9
9

Launch Janie Appleseed MyPHD Pilot

$1,472 of $100,000 goal

Raised by 9 people in 24 months
These funds will be used to introduce new technology that helps families manage their personal health data (PHD) so they can stay healthy and enjoy life-long well-being. It's called MyPHD Wellness Manager.

The technology helps you and your family members create a "care plan" for yourselves. The plan includes care goals and activities recommended by your healthcare providers, as well as other goals and activities you've planned for yourself to address wellness in a holistic way. The technology helps you monitor progress toward your goals, and it keeps track of your health history as it unfolds. 

The funds will be used to pilot Janie Appleseed MyPHD Wellness Manager with 120 families in Rhode Island over a one-year period.  The pilot will include 20 families in each of these categories:
1. families taking care of an elderly parent
2. families taking care of a special needs child
3. families with a member living with a chronic condition
4. families with a member struggling with opiod addition
5. families taking care of a new baby
6. families with no particular health issues, and wants to stay healthy.

The pilot provides the education and support needed to get families up and running on MyPHD.  It teaches families how to use the system and how to share information with care providers and other family members who are part of their care team.

The result of the pilot will be a technology needs assessment to identify areas where the technology meets consumer needs and areas where improvement is needed.  Experience will be gained to assess demand for consumer-controlled technology to manage personal health data. The value propostion for using this type of technology will be clarified and quantified.

Your donations will be used to cover system configuration and development, subscription fees for all family participants, development and delivery of educational programs, running of participant feedback sessions, and creation of the pilot report to document all findings, conclusions and recommendations, and informational presentations to share learnings from the pilot experience. 

Donors giving $500 or more will recieve a free one-year family subscription to MyPHD following the pilot. Donors giving $5,000 or more will be invited to participate in quarterly webinars discussing the progress and learnings from the pilot, as the experience unfolds.  Donors giving $25,000 or more will recieve a copy of the needs assessment documentation and the final report about the experience gained from doing the pilot. Janie Appleseed Network is a 501 (c) (3) nonprofit organization. All donations are tax deductible. 

As a nonprofit organization, our mission is to teach people how to protect and safely share personal health data.  Our aim is to protect the interests of people and advocate for health information exchange that adds value for consumers.  Janie Appleseed Network teaches people how to take control of their health data and use this information to make better health decisions that lead to life-long well-being. 

Please donate today and  jump start this important pilot so we can learn what it takes to show families how to manage health data as a personal asset they own and control themselves, and so families will have a voice in how this type of technology gets developed.
+ Read More

$1,472 of $100,000 goal

Raised by 9 people in 24 months
Funds raised will benefit:
Janie Appleseed Network
Certified Charity
+ Learn More
Westerly, RI
EIN: 465407948
How it Works
  1. You make a donation using a PayPal account or a credit/debit card to PayPal Giving Fund (a 501(c)(3) charitable organization).
  2. After the deduction of payment processing fees, PayPal Giving Fund delivers the funds it receives to the chosen charity on a monthly basis.*
* If, after reasonable efforts, PayPal Giving Fund cannot deliver donations to this charity, the funds may be donated to another charity per PayPal Giving Fund’s policies.
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$100
Anonymous
6 months ago
LH
$200
Leslie Kelly Hall
8 months ago
RG
$125
Richard Gibson
22 months ago
EM
$250
Edison Marquard
22 months ago
$50
Evelyn Gallego
22 months ago
$72
Anonymous
22 months ago
$100
Anonymous
23 months ago
MM
$75
Mr & Mrs McQuiggan
23 months ago
RG
$500
Reed Gelzer
23 months ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.