Early April our family went on vacation, while on vacation we noticed a lump on our sons back when he was in the crouched position. We figured it was something he did playing like any other bump, bruise, or scrape a 3yr old boy would get. When we returned home we waited a week to see if the spot would go down. After the week it didn't go away so we made an apointment with our doctor to have her look at it (4/21/2016). She wasn't sure what the spot was either but felt she should order an ultra-sound to see if she could see something. A few days later we took our son to the to the hospital for the ultra-sound (4/26/2016). By the time we made it back to work the doctor called and told us we needed to go to Peyton Manning's childrens hospital in the morning. The spot was not benign and needed to be looked at by a Pediatric surgeon. Scared and confused we went the next day to meet with the Pediatric surgeon (4/27/2016). The same with our family doctor he didn't know for sure what the lump was from and ordered an MRI for the next day along with an appointment with the Oncologist. He was honest enough to let us know that we wouldn't see him again for if the lump needed to be removed he would send us to an Neurosurgeon since it was so close to the spine. As we traveled back home our hearts sank, What could this be? Why are we meeting with an Oncologist? What is going on with our son? What are we going to do? As another restless night passed we took our son back to Peyton Manning for the MRI the next morning (4/28/2016). After the procedure they sent us to meet with the Oncologist. We met with the Oncologist who made us aware of her concern after reading the MRI results. She didnt want to speculate on what she thought it was but wanted to get more information on the lump she called Sarcoma. She then sent us to the Neurosurgeon who met with us the same day. After meeting with him he told us rather than just taking a Biopsy he would rather take the whole tumor out. We all agreed that this should be done and that we should do this as soon as possible. As we traveled back home still not knowing exactly what it was other than a SARCOMA TUMOR. We spent a weekend speculating, researching, and worring. We returned to Peyton Manning for surgery on Tuesday morning (5/3/2016). The procedure took three hours and the Neurosurgeon met with us after words and told he felt he removed the whole tumor but had to take a little more muscle than expected. They put us on the third floor after the surgury which is the last place we wanted to be because we knew this floor was the Cancer floor. We spent the next two day wondering how this happened to our son. He has never been sick, not even an ear infection or sore throat. Now we are in the Hospital recovering from major surgery waiting to hear for sure what it was. On Thursday afternoon the Oncolosist came in and told us the initial results of the pathology report of the mass Rhabdomyosarcoma or RMS and that is was Embryonal. She wanted to get a few more test done that day so we went for an Catscan, Bonescan, and another MRI. The next day she met with us to let us know that there was still residual spots left on the bones in our son. We would need to start Chemo and Radiation next week after central line port would be put in his chest. So in 1 month we went from what we thought was a bump or bruise on our sons back to having it removed and on a 43 week treatment plan. Whats next? How are we going to do all of this? How did this happen? How are we going to afford all the travel and time off work? Our eldest son is graduating and can we juggle everything?
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