MY NAME IS DONNA ANDREWS AND I AM JAYDEN POWELLS AUNTIE!
Our Story -
Some would say january is the best month of the year but for our family it was the start of the worst nightmare we have all ever had to face!
Jayden my 16 year old at the time nephew fell ill! weeks of excruiciating headaches, sickness, dizzyness and failed attempts to be seen by a professional at our local hospital resulted in a simple Eye Test which confirmed our worst fears!
Jayden had a Glioblastoma tumour behind his left eye! in his Left Temporal Lobe.
He has battled through Chemo, Radiotherapy and months of bloods, CT scans, MRI scans, being prodded and poked by every medical personel to which he HAS NEVER COMPLAINED once.
December following another round of CHEMO our oncologist confirmed that the NHS could do no more him!
WE KNOW WE CAN GET LIFE SAVING IMMUNOTHERAPY FOR HIM WHICH HAS PROVEN TO HAVE AMAZING RESULTS!
We will be using funds from this page for immunotherapy treatment needed for Jayden Powell at the Hallwang Klinik Germany.
MARCH 1ST -
JAYDEN WAS RUSHED OVERNIGHT TO THE HALLWANG IN A LIFE OR DEATH LAST MINUTE ATTEMPT TO GET HIM TREATMENT!
ONE MINUTE - OUR HOSPICE NURSE WAS HANDING ME A BOOK CALLED "HOW TO DEAL WITH THE DEATH OF A CHILD" TO READ TO HIS TWO BROTHERS CALLUM & LIAM. THE NEXT MINUTE AN AMBULANCE ARRIVED TO HELP HIM. OUR UK NHS IS AN AMAZING SERVICE! BUT OUR TREATMENTS THAT ARE AVAILABLE COMPARED TO THE REST OF THE WORLD IS PREHISTORIC.
THE HALLWANG ACCEPTED THE DEPOSIT PAYMENT BUT THERES A HUGE BUT!!!
WE NOW NEED TO KEEP HIM THERE AND GET HIM BACK TO HEALTH!
He is responding amazingly to the 1st phase of treatment given which is listed below!
1. AVASTIN - which he wasnt allowed in the UK because he was five months short of his 18th birthday
2. AFATINIB - which the hospital in the UK stated he wasnt fit enough to have!
3. DENTRICTIC CELL TRIAL - which the UK hospital stated because he had been given STEROIDS he wasnt allowed to go on!
We see the start of his 2nd PHASE immunotherapy - our funding is near to EMPTY.
Now we need to find £12,000 per week to KEEP him on track!
Dealing with the worries of a child with Cancer is enough on our family without the worries of the financial burdens to save him! Jaydens LIFE should not be about when his 18th birthday fell or the level in his parents bank balance. We will fight for him and everyother child who deserves the chance to be given ANY medicine that could possibally HELP, CURE or EXTEND life! because HE IS FAMILY and FAMILY IS OUR LIFE!!!
Steve & Hayley were blown away with 16,000 people who have joined our army to Fight for Jaydens life on facebook!
And for the STAFF, CREW, WORKFORCE at all the Film Studios who have collected, donated and donated again to help him! totalling over £40,000 alone!
Thank you to all those who have donated their last £5 already, brought tickets for fundraising events or simply shared our post for awareness!
OUR NHS FAILED HIM!!!
OUR UK LAWS FAILED HIM!!
HIS FAMILY, FREINDS & COMPLETE STRANGERS WILL NEVER FAIL HIM!!!
JAYDENS ARMY NEVER GIVE UP!!!!!
STEPHEN POWEL IS THE BENEFICARY FOR HIM TO PAY FOR HIS TREATMENT - THANK YOU
THE AMAZING KELLIE HICKS JUMPED IN AGAIN AND FOUND US A REPLACEMENT VIA ONE OF HER FRIENDS!
SO DAD, UNCLE AND SON ARE OFF AGAIN FOR ANOTHER AVASTIN INFUSION TRIP!
Hallwang have confirmed that this should be ready in the next few weeks which is another milestone for Jayden.
FUNDRAISING - has been awesome this month - Romney Sands again running a Reggae Party raising £2000, Bromley comes to together for JP, Tough Mudder, Tesco's Bag Pack, Aylesford School Easter special, Kent Cruising and many more to.
THIS MONTH : we have the 50 girls running the Colour run for Jayden and Football Tournament! - We do need more so any ideas please inbox admin on the Facebook page or contact the family!
THANK YOU ALL - YOU ARE SIMPLY AMAZING AND EVERYONE OF YOU SHOULD BE PROUD.
HIS IMPROVEMENTS: His Eye as you can see is opening, his paralysed arm is responding, his speech is returning by the day, his paralysed leg is now also getting stronger! - All this from a Lad in January who was told by OUR NHS prepare yourself, your not going to make it!
HE SMILES - WE SMILE!
HE TRYS - WE TRY !
HE FIGHTS - WE FIGHT!
THANK YOU EVERYONE - REMEMBER IF ANYONE HAS ANY OTHER FUNDRAISING IDEAS PLEASE INBOX ADMIN OR CONTACT FAMILY MEMBERS
This is ludicrous that the family and him have to travel for 14hours each way for simple injections because the UK will not administer his infusions. keep going champ! your birthday is not far away! August x x
We would like to thank all his supporters, fundraisers for all your efforts in helping keep him alive and stable while his VACCINE is being produced in the lab at Hallwang! he has come so far from january when the NHS claimed he was dying from his tumour.... except he had an infection which the German hospital were able to clear him from with antibiotics!
he still has a long way to go and I'm sure like myself you will all be behind him each step he makes!!!
a special thank you to all at Romney Sands holiday park for arranging so many wonderful events for him at such short notice!
KEEP FIGHTING FAMILYFOREVERJP
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