Hope for Linda
We recently found out that Linda has idiopathic pulmonary fibrosis, which is an interstitial lung disease that results in scarring of the lung, and affects her ability to breathe. Although her health hasn't been the greatest the past few years, the past few months have been rough, and her health continues to decline.
We decided to start raising money by selling these bracelets. We hope to raise awareness about this disease, and offset some of the medical burden. The money we raise will go towards all of the medical expenses that have been endured thus far and everything to come.
These bracelets are just the start, we are also planning a benefit sometime around March, but do not have an exact date yet.
Every little bit is appreciated! If you would like a bracelet please let us know and we will get one to you, they are $2!
Thank you #Blueup4PF
Hope for Linda
Checks can be written out to
Lynn York Benefit Account
and mailed to:
306 Oakridge Dr.
Camillus, NY 13031
Shawn & Michael.... so many years ago you came into my life through work and then became friends... Even with your busy lives and move to Florida you have not forgotten me ...wow.... truly.!!..I know my health issues started awhile back and I am sure you remember my frustration at not getting any answers...now I know and I am so grateful for all the love and support ..how lucky am I.!..Thank you both so much for your donation. Your caring and support mean more than you know...
Carey & Tom....you are both amazing...as busy as you are raising your young family and then without question or hesitation are right there front and center to offer your help...from your donation to your help to get everything started.. You started out being such great friends of Kate's and then you adopted us right into your family! No words...just love and gratitude ..always... thank you........
Andrew and Danielle ...thank you not only for your donation...but for opening your hearts to me....and reaching out to help...Danielle, your offer to go to John Hopkins with me to search for help since I am not a candidate for a transplant or stem cell (because my RA will reject it) was so generous. I plan to explore all avenues (sadly most will not be covered by insurance) and I am so fortunate to have wonderful people like you to step up to help. ..truly..thank you...
Wendy. and Jamie ....how did I get so lucky to have you come into my life...your generosity and help have no boundaries and I cannot express in words...but to say thank you....for everything..you go above and beyond to help me every day...truly I appreciate it all....
Hey Mike- its been a long time since your help watching over our babies while we were in Texas..time flies by too fast...we are eternally grateful for your help! Thank you sooo much for your donation..!..I cannot begin to express my gratitude to you and all who have donated to me... it will be put to good use! Thank you again and I hope you can make it to the benefit in March!!!
Thank you to my Aunt Irene and cousin Karen- thank you soooo much for your donations.. treatment options would be very limited without the support from wonderful people.... thank you from my heart. Bracelets will be on their way!
Dear Kaleb- thanks so much for your generous donation to my benefit fund... I really appreciate your help - it has been overwhelming but the support I have been getting is heart warming.. I Again - thank you -truly!
Thank you ,,Mary Sollars for your generous donation- you know I will put it to good use...! It was great seeing you again and catching up and for lunch! Hope to see you again soon! Your bracelet is on its way!
Thank you, Cindy for your donation..it is very appreciated -truly. It seems like a lifetime ago that we were dancing in my living room-the time has flown by way to fast. I am grateful we have had a chance to reconnect! I am looking at a treatment program in Denver..which would not even be a possibility without this support system...thank you
OMG Danny ! Long time my friend....wow -so great to hear from you! Thank you so much for your donation! Much appreciated more than you know....I hope to see you at the benefit my kids are putting together in March... I hope life has been good to you and those you love are happy and in good health.... ;)
It's easy to love when you are young in your marriage and pretty and creating your family and sharing fun vacations and going out to eat, working hard and building a life together...the test of a true marriage comes in trying times..when we took our vows in "sickness" and in health -marriage takes on a whole new meaning..watching my husband help me in and out of the car, carry my oxygen tank and carrying my emergency bag in-everywhere we go...changing my lines 3x a week, my dressing at least once a week and make up my medicine in a sterile environment-getting every last bubble out...time-consuming and tedious ..every single day....calling me if I leave the house with a friend to make sure I am ok..watching over me all the time-that I am not over doing it..doing almost all the housework and paying the bills and grocery shopping..dealing with my down moods as I adjust to a life that requires a pump with 24 hr meds to keep me alive..and so much more..and to have to do that at 63 and retired with health issues of his own..like back and shoulder pain...etc. and never complaining about the work involved with keeping me alive or the empathy of dealing with a wife struggling to come back from steroids and water weight..that comes with lung and heart issues, compounded by the use of steroids..and can still say I am beautiful and how lucky my kids were to have me as their mother....37 years into this marriage and I have never loved him more..the sacrifices he makes..how many men could really step into his shoes..I hope all could if needed, but it is overwhelming and I will be eternally grateful for his love and support as I struggle with a "new " normal...we have had so much love and support-but at the end of the day..he is there...the work involved to care for me is immense and I will never be able to thank him enough......I chose well when I married ..I am richer than most...
