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Joe Gregory: Beat ALS

$40,800 of $40,000 goal

Raised by 204 people in 19 months
Created October 2, 2017
When Joe Gregory, at age 35, started having some left arm weakness, difficulty swallowing, and slurred speech, the first fear he and his wife, Melanie, had was “stroke.” A trip to the emergency room allayed that fear, but after seeing four neurologists and undergoing many tests, Joe was officially diagnosed with Bulbar and Spinal ALS.

Also known as Lou Gehrig’s disease, ALS is a devastating motor neuron disease that impairs the muscles for walking, speaking, and breathing. Right now there is no cure for ALS and once diagnosed the progression to  complete paralysis and death is 2 1/2-5 years. A new treatment from Japan, Radicava, has been shown to slow the progression of symptoms by 30%. While the search for a cure continues, this treatment could give Joe and his young family the gift of more time.

Joe  has been doing Lunasin treatment, and was able to go to Johns Hopkins for Radicava treatments. It is very expensive, and insurance will cover some of the cost; but the Gregorys have a tough road ahead with treatment expenses, trips to Johns Hopkins, and, as the disease progresses, more medical treatments and home therapy.

Your prayers and financial support will help lighten this load for Joe, Melanie, and their four beautiful children.

Joe knows what he’s facing, and fighting. And all with joy.  He has always  been one to give joy to those around him; and true to form, he wants to make this, too, a journey of joy.  As he says, each day is a blessing, and the love and support that he has received from family and friends has convinced him that he is the luckiest man on the face of this earth!
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As stated in our last update Joe and his family are now into that “next step” which is making handicap modifications to their house. They are undertaking necessary wheelchair friendly renovations to make daily life easier. During these renovations they also encountered some unforeseen issues with some windows that required repairs, which means an extra concern. Your generosity has been such a blessing to their family, and it is truly a joy to have such friends and family to help: with both prayers and support. Be assured that you are remembered in their daily prayers and with gratitude each day.

https://joeschronicals.com/2019/05/06/als-update-time/
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Thank you so much for all the prayers and donations for the Gregory family. Joe’s ALS is progressing and has taken almost all of his speech, and he is in a wheelchair most of the time. The family recently purchased a handicap accessible minivan to allow the whole family to go out together. The next step is to make handicap modifications to the house for daily life to be easier for Joe and for Melanie.

Joe’s blog is a great way to stay in touch, and to learn more about his journey and the Boston trial which will be finished after 2 more visits.
https://joeschronicals.com/
Be assured of our prayers, as we remember the blessings of friends and loved ones this time of year.
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Joe was officially accepted into the study in Massachusetts. This week they took his marrow. Next month they will put it back in him treated. (praying not with placebo). Costs continue to mount with air travel, hotels, car rentals and the technology and physical aids for Joe to be able to communicate and get around. Any help and prayers are appreciated always. Thank you. Visit Joe's blog at https://joeschronicals.com/ for his words.
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Thank you so much to all the wonderful supporters of Joe and his battle with ALS! The donations and prayers are such a blessing, and continues to support Joe and his family on this journey. As the disease progresses, he has been using his fingers to help him speak more on his blog. His words will always be better than mine.
https://joeschronicals.wordpress.com/

To give a quick update, Joe is going to participate in an ALS study at Massachusetts General involving his own stem cells. It will be a year of study, and trips to and from Massachusetts.

Joe and Melanie also received the news that they will be traveling to Lourdes with the Knights of Malta in the Spring. You will all be remembered in prayer as they travel.

Thank you again for all of you support!
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$40,800 of $40,000 goal

Raised by 204 people in 19 months
Created October 2, 2017
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