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The Demas Family

$51,000 of $75,009 goal

Raised by 393 people in 18 months
Created January 18, 2018
Hello Friends and Family.  For those of you that are not yet aware, Collin was recently diagnosed with Leukemia.  We are all completely devastated and the family is obviously shaken to their core.  This family, as we all know, is stronger than most and has enough love to push through anything.  A lot of that love comes from all of you.  We have several people asking how they can help.  Right now they could use all the healing prayers and thoughts you can send but we know this will be a long and extremely costly battle.  Although they would never ask for financial help, we know they would truly appreciate anything you can give towards their expenses.  All of us love each and every family member in the Demas house and this is just one way to show our support.  Please contact Rene or Chantal if you have any further questions regarding financial assistance or helping the family in any way.  Thank you friends.
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Hello all!
I realize not all of you follow the caring bridge or are friends with me on Facebook. So I thought I would do a update. Collin is doing good! He had a good golf season, hes starting to train for baseball and getting back into shape. Hanging with the boys and being a normal 17 year old!!! We continue to have our monthly IVIG infusions/B cell checks ( which we will continue for the rest of his life!) His next bone marrow biopsy is scheduled for January 4th, that will be his 6 month check please continue to pray that he remains cancer free!
Below I copied Addison's public speaking class speech. (Amazing!)
We would like to say thank you to each and everyone of you. We are truly grateful for everything you have all done for our family. We hope you all have a wonderful holiday and a Happy New Year!
With love the Demas family ❤️


hello friends! for my public speaking class at NAU I had to write a eulogy for something, so I thought I’d share the story and “eulogy” for my brothers cancer cause it means a lot to me!!
January 17, 2018. The day started as any other. We had no idea that that day would be the day you came into our lives, and we had never expected you to in the first place. I have never seen such fear in someones eyes other than when I walked into that room after my brother Collin’s diagnosis, and I wish that nobody else will ever have to experience the hurt he felt that night caused by you taking over his body. Collin was 16. He is athletic and outgoing, he plays baseball and golf at school, and loves to cook. He has always been there for me just like he would be for one of his best friends, even though he is my annoying little brother. We grew up together at the baseball field, eating Taco Bell on the way home from his games. He works hard for what he wants, until you decided to come shake that up for him. Instead of his typical long days spent at the field, he spent long stays at the hospital fighting you. Instead of spending the end of his junior and beginning of senior year with his friends, he spent it hanging with his nurses from the room he was not allowed to leave, because of you. You made life stop for him for some time when he should have been growing up alongside his friends. Many say that having cancer is something you wouldn’t wish upon your worst enemy, which is true, but my brother and family have learned and gained so much from you. This is a eulogy to you, my brothers Leukemia.
You taught us patience and the power of positivity. The concept of you was very new to my family, and I have never met a stronger kid until you came along. When you kept the countless tests coming back not as we had hoped and we were heartbroken, Collin just said “it’s okay, I’ll get it next time” and never stopped fighting against you and never gave up. His number in sports was always nine, so when he was diagnosed his friends made t-shirts that said “9 Strong”, and that is exactly what he was, especially for the kid afraid of needles who had one in him non stop since being admitted. All he wanted were those final words of “remission” and you kept beating him down, but he never failed to get back up again. When being asked how he felt about having you, he replied “eh, it’s not that bad” while laying in his hospital bed for three weeks previous to this. After he was put into the ICU with 105 degree fever for almost a week straight with not a light turned on without it being painful to him, he sat up and pointed at how many medications were being put into him, and he could name every single one. Through the constant beeping monitors and the numerous ports that sometimes stuck out of his body, he was always making the best of every situation that you put him in, pointing out that we could have slumber parties in case he needed help in the middle of the night, or beat box to the monitors with my dad. You made us appreciate the little things so much more, like him watching my games or a family dinner at home.
Most importantly, you taught us love. The outpouring of love and support that came from the community was almost overwhelming. Other high schools came to his games that he sometimes couldn’t even attend to play against his team wearing orange in support of him. The Diamondbacks heard his story and now him and Jake Lamb are on a first name basis. His Go Fund Me reached 50,000 dollars for medical bills, so many posters and cards were sent home from school, and news stories are only a couple of examples of were what he was blessed with throughout his journey with you. When he won prom king at school and wasn’t allowed to be there because of you, his buddies came to the hospital and the nurses made him a crown and turned a wheelchair into his limo for him while they got to eat pizza in the room when he wasn’t allowed to- if that’s not love I don’t know what is. From our Fortnite stream watch parties and our Diners, Drive In’s, and Dives marathons at the hospital, you surprisingly brought our family closer, and the friends who made an effort to visit the hospital will ones he keeps for life. The amount of extraordinary people that came into our lives due to Collin having you is truly life changing. From the nurses to the other kids and their families who have been affected by you, we have met so many incredible and supportive people that have helped make this bleak time of our lives a little brighter.
August 10, 2018. The day started as any other, until we finally got the call that Collin was in remission. After medications and new treatments and rounds of chemo and hospital stays and missed baseball games and missed birthdays and missing school and loss of hair and so much more, he never lost hope and never stopped fighting you. He remained strong, no matter what new fever or side effect this journey threw at him. He is an inspiration to many, and especially me and has showed me that I can do anything I put my mind to. I remember being in Disneyland and being to scared to get on Space Mountain, and he almost made a joke of him not being able to leave the hospital and told me to get on the ride because he couldn’t, so I did just because he has conquered way more than a rollercoaster. In this short amount of time this kid and you have taught me more life lessons than I thought a 16 year old could. And now, he is back to playing golf and baseball and enjoying his senior year of high school free from the restraints you placed on his life. So thank you, for allowing us more love than my family thought possible, and for teaching us that positive thinking is the most powerful fight you can put up. And for you, I am surprisingly grateful, for teaching Collin that he really can do anything he sets his mind to and for giving me a new hero, my brother.
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The results from the 100 day bone marrow are in! He still has zero B cells and is MRD negative! So he remains cancer free!!!!! He may not have won homecoming king, but he's currently winning at life!!!!
His next bone marrow will day 180 ( January sometime) unless they see something in his peripheral blood checks. He is ready to have his port out. He wants to start back up with baseball yesterday! So we are going to try and make that happen soon. So all his IVIG infusions and blood checks will be in his arm. This should be interesting! He doesn't like needles but he likes baseball more