I sat here with tears in my eyes seeing the donations of many including those directly given to go into the benefit account set up on my behalf.. I have not looked at this page for quite some time because of my illness / illnesses... I want you all to know now..until I have the strength to thank all individually ..how much these donations mean to me and my family.. I will be posting an update soon..Kate and I are working on it...but throughout all the struggles, having so many care is amazing...To each and everyone of you who have donated either money or time or prayers ...cards , gifts etc..I want you all to know that no matter what happens, how much you all mean to me...some ppl who donated I have only recently met and some are dear friends present and past..Although I'd rather not be sick and fighting for time,,you all have touched my heart and have shown me through all of this that the human spirit is alive and well: especially, when, with all the technology today we can become so disconnected ..... I cannot thank you enough.. and I will NEVER forget... .Merry Christmas and best wishes to all for a Happy and Healthy New Year!
I want to thank everyone for the love and support that has been shown to me and my family through this difficult time....it's been a rough road but I am alive ! Soon we will post an update to help others know the signs and hopefully avoid my journey. A special thank you to Wendy for an amazing photo shoot of my precious pets to cheer me ... The cards the gifts and donations are so much appreciated... I know how hard it is for some who have donated and it overwhelms me .... the generosity of all who have has touched my heart. Thank you to all who have helped Kate out with the task of caring for my precious pets so that Bill could be with me and not worry about them. To my daughter who stayed behind to help and coordinate and decorate and make food. To Megan my daughter in law who helped being a social worker with many tasks and is still.. to my son for coming to see me and bring me pictures etc of my Grandson and gifts ...to Jen , Heather, Bubba Keith ...for coming to see me and for driving my husband and daughter down ......having Jen drive them was such a blessing during the darkest hours. So many ppl to thank.. I'll save some for my next post !..to make sure I don't leave anyone out! Like those who brought food and cookies and gifts and donations.....-and of course....Thank you for all your prayers because there is no doubt that God defined the outcome along with a great doctors and staff ....Columbia Presbyterian was exactly where I needed to be. With their knowledge and God's Grace I am here to be so thankful to be able to celebrate the birth of Jesus ....I have an amazing family and friends who I am so grateful to have more time with. I can't write much more ...cause I am tired ....but I can't close this post without thanking my amazing husband for all the sleepless nights, being by my side and learning the huge task of caring for me ... who assures me I am worth all the trouble ...thank you is not enough ...you know how I feel.. I am blessed with a family I love and friends that I love .. and I am so happy to be alive. Please to all - have a blessed and Merry Christmas and best wishes for a healthy and Happy New Year!
Update... Was happy to be weaned off Prednisone as per course of treatment..unfortunately, since then, my condition has deteriorated ..so most likely they will put me back on the higher dose treatment. I may never get off of Steriods. They are a tough drug..for all the good they do -there are 4 pages of side effects, serious. I was getting more than a few so I was happy to be getting off them. Frustrating to have to go back on them, but I may not have any other option. Having a heart cath on Wednesday to see the status of Pulmonary Hypertension..Once again I thank you for your prayers and support....
Thank you Chris for your generous donation! I am sorry this is a belated thank you..I haven't been feeling well lately..but I so appreciate your kindness more than you can know !