Annalise Lujan Medical Fund
One in a million children who get ordinary colds or stomach viruses suffer a rare complication where either the virus spreads to the brain or causes a type of autoimmune response in the brain that leads to constant seizures, sometimes death, and very often, mental retardation and impaired cognitive function.
This condition is called FIRES: Febrile (fever) Induced Related Epilepsy Syndrome. Annalise is currently in her third week of a drug-induced coma to suppress the seizures, and this may take up to 6 weeks. She is starting a special diet via a feeding tube to cause a metaboic state called ketosis to help suppress seizures.
She is constantly attended by her devoted mother, father, who is a disabled vet (he served as Special Warfare Combantant-Craft Crewman..SWCC in the Navy ) and her 13 year old brother.
My husband, who has also served in the miitary, has practiced obstetrics and gynecology for 35 years, and I have been an operating room nurse for over 30 years. Neither of us has ever heard of this dreadful disease. Even though we are more than a thousand miles apart, we feel very close to this family. We enjoyed a visit with them last fall, and Annalise was as vibrant and beautiful as any 11 year old girl could possibly be.
It is absolutely heartbteaking and terrifying to see this helpless and innocent young girl stricken by such an insidious and devasting disease.
Any financial help received will be applied to her soaring hospital bills and rehabilitation.
Thank you. Any donation given will help this little girl.
THE LUJAN FAMILY !
New update from Annalise’s mother:
Hi Margie, I just wanted to let you know we are doing another phenobarbital Wean starting with tonight’s dose. It’s a small wean but we are very slowly taking her off completely. She’s still on keppra and CBD oil, no seizures since sept 8th. Please pray all goes well these next few days. I love you! w update: January 28:
THE LUJAN FAMILY !
please continue with donations even $1 helps her continue her so needed rehab!
update:: Need Help..... Annalise update: Family and dear love ones. Please continue to pray for Annalise this weekend is her first gymnastics meet in Phoenix. Annalise's confidence is tethered. She has HIGH anxiety..."Daddy I just don't want to get sick"( referring to F.I.R.E.S)..Annalise is doing well. She is an inspiration of God's work. Thank you for your continued thoughts and prayers...