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Ocean Of Trust

$46,426 of $200,000 goal

Raised by 261 people in 7 months
Looking back over this past year, life has dramatically changed.

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Nick was diagnosed with a brain tumor in 2006, just after his 27th birthday. We are now almost 13 years into this journey. Since 2006, Nick has undergone 2 biopsies, 1 craniotomy, motor mapping of the brain, implantation of a VNS device to control seizures, 5 cumulative years of chemotherapy and 2 complete cycles of radiation. We have experienced infertility, pregnancy & 2 adoptions. It’s been quite a ride!
Spring of 2017 we welcomed our youngest son, into the world through the gift of adoption. Meanwhile, the MRI showed the margins of Nick’s tumor beginning to expand. In consultation with our team of doctors from two local hospitals, we decided to take the recommendation of re-radiating the tumor. Nick had a small amount remaining of his “lifetime dose,” so that was stretched out and administered across six weeks. Radiation concluded around Labor Day 2017.

After the biopsy in March 2018, there has been continued decline. Nick began another drug, technically a chemotherapy, which had been shown to alleviate some effects of radiation necrosis. By May 2018, he was using a walker to help steady himself, however, with continued loss of sensation on his right side, he was unable to feel the walker in his right hand and it became difficult to grasp, so we moved to a multi-pronged cane. We also began occupational, speech & physical therapy.

We have set up this Go Fund Me page to help with the costs associated with a long term illness. Here are our expenses currently:

• Decrease in salary due to short term disability (loss of 1/3)
• Speech  Therapy, Physical Therapy & Occupational Therapy  twice per week for 24+ weeks, Therapy Sessions - must be paid out of pocket now - $200-$250 per 1 hour session
• Membership to indoor pool to continue to build muscle strength with Physical Therapy programs
• Leveling the driveway (now a tripping hazard) - $3,000+
• Childcare costs - as needed
• Travel Expenses - travel to North Carolina 3-4 times per year - $1600 per trip
• Household Services - Grocery Delivery, Lawn/Snow Services, House Cleaning Service - to ease Jen's load
• Legal Services - to draw up Power of Attorney and a Will. 

There are several things I can put a price tag on, such as out of pocket therapy sessions, hiring a lawyer to draw up a will and power of attorney papers, leveling the driveway, but so many more needs will arise that I can’t possibly foresee now.

We come humbly before you to ask for your financial support . As you can imagine, all of this takes a significant toll on all aspects of life, not the least of which is the bank account. 

We invite you to visit our web site: www.oceanoftrust.com where  updates are made regularly.

Jesus we trust in You.

P.S. We are grateful and appreciate all donations, would you kindly consider including the 3% processing fee when making your donation.
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Today we have shared the MRI update. Please visit www.OceanofTrust.com
Thank you for continuing to pray with us.
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Today is the day...MRI happening right now. See the update on our web site: www.OceanofTrust.com
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We just posted an update on today's events. Please visit our web site for details: www.oceanoftrust.com
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Thank you for joining us in praying this novena. We have been so blessed by the outpouring of support. Be sure to visit our web site: www.oceanoftrust.com
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Read a Previous Update

$46,426 of $200,000 goal

Raised by 261 people in 7 months
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BM
$100
Brian Mungo
14 days ago
NH
$50
Ngoanathabo Hall
15 days ago
$87
Anonymous
17 days ago
$100
Anonymous
19 days ago
CM
$100
Cheryl Macek
20 days ago
JB
$100
John Brooks
20 days ago
TB
$100
Thomas Burton
21 days ago
KS
$50
krystal shiklanian
22 days ago
LG
$200
Leopoldina Graf
22 days ago
MG
$50
Michelle Gravelle
22 days ago
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