Medical Bills and Travel
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Please Help Me Raise Money for My son Liam:
The picture above is my son Liam who was born with Congenital Heart Deffect! I am in need of a financial help for my son LIAM read story below! I am living on my sons SSI benefits with isn't much! If only I had a spare dime I would get us a good working car so that we would be able to go back in forth from Brevard County to Orlando to his follow up appointments I am single mom with little family no family support due to the lack of members in my family! I can't enjoy him because I am stressed out about his medical bills that are stacking up!
I was 32 weeks pregnant when I found out about my sons Heart Condition! I live in Brevard County and got referred over to a Pediatric Cardiology team in Orlando. The Dr was looking and doing my echocardiogram when he discovered that my son would be born with a Pulmonary Stenosis! I had a emergency c section and Liam was born at 2:17 a.m. on. July 17, 2013. I didn't get the chance to meet my son till later that morning because he got rushed through the NICU window from the OR. I saw my son that morning wheeled in my bed next to his isolate when I got rushed right out for them to do a rush Echo. I went to my room got more sleep and asked to see my son and this is where I would get introduced to the Pediatric Cardiac Intensive Care Unit! While I was sleeping Liam got moved! I got up there and started to see the picture of my son and his condition. I had the opportunity to meet some of Liam's medical staff as they kept him alive! A Day would go by and I got a call in my room one early morning saying I needed to come and sign consent for treatment to place a chest tube in Liam. I would sign the form check to see if he was alright then go back to bed a few hours later I got another phone call saying the needed to transport my son to All Children's Hospital in St. Petersburg. He needed to have his Pulmonary Valve ballooned urgently done. They came and got him by helicopter and thanks to the hospital they got be to the other hospital by taxi. Dr did the Balloon Dilation and it was a success so Liam would start his recovery process. A day or two went by when I asked for Liam to be transferred back over to Brith Hospital to finish out his recovery process I was so happy to be back! The next order of business was to extubate him and put him under bellruban lights because of his jaundice. He would recovery from that we were clear for discharge. The day of discharge came and it was recommend that we see the pediatrician with in the first week of being home. We left said our goodbyes and we were home. It was five days later when we met My sons pediatrician he notice his heart rate was to fast. He left our room he called over to the cardiology office and there recommend that we go to the nearest ER and wait for transfer. I left the office and headed over to Hospital checked into the ER and they did there evaluation and called the Florida Cardiologist and they said the First Flight helicopter would be on there way to pick him up. This is were my days turn in nights and nights into days. The following Monday I would be introduced to your electrophysiologost and would get to know him and his skills to help control my sons Arrhythmias. I would get to know the terms SVT, PVC, ST, PAC, and V-Tach. His heart rhythm kept Dr's busy for days working on Medicine to stabilize him until one day we found out on top of his cardiac problems he had Thyroid problems as well. It was with in hours of my sister in law sending me my sons newborn infant screaning test over an email and Dr looking at his blood levels and seeing his T-4 blood level which he made a call to Endiocarolgy to step in. Within a few days Liam's heart rhythm was starting to normalize between Endiocarolgy and Electrophysiology. Here again we were talking Discharge for Liam due to we had found seven medications that he would stabilize him till he weighed enough to have his first oblation or when Dr thought he would be ready. It was a typical day and Liam was having his normal run of test and Included an a Echocardiogram. I had sat down had a meeting with Dr about discharge what I need to look out for and Liam's care outside of the hospital. It was a few hours later when Dr came back to me and said plans of discharge have changed someone would come into me to talk to change of plans. A few hours later Dr came in and told Liam's last echo and next plans for Liam. He would explain that his Pulmonary valve went back to sever and was having a lot of regurgitation in the tricuspid valve. This meant that he would need to have open heart surgery done. Dr explained that Liam would have to go and open the pulmonary valve, fix his tricuspid valve, reduce the size of his enlarge right atrium, and do an oblation. Over the next few days the surgical team prepared me with education as to how surgery day would happen. It was surgery day I didn't want to let go of him but put him in the bed and of he went down the elevator this would be the longest day of my life. They did a great job up dating me hour by hour with details on how the surgery was going. The surgery was done he was back in his room and recovery would begin. It was a successful surgery but with in a few days Dr would notice that his Arrhythmias was not gone. He did a 24 hour holter and decided that Liam needed to be brought the cath Lab and be oblated. He was brought to the cath Lab and Dr mapped out where the Arrhythmia's was coming from and started to Oblate him. He came out of his procedure and was in sinus rhythm and we sat there for few days and Dr notice he needed to go back on two bata blockers for at home use. Finally there was the word discharge and plans to go home. The nurses started to preparer me to go home with education. I was not ready to take him home yet but they PCICU gave me the confidence that I could do it. I was D day and I was ready to take him home. We packed up and left the hospital with dates with follow ups appointments witch I couldn't wait to do to no he's fine. We got home and started his new life with a functioning heart and let the baby fun begin. We followed up with his appointments all the way up to till March when Dr notice that he kept out growing his medication and need another oblation. Back to the cath lab he went and let the ablating begin.
This story can go on but you the gist of a my CHD son now we wait to see when our next surgery is!
Are typically week includes Monday-Wednesday we spend four hours at PT, OT, ST, and Audio Therapy. On Thursday and Friday we spend most of the day at the doctors! Your money will help out with his medical expenses and car maintenance!
