Brandon's Thumbs Up

$3,065 of $20,000 goal

Raised by 36 people in 46 months
Brandon Eli was born missing his right thumb and a malformed left thumb. This is part of the symptoms related to Duane-radial ray syndrome. A very rare syndrome with only a few reported cases around the world. The prevalence is unknown but it's the result of mutations in the SALL4 gene during development in the womb.

As any parent would, we have gone through all we can to find out about his condition and how we can help him in the long run. We met Dr. Nicholas Bastidas the day after Brandon was born and he offered to do a reconstructive surgery called Pollicization where they create a thumb using his index finger. This surgery was done on April 27th at Cohen Children Medical Center in New Hyde Park. We are more then happy and blessed that all went well and soon enough we will start therapy for him. A few months from now he will have surgery on his left hand to reposition and strengthen his thumb. God willing this time next year he will be giving us two thumbs up without a problem.

For the first year of his life we have been in and out of doctors offices, specialists, and now this surgery and the one thats still to come in a few months will, God willing, better his future and give him a chance at a normal life. Unfortunately our insurance does not cover all expenses and we have found ourselves going through our savings to try to keep up with it all.

We are asking for any help possible to help our family come out of this journey without a financial burden over our heads and to be able to give our children the life they deserve.

We thank you so much for all your help. May God Bless us all.
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Hi everyone! Brandon had his final surgery on Sept 23rd. We are happy to share that he did great! The first night was a little rough but the next morning he was all smiles, just in time for his big brothers birthday. We have a follow up appointment with Dr. Bastidas tomorrow and hopefully in another 3-4 weeks he will remove his cast. We are so proud of Brandon. We Thank all of you for your support through this journey. May God Bless you all always. Good Night.
Brandon the next day after surgery, celebrating his Big Brother Sebastian's birthday!
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Brandon has been doing very well, as the days go by he uses his right hand more and uses his new thumb to grasp things. It's very exciting to see and we can't wait for more to come. We actually set a date in September for his surgery on his left hand. We expect even more progress with his right hand since he will be unable to use his left hand for a few weeks.
Excited for their new ride, a present from a close family friend.
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Thank You so much everyone!!! Brandon is doing great so far!!! We just removed the pin this week and he is getting scheduled for therapy. We are very content with the results, and we can't wait for the progress he'll make over the next few months. God Bless You all!
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Pico Pachanga
42 months ago

God bless him my brother.

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$3,065 of $20,000 goal

Raised by 36 people in 46 months
Created May 28, 2015
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SD
$50
Sofia ramos donneys
39 months ago (Monthly Donation)
SD
$50
Sofia ramos donneys
40 months ago (Monthly Donation)
SD
$50
Sofia ramos donneys
41 months ago (Monthly Donation)
PP
$25
Priscila Parra
41 months ago

God bless the family

MV
$100
Maria Villagomez
42 months ago

I haven't had the chance to meet you little Brandon but I worked with your daddy and uncle. They are great people so you come from a great family. Good luck in your recovery. God bless you and your family

ML
$25
Monica Lopez
42 months ago

God bless your beautiful family.

JJ
$50
Jenny Jaz
42 months ago

God bless your little boy, may he keep being strong and happy!

AB
$100
Andres Becerra
42 months ago

My God bless Brandon and his beautiful family in thier journey. Your friends, Madison & family

Pico Pachanga
42 months ago

God bless him my brother.

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