Hundreds of Promises, for Sophia

£37,236 of £100,000 goal

Raised by 748 people in 45 months
In February 2015 our world was shattered when our gorgeous little girl Sophia, was heart breakingly diagnosed with an extremely cruel, rare, progressive and terminal genetic disorder, called Sanfilippo.
Part of the MPS disorders:

This page can be used to donate towards the many events that we host in oir fundraising efforts.

Follow Sophia's story and keep up to date with news and events on our facebook page:

Below is our initial campaign info:

In February 2015 our world was shattered when our gorgeous little girl Sophia was heart breakingly diagnosed with an extremely rare & life limiting, progressive genetic disease, called Sanfilippo. (Part of the MPS disorders,

This is a catastrophic disease & we do not know when it will begin to take its toll, it could be months or years.
At present there is no cure for this disease & we have no idea of how long we have with our precious little Princess. 

What I can tell you is that although we are unfortunate enough to be dealt this blow that only 1 person in 90,000 people will be diagnosed with, we intend to stay positive & hold on to hope for the most delicate & beautiful thing in the world, LIFE!

At present Sophia is just like every other 4 year old & is an extremely happy, cheerful, confident, active, laughable & lovable little girl!

With your help we would like to raise funds for future developments, research & trials which are commencing around the world. With your support we can perhaps at least prepare to have a shot at fighting this horrendous disease!

Most importantly the purpose of 'Hundreds of Promises' is to bring together friends, family & people that care in a positive & fun manner to raise awareness & funds towards combating this life changing disease.

Our first challenge is to get 100 people to run the 'Great Scottish Run', half marathon in Glasgow on Sunday 4th October. Each person is making a commitment to raise at least £100! (At present we have around 85 runners, so please message me if you would like to take part).

We are also grateful for all the other fundraising activities that are taking part on our behalf.

As our charity is still in the process of being set up, donations can be made via this page which will be transfered over after the half marathon!

Thank you all for your love & support,

Big Love Darren, Amanda & Sophia xxx

#TaemSophia #HundredsofPromises #CureSanfilippo #Hope #Love #Life #Livefortoday

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Hello All,

We just wanted to let you know that we are not really using this page anymore and our current fundraising for the London Marathon challenge is going through:

Thanks for all of your support, we sincerely appreciate all of your love and support xxx
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We are absolutely thrilled to announce that we raised an amazing £14,000 from our dinner event and auction.

This far exceeded our expectations and we are extremely grateful for everyone's generosity. Furthermore the messages of thanks and requests for information on our next event has been overwhelming.

We are so pleased that everyone had a 'fabulous' evening and raised fantastic funds, whilst creating great awareness.

We shall contact all the auction winners today and post all the photo's in due course.

Big love,

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Eight days to go and we are working hard to bring you a memorable night which reflects everything that Hundreds of Promises stands for
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For those of you who have already confirmed your tickets with me for our event on Fri 3rd March 2017, you can donate your ticket money on here and simply remark:

'Dinner Event' March 17 and then put the name that the tickets are under.

Many thanks and lots of love,

Darren, Amanda & Sophia xxx
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£37,236 of £100,000 goal

Raised by 748 people in 45 months
Created August 5, 2015
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Toni Ho
7 months ago

Thank you Darren for all your help in making my party a memorable evening. Much appreciated! xx

Lyn Smith
7 months ago

In lieu of a birthday pressie for Dr Ho! X

NINA + HODGY colebrook
12 months ago


14 months ago
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