A Liver for Kanoa Manners

$4,790 of $10,000 goal

Raised by 64 people in 34 months
Nicole Bednar
on behalf of Anuhea Kamakele
 KAPOLEI, HI
Two months after Kanoa was born, he was diagnosed with “Biliary Atresia”. A rare disease of the liver and bile ducts. The bile ducts become inflamed and blocked which causes the bile (waste) to remain in the liver. Without bile excretion, the liver becomes damaged. The only treatment for Biliary Atresia is a surgical procedure called the “Kasai” procedure (allow bile drainage) which was performed on him at two months old. Since then, Kanoa has gone thru numerous doctor visits, hospital stays, laboratory tests and procedures. Received antibiotic treatments and albumin transfusions. He takes daily medications to prevent infections. The family recently learned that little Kanoa’s liver is slowly failing and the only other option is a liver transplant. Unfortunately, both his parents are not a match and is unable to give a piece of their liver to help save his life. The family is currently seeking a suitable “Living Donor” with blood type O.

The family will have to travel from Hawaii to California for the surgery. They potentially may have to move there depending if Kanoa gets placed on the transplant waiting list if there is no living donor candidate available. Any funds raised from this site will be used to help pay for medical/insurance costs, flight, lodging and ground transportation for the family. A little bit goes a long way and it will be greatly appreciated.

Kanoa is a bright little boy with a strong heart, full of life. Despite whatever he is going through, we hope and pray that he gets the transplant he needs to live a long and healthy life. Thank you all for your love, support and understanding!



Aloha,

Pukaua Manners, Anuhea Kamakele & Big Brother Kana'i
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UPDATE 4 – 07/07/16
Aloha Family and Friends. A lot has happened since I last gave an update. Kanoa had his liver transplant surgery on March 22, 2016. The day before was one of the hardest days of my life. I have never felt so much anxiety. I was definitely an emotional wreck but I am happy to say that the surgery was a success for both Kanoa and his living donor Kuhia Arakaki. After his transplant he spent 13 days in the ICU due to respiratory problems. He was discharged from the hospital on the 17th day and we were told to stay for another 3 months for weekly checkups. Aunty Kuhia is also doing well. She is also required to be here between 2-3 months to make sure that she does well after surgery.
While living here in Palo Alto, Kanoa was featured on ABC7 News one week after his surgery. I shared our story at 3 charitable events. All to help support the Ronald McDonald House at Stanford. We celebrated Kanoa’s 2nd Birthday on 5/25/2016. A week after his birthday Kanoa’s liver levels were elevated. He did a liver biopsy and the results showed signs of rejection. He was hospitalized for 1 week and treated with lots of medication. Kanoa is doing so much better now. His liver levels are looking good. It still needs to be monitored weekly but overall we are happy with his progress and how strong he’s becoming.
Once again thank you to everyone who has helped us throughout this journey. We look forward to coming home real soon.
Mahalo Nui Loa,
Anuhea Kamakele
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UPDATE 3 – 2/14/16 HAPPY VALENTINES DAY

Today is Valentine’s Day. A day when people show feelings of love, affection and friendship. I have just recently learned that today is also NATIONAL DONOR DAY. To my family it’s a day to celebrate all those people who have helped save someone’s life by donating blood, marrow, tissue or organs. Thank You! You are a true HERO! Never would have I thought that I would be experiencing something like this. But God has set this path for my family. It has been life changing physically and emotionally. But with thoughts and prayers sent from family, friends, loved ones and with our faith, hope and trust in God we will see through this journey.

Speaking of donors… My family and I received some very exciting news. God has answered our prayers and has blessed Kanoa with a Living Guardian Angel. We are proud to announce Liana Kuhia Arakaki will donate a part of her liver to save Kanoa’s life. Kuhia is the fiancée of Kanoa’s uncle Lono Manners. They have two sons Kamanawa (7) and Kame’eiamoku (5). Kuhia is a Montessori and Hawaiian Language Teacher. She is currently getting her Master’s Degree in Education. I met Kuhia in 2005 when I signed up for hula with Halau Na Mamo O Pu'uanahulu. We’ve become wonderful friends throughout the years and I am proud to call her my sister.

I still remember the day like it was yesterday when she came to Pukaua and I crying with tears of joy. She just found out that she was blood type O and without hesitation from Lono she came to us and asked if she could help save Kanoa. We were so happy and overwhelmed with joy we cried and hugged each other. This act of Love has certainly changed our lives. This is really love in its true essence. Meeting the true needs of someone else. We will forever be grateful!

Kuhia you are truly a compassionate, courageous and inspirational person and I hope our story will help inspire others in the future. By becoming a donor all it takes is selflessness, courage and love.

Kuhia also has a go fund me page. Her family is sacrificing a lot during this journey. Please if you can support her in anyway it will be most deeply appreciated. Here is her link:

https://www.gofundme.com/k9n9jwsk