his wife and two young children.
Any financial support you can provide is truly appreciated, and will assist the Berkeley’s unexpected expenses, a potential bonding vacation, but most importantly help them to focus on enjoying “the now”, and every single day together as a family with no worries.
Thank you for any contribution you are able to make. Your support for John, Lois, Mallory, and Zachary would mean the world to them! I thank you for keeping the Berkeley’s, especially John, in your thoughts and prayers, as miracles do happen!
Help spread the word!
If you would like to make a donation to help Lois raise Malory and Zach, the family have established The Berkeley Children’s Educational Fund c/o Rockland Trust Co. 58 Main St. Franklin, MA 02038. Donations to the trust are requested in lieu of flowers. Donations can also be made via this GoFundMe page. RIP John.
I wanted to give an update. After we returned from that trip, I was taken off the Temador chemo and put on Avastin and immunotherapy (Nivolumab) in May. I continued those treatments every 2 weeks until the end of November, when I suffered from several brain strokes. These unfortunately are a side effect of Avastin. They immediately stopped those treatments. The results of the strokes left me with severe dizziness and speech difficulties. I am very unbalanced making it difficult to walk. My speech is slow and I suffer from dysarthria. After seeing the Stroke Dr., I have been doing PT twice a week and speech therapy once a week. I have also been out of work on short-term disability since December 4th.
I am asking for special prayers and good vibes for tomorrow’s MRI. My last few scans have been clear, but I have not been on any treatments for 2 months.
We appreciate everything everyone has done for us. We truly have an incredible support system of family and friends. We would be lost without you all!
It’s Aug 27th 2017 and just about a year since I had my surgery and received my diagnosis. It also has been a long time since I posted an update, since like January.
Well I’ve been real busy; having fun and treatments. I started a chemo treatment back in January but my 3rd MRI around the end of April discovered a second tumor on my brain stem. The doctors decided to change my treatment protocol. Now I’m on a different chemo and a clinical trial of an immunotherapy drug which we hope triggers my own body’s immune system to fight the cancer. My 4th MRI at the end of June looked very good to my doctor, so we continued with this protocol. I have my 5th MRI tomorrow August 28th and am praying for good results. I still have a lot of fatigue, and I’ve developed a lightheaded/dizzy issue which concerns me, but I’m still very positive.
I again want to thank everyone for their support, it’s so overwhelming, in the good way. My family and I was able to take that vacation of a lifetime in February which was not possible without the help of all of you. I’ve also been able to keep up with the massive hospital bills which seem to never end. Thank you from the bottom of my heart.
I don’t think this GoFundMe page allows for sending emails or notes, so I wanted to share my personal email with you all in case anyone would like to get in touch with me, just to say hi or whatever. Feel free to drop me a line, as they say, I would love to hear from you. Jberkeley32@gmail.com
Wish me luck tomorrow, love you all
I don't even know where to begin...thank you just isn't enough! The huge outpouring of love and support has been completely overwhelming. John and I are so thankful for our friends and families and those that don't even know us. Your contributions to this fund will help immensely. We have a long road ahead of us...but knowing you are all by our side, will help ease the load. Love you all from the bottom of our hearts!!!!! ❤️❤️❤️❤️❤️❤️❤️ Lois & John
I wish & pray every day for your complete healing John. Love you. XO, Aunt Mary
I am pleased to hear of your progress and I am so happy you are making plans to go to Disney. Thanks for making me a part of this. Please post pictures when you can.