One last push... The golf tournament they are hosting in Collins honor is December 1st at Stone Creek. They have 40 spots left and are trying to sell it out! If you are interested or know someone who is please click on link below. There will also be silent auction and raffle and some fun times at this tournament. All proceeds will go to Collins medical account.
As always thank you for your continued prayers and support.
#9strong

Kim
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Monday, September 17th
I pray that it will get easier to wait to hear back for final results.... It's never easy!!
The oncologist just called this morning to let us know he is still MRD negative!!! And last week he still had zero B cells so unless they see a need between now and our 100 bone marrow we are good!
Please let anyone know they can follow the caring bridge for updates.
Dbacks game this Saturday the 22nd if you plan on going get there early and wear your Collin strong shirts. We are meeting by teamshop after the 2nd inning to take a group photo.
Hope you all have a fabulous week and I am so grateful for all of you!
Keep praying for him to stay in remission!
Kim
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Monday, September 17th

I pray that it will get easier to wait to hear back for final results.... It's never easy!!
The oncologist just called this morning to let us know he is still MRD negative!!! And last week he still had zero B cells so unless they see a need between now and our 100 bone marrow we are good!
Please let anyone know they can follow the caring bridge for updates.
Dbacks game this Saturday the 22nd if you plan on going get there early and wear your Collin strong shirts. We are meeting by teamshop after the 2nd inning to take a group photo.
Hope you all have a fabulous week and I am so grateful for all of you!
Keep praying for him to stay in remission!
Kim
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$51,000 of $75,009 goal

Raised by 393 people in 18 months
Created January 18, 2018
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