Rhiannon and Ayla's Medical Fund
This household has been bombarded with challenges over the last 2 years. Between struggling with Ayla's constant medical needs and now the devastating news of Rhiannon's diagnosis of Lung Cancer, they aren't sure how much more they can bare. Below is Ayla's story, with Rhiannon's diagnosis being new, not much information is known at this time, but we will learn more as the time goes on.
Ayla is a beautiful, strong, and brave 2 year old.
She was born 5 weeks early, after months of bedrest for Mommy. Ayla spent 3 days in the NICU at birth. At 3 weeks old, Ayla stopped stooling. At 1 month old she underwent her first surgery, an analplasty. Ayla began losing weight at an alarming rate. She underwent her 2nd surgery and had a G-tube and Nissen placed when she was 3 months old. On Valentines Day she was readmitted after violently ripping her Nissen loose from vomitting. Resulting in a G-J Tube placed at 6 months. Ayla currently gets 24 hour continuous feeds, and is only allowed 1 oz orally. Ayla has extremely sensitive nerves in her tummy that cause pain from feeling full, hungry, or even just the slightest stretching when eating. She is currently working on learning to eat, and swallow in eating/speech therapy. She also in physical therapy to gain the abilty to use her belly muscles to move.
Ayla has suffered from severe GERD, Problems swallowing, dyspepsia (sensitive nerves in her tummy), and constipation.
Ayla has gone under general anesthesia 4 times, and has spent over a month combined at the Children's Hospital of Illinois, the bills are piling in.
Ayla undergoes Occupational therapy once a week for Sensory Processing Disorder, and speech therapy to help develop her language skills.
Having a Medically complex child does not allow for Mom to work as it would cost more in child care fees then she could bring in. Not to mention the multiple doctors, and therapy visits every week that would require Mom to leave work.
Mommy manages Ayla's medical care while staying home to take care of her and her 4 year old brother, Wyatt. Mommy and Daddy are doing everything they can, but aren't able to keep up with the medical bills pouring in. Any amount you are able to contribute is phenominal and will help so much!
We appreciate each and everyone of our donors, and we are doing everything we can to help our little hero learn how to eat, grow, and be the strongest she can be.
Thank you again!
Waylon, Rhiannon, Ayla, and Wyatt
Recovery has been rough. I've had lots of chills and sweats. Don't worry it is being watched closely for infection! The most painful is the broken rib.
This week a swollen lymph node was found along my groin, we will be watching it to make sure it doesn't turn out to be cancerous (nerve-racking to say the least).
I meet with the oncologist February 1st and will decide at that point what we want to do about the lymph node and my liver.
At this point I spend most of my days sleeping, but get up to try and walk around for awhile through the day. I am struggling with lots of nausea from my meds, and eating lots of toast.
The kids can't stay healthy, and are taking turns getting sick, at least there taking turns right? Ayla has been sick since we were down in St. Louis and got better for a few days and is back down again. Wyatt has an infected fingernail that is causing lots of pain for him.
Overall, this is exhausting, but no one ever said cancer was easy. Taking it one minute at a time!
For the last month Ayla has had a low grade fever, and is only awake 5 hours a day. She has had multiple blood draws and her doctors are getting concerned that she isn't getting over this illness.
We are still struggling very much with the on going medical debt. We are very thankful for everything and anything you can contribute towards helping our family out.