The picture above is my son Liam who was born with Congenital Heart Deffect! I am in need of a financial help for my son LIAM read story below! I am living on my sons SSI benefits with isn't much! If only I had a spare dime I would get us a good working car so that we would be able to go back in forth from Brevard County to Orlando to his follow up appointments I am single mom with little family no family support due to the lack of members in my family! I can't enjoy him because I am stressed out about his medical bills that are stacking up!
I was 32 weeks pregnant when I found out about my sons Heart Condition! I live in Brevard County and got referred over to a Pediatric Cardiology team in Orlando. The Dr was looking and doing my echocardiogram when he discovered that my son would be born with a Pulmonary Stenosis! I had a emergency c section and Liam was born at 2:17 a.m. on. July 17, 2013. I didn't get the chance to meet my son till later that morning because he got rushed through the NICU window from the OR. I saw my son that morning wheeled in my bed next to his isolate when I got rushed right out for them to do a rush Echo. I went to my room got more sleep and asked to see my son and this is where I would get introduced to the Pediatric Cardiac Intensive Care Unit! While I was sleeping Liam got moved! I got up there and started to see the picture of my son and his condition. I had the opportunity to meet some of Liam's medical staff as they kept him alive! A Day would go by and I got a call in my room one early morning saying I needed to come and sign consent for treatment to place a chest tube in Liam. I would sign the form check to see if he was alright then go back to bed a few hours later I got another phone call saying the needed to transport my son to All Children's Hospital in St. Petersburg. He needed to have his Pulmonary Valve ballooned urgently done. They came and got him by helicopter and thanks to the hospital they got be to the other hospital by taxi. Dr did the Balloon Dilation and it was a success so Liam would start his recovery process. A day or two went by when I asked for Liam to be transferred back over to Brith Hospital to finish out his recovery process I was so happy to be back! The next order of business was to extubate him and put him under bellruban lights because of his jaundice. He would recovery from that we were clear for discharge. The day of discharge came and it was recommend that we see the pediatrician with in the first week of being home. We left said our goodbyes and we were home. It was five days later when we met My sons pediatrician he notice his heart rate was to fast. He left our room he called over to the cardiology office and there recommend that we go to the nearest ER and wait for transfer. I left the office and headed over to Hospital checked into the ER and they did there evaluation and called the Florida Cardiologist and they said the First Flight helicopter would be on there way to pick him up. This is were my days turn in nights and nights into days. The following Monday I would be introduced to your electrophysiologost and would get to know him and his skills to help control my sons Arrhythmias. I would get to know the terms SVT, PVC, ST, PAC, and V-Tach. His heart rhythm kept Dr's busy for days working on Medicine to stabilize him until one day we found out on top of his cardiac problems he had Thyroid problems as well. It was with in hours of my sister in law sending me my sons newborn infant screaning test over an email and Dr looking at his blood levels and seeing his T-4 blood level which he made a call to Endiocarolgy to step in. Within a few days Liam's heart rhythm was starting to normalize between Endiocarolgy and Electrophysiology. Here again we were talking Discharge for Liam due to we had found seven medications that he would stabilize him till he weighed enough to have his first oblation or when Dr thought he would be ready. It was a typical day and Liam was having his normal run of test and Included an a Echocardiogram. I had sat down had a meeting with Dr about discharge what I need to look out for and Liam's care outside of the hospital. It was a few hours later when Dr came back to me and said plans of discharge have changed someone would come into me to talk to change of plans. A few hours later Dr came in and told Liam's last echo and next plans for Liam. He would explain that his Pulmonary valve went back to sever and was having a lot of regurgitation in the tricuspid valve. This meant that he would need to have open heart surgery done. Dr explained that Liam would have to go and open the pulmonary valve, fix his tricuspid valve, reduce the size of his enlarge right atrium, and do an oblation. Over the next few days the surgical team prepared me with education as to how surgery day would happen. It was surgery day I didn't want to let go of him but put him in the bed and of he went down the elevator this would be the longest day of my life. They did a great job up dating me hour by hour with details on how the surgery was going. The surgery was done he was back in his room and recovery would begin. It was a successful surgery but with in a few days Dr would notice that his Arrhythmias was not gone. He did a 24 hour holter and decided that Liam needed to be brought the cath Lab and be oblated. He was brought to the cath Lab and Dr mapped out where the Arrhythmia's was coming from and started to Oblate him. He came out of his procedure and was in sinus rhythm and we sat there for few days and Dr notice he needed to go back on two bata blockers for at home use. Finally there was the word discharge and plans to go home. The nurses started to preparer me to go home with education. I was not ready to take him home yet but they PCICU gave me the confidence that I could do it. I was D day and I was ready to take him home. We packed up and left the hospital with dates with follow ups appointments witch I couldn't wait to do to no he's fine. We got home and started his new life with a functioning heart and let the baby fun begin. We followed up with his appointments all the way up to till March when Dr notice that he kept out growing his medication and need another oblation. Back to the cath lab he went and let the ablating begin.
This story can go on but you the gist of a my CHD son now we wait to see when our next surgery is!
Are typically week includes Monday-Wednesday we spend four hours at PT, OT, ST, and Audio Therapy. On Thursday and Friday we spend most of the day at the doctors! Your money will help out with his medical expenses and car maintenance!
Organizer
Katrina Anissa Van Schaick
Organizer
Satellite Beach, FL