Annalise Lujan Medical Fund

$20,665 of $100,000 goal

Raised by 147 people in 19 months
Margaret Geittmann
on behalf of Maryann Estrada-Lujan
 LAKE MARY, FL
Annalise Lujan is my 12 year old second cousin, who contracted a rare and life altering form of brain disease.

One in a million children who get ordinary colds or stomach viruses suffer a rare complication where either the virus spreads to the brain or causes a type of autoimmune response in the brain that leads to constant seizures, sometimes death, and very often, mental retardation and impaired cognitive function.

This condition is called FIRES: Febrile (fever) Induced Related Epilepsy Syndrome.  Annalise is currently in her third week of a drug-induced coma to suppress the seizures, and this may take up to 6 weeks. She is starting a special diet via a feeding tube to cause a metaboic state called ketosis to help suppress seizures.  

She is constantly attended by her devoted mother, father, who is a disabled vet (he served as Special Warfare Combantant-Craft Crewman..SWCC in the Navy ) and her 13 year old brother.

My husband, who has also served in the miitary, has practiced obstetrics and gynecology for 35 years, and I have been an operating room nurse for over 30 years. Neither of us has ever heard of this dreadful disease.  Even though we are more than a thousand miles apart, we feel very close to this family. We enjoyed a visit with them last fall, and Annalise was as vibrant and beautiful as any 11 year old girl could possibly be.

It is absolutely heartbteaking and terrifying to see this helpless and innocent young girl stricken by such an insidious and devasting disease.

Any financial help received will be applied to her soaring hospital bills and rehabilitation.

 Thank you.  Any donation given will help this little girl.
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UPDATE: Our Annalise has made major improvements she still has a ways to go but continues to impress doctors and Medical Teams. Annalise has been kneeboarding with her Brother, she has Climbed Tumamoc Hill and today she received an honor roll award. She continues to make great progress in her gymnastics as well.We continue to thank each and everyone of you for your continued prayers love and added support. Thank you for your time.

THE LUJAN FAMILY !
New update from Annalise’s mother:
Hi Margie, I just wanted to let you know we are doing another phenobarbital Wean starting with tonight’s dose. It’s a small wean but we are very slowly taking her off completely. She’s still on keppra and CBD oil, no seizures since sept 8th. Please pray all goes well these next few days. I love you! w update: January 28:
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Annalise and her brother
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UPDATE: Our Annalise has made major improvements she still has a ways to go but continues to impress doctors and Medical Teams. Annalise has been kneeboarding with her Brother, she has Climbed Tumamoc Hill and today she received an honor roll award. She continues to make great progress in her gymnastics as well.We continue to thank each and everyone of you for your continued prayers love and added support. Thank you for your time.

THE LUJAN FAMILY !
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Up date for our Annalise: Annalise is doing well she is making GREAT progress in her recovery she still has a ways to go. Her resilience constantly amazes us in wow moments. Thank you for your continuing thoughts and prayers. Love the Lujan family.
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Read a Previous Update
Margaret
8 months ago

please continue with donations even $1 helps her continue her so needed rehab!

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Margaret
10 months ago

update:: Need Help..... Annalise update: Family and dear love ones. Please continue to pray for Annalise this weekend is her first gymnastics meet in Phoenix. Annalise's confidence is tethered. She has HIGH anxiety..."Daddy I just don't want to get sick"( referring to F.I.R.E.S)..Annalise is doing well. She is an inspiration of God's work. Thank you for your continued thoughts and prayers...

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$20,665 of $100,000 goal

Raised by 147 people in 19 months
Created April 22, 2017
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$25
Anonymous
16 months ago
$200
Jim Garnett
16 months ago

From a former Tumbleweeds family member. Good luck and get well.

TS
$1,000
Tracy Scholz
17 months ago

I am so happy to see that Annalise is making such a great recovery!

JL
$25
Jessica Lyons
17 months ago

Many prayers from the skyline/campbell branch at BBVA. Glad she is on the road to recovery!

$200
Anonymous
17 months ago
RS
$150
Ramses Sanchez
17 months ago

God Bless you, I have a child with the same problem, I´m trying to read more about how did you recovery for this cathastrophic decease.

LC
$100
Lauren Chon
17 months ago

I was touched and inspired by your courage and loving words that I saw on the news. You are in my prayers. You have such strength.

JS
$250
John and Sonia Stamatopoulos
17 months ago

Always with you Annalise. We are so proud of you and are sending our love. John, Sonia, Arden and Ashton

Margaret
8 months ago

please continue with donations even $1 helps her continue her so needed rehab!

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Margaret
10 months ago

update:: Need Help..... Annalise update: Family and dear love ones. Please continue to pray for Annalise this weekend is her first gymnastics meet in Phoenix. Annalise's confidence is tethered. She has HIGH anxiety..."Daddy I just don't want to get sick"( referring to F.I.R.E.S)..Annalise is doing well. She is an inspiration of God's work. Thank you for your continued thoughts and prayers...

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