Helping Aaron

$16,835 of $20,000 goal

Raised by 247 people in 18 months
Meet 10 year old Aaron. Aaron has brain cancer, Medulloblastoma to be precise. The diagnosis of brain cancer in September 2016 came as a shock to everyone and only three days after being diagnosed, Aaron underwent a 9-hour operation at Monash Hospital followed by 6 weeks of radiation at Peter MacCallum Cancer Centre in Melbourne. Aaron is now at the Royal Children's Hospital in Parkville where he is receiving chemotherapy treatment. As I write this, Aaron is in hospital receiving his second cycle of chemo as part of a clinical study.
Aaron and his mum Hannah, dad Craig and brothers Seth (16), Isaac (12) and Eli (2) are from Toora, a small country town in South Gippsland, Victoria. Aaron's family are very close and it is extremely important that they are able to be together and close by the hospital for Aaron. This has meant that Craig has had to take leave without pay from his job and the family are staying in short-term accommodation in the city. While they focus on Aaron's needs and juggle the demands of medical appointments and learning to administer feeds (Aaron has a peg in his tummy), antibiotics, nausea and pain relief medications as well as the strict infection control regime, Craig and Hannah still have to somehow pay the bills, their mortgage, petrol, parking, meals and normal daily expenses.
Craig and Hannah are proud people and it is extremely difficult for them to ask for help. Their friends at home all know that Craig and Hannah are among the first to offer help to others when it is needed and now it is their time of need. The small community of Toora have been fantastic in supporting the family, including arranging meals for the family when they have been at home and mowing their lawns. Now that they are in Melbourne and Craig is on leave without pay from his job, we need to ask the wider community to dig deep and help this family out because Aaron needs his family close by.
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Aaron’s dad Craig is on Day 2 of a 2,500km walk from Tugun in Qld to Toora in South Gippsland, Vic to raise awareness and much need funds to fight pediatric brain cancer and support Ronald McDonald House - two very important causes obviously close to this family’s heart. Today, Craig is on his way into Byron Bay. You can donate to the cause by heading over to the Craig’s Ks for Cancer facebook page for more details including a link to the Ronald McDonald fundraising website. All donations will be divided between research to fight pediatric brain cancer (through the registered charity supported by Carrie Bickmore) and Ronald McDonald House, also a registered charity).
Please LIKE and SHARE the Craig’s Ks for Cancer faecbook page and set your notifications to follow Craig’s journey. Craig is due to complete the 2,500km walk in mid-Dec in Toora. If you have friends along the route he is taking please let them know (you can find the itineraries for the different sections of his walk on the facebook page: you might need to scroll down to find the section you are interested in).
https://www.facebook.com/CraigsKsForCancer/posts/1415213411849776
Some pics from Day 1
Arriving in Pottsville
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Aaron and his family have returned home and adjusting to life in their own home again after 8+ months of Aaron being at the Royal Children’s Hospital and his family living at Ronald McDonald House to be close by for him. Aaron tires easily and is dealing not only with the impact of the tumour but also the very harsh but life-saving treatments including brain surgery, radiation, chemotherapy, antibiotics, blood transfusions and a host of medications. After such a long time without eating or drinking and relying on peg feeding, Aaron’s tummy is very sensitive and although he is keen on his food he is only able to manage sips and nibbles at this stage. Aaron has some challenges to adjust to such as impaired vision and hearing: he has recently been fitted for hearing aids and now wears glasses. Aaron returned to school for a short time this past week, another significant milestone in his recovery.
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A messge from Aaron's mum ❤️ ❤️

"We are so very excited to be able to let everyone know that the extensive tests Aaron has been having this past week reveal no trace of the disease, that's right, our son and brother is cancer free. Aaron is cancer free!We cannot begin to tell you how we feel right now, ecstatic, emotional, exhausted, relieved, anxious, filled with love for everyone who has helped Aaron and us this past 12 months and looking forward to going home but also sad to leave behind the wonderful friends we have made during our time at Ronnie Mac and at RCH.
Aaron's treating Oncologist and head of the research team is of course very very happy and also quite pleasantly surprised with how well Aaron is doing, especially considering how extremely unwell he has been this past 12 months and especially during treatment.
We can finally say the treatment has finished and we can look ahead to going home. We know we have a long road ahead of ongoing tests, recovery, constant monitoring, managing the effects of the cancer and the treatment, being hypervigilant about health and hygiene given Aaron's compromised immune system, etc. We know it will take us a while to settle in at home but to be going home to the community who have supported us so well is an amazing feeling. We want to thank everyone who has helped Aaron and us along the way, the incredible staff at RCH and the dedicated staff and volunteers at Ronnie Mac, our dear friend and great support Fatma, and to all the wonderful families we have met during our time here it is with mixed feelings that we say goodbye to you all, you have become part of our family and it is with very heavy hearts that we know some of you have not been as fortunate as we have and our hearts go out to you.
Thankyou. We love you all. Aaron, our son and brother is cancer free ❤️"

Photo: Aaron flanked by the Coordinator (left) of the research study that he has been participating in and the treating Oncologist (right) and head of the research team.
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And now for some really really really really great news ... Aaron is feeling better and this week he has had a huge amount of tests and the results are looking good. Almost 12 months to the day when he had the initial MRI that showed the presence of a brain tumour and sent his family into a spin with that devastating news, Aaron and his family may soon be headed home. With this news it is important to remember that his immune system is compromised and there are many effects of the treatment that Aaron will live with, and when the time does come, he and his family will need time to settle into life at home.
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Read a Previous Update
Liz Evans
18 months ago

50 dollars donated a few days ago under anonymous to go in *Run for Aaron*

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$16,835 of $20,000 goal

Raised by 247 people in 18 months
Created February 11, 2017
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MD
$50
Monika Drankowska
11 months ago

I pray that your little boy gets better and beats this horrible cancer so he can be home with his family As soon as possible. Lots of love .. Monika

GF
$140
GR8M8S Foundation
12 months ago

Our best wishes for you Aaron and your wonderful Family .

$50
Anonymous
12 months ago
RC
$100
Raigan & Nikki Cripps
12 months ago

Thinking of you all x

Liz Evans
18 months ago

50 dollars donated a few days ago under anonymous to go in *Run for Aaron*

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