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Ocean Of Trust

$36,402 of $200,000 goal

Raised by 209 people in 2 months
Looking back over this past year, life has dramatically changed.

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Nick was diagnosed with a brain tumor in 2006, just after his 27th birthday. We are now almost 13 years into this journey. Since 2006, Nick has undergone 2 biopsies, 1 craniotomy, motor mapping of the brain, implantation of a VNS device to control seizures, 5 cumulative years of chemotherapy and 2 complete cycles of radiation. We have experienced infertility, pregnancy & 2 adoptions. It’s been quite a ride!
Spring of 2017 we welcomed our youngest son, into the world through the gift of adoption. Meanwhile, the MRI showed the margins of Nick’s tumor beginning to expand. In consultation with our team of doctors from two local hospitals, we decided to take the recommendation of re-radiating the tumor. Nick had a small amount remaining of his “lifetime dose,” so that was stretched out and administered across six weeks. Radiation concluded around Labor Day 2017.

After the biopsy in March 2018, there has been continued decline. Nick began another drug, technically a chemotherapy, which had been shown to alleviate some effects of radiation necrosis. By May 2018, he was using a walker to help steady himself, however, with continued loss of sensation on his right side, he was unable to feel the walker in his right hand and it became difficult to grasp, so we moved to a multi-pronged cane. We also began occupational, speech & physical therapy.

We have set up this Go Fund Me page to help with the costs associated with a long term illness. Here are our expenses currently:

• Decrease in salary due to short term disability (loss of 1/3)
• Speech  Therapy, Physical Therapy & Occupational Therapy  twice per week for 24+ weeks, Therapy Sessions - must be paid out of pocket now - $200-$250 per 1 hour session
• Membership to indoor pool to continue to build muscle strength with Physical Therapy programs
• Leveling the driveway (now a tripping hazard) - $3,000+
• Childcare costs - as needed
• Travel Expenses - travel to North Carolina 3-4 times per year - $1600 per trip
• Household Services - Grocery Delivery, Lawn/Snow Services, House Cleaning Service - to ease Jen's load
• Legal Services - to draw up Power of Attorney and a Will. 

There are several things I can put a price tag on, such as out of pocket therapy sessions, hiring a lawyer to draw up a will and power of attorney papers, leveling the driveway, but so many more needs will arise that I can’t possibly foresee now.

We come humbly before you to ask for your financial support . As you can imagine, all of this takes a significant toll on all aspects of life, not the least of which is the bank account. 

We invite you to visit our web site: www.oceanoftrust.com where  updates are made regularly.

Jesus we trust in You.

P.S. We are grateful and appreciate all donations, would you kindly consider including the 3% processing fee when making your donation.
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" Ramps, Concrete & Railings, Oh My!"
The latest update from Jenn can be seen at: www.oceanoftrust.com
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Thank you for the outpouring of support. We are very grateful to God and the blessing you have been to our family. We would like to encourage you to share our story and our web site: www.oceanoftrust.com
On October 12th, our story aired on "Kresta In The Afternoon" hosted by Al Kresta. Our interview gave an update on Nick and his health and a part of our journey. If you would like to hear the interview, please visit the Archives at www.AveMariaRadio.com.
Again, thank you for your support and when you stop by our web site, please leave your prayer intentions. We love to pray for you.
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Hello!
We are so incredibly grateful that God has blessed us with such a compassionate, faithful and generous community. Thank you very much for the outpouring of support, we appreciate every single one of you. Unfortunately at this time, we are unable to respond to each of you individually. As you can imagine, the tasks before our family are great. We will be posting updates regularly on our web site.
Please visit our web site to keep up-to-date on our journey. The web site is: www.oceanoftrust.com
We recently were interviewed on "Kresta in the Afternoon" and you can hear that interview through the archives at: www.avemariaradio.net.
Please know that we hold you and all your intentions in prayer. We understand that we are not alone in carrying heavy crosses. It is our privilege to pray for you.
Jesus, we Trust in You,
Jen
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$36,402 of $200,000 goal

Raised by 209 people in 2 months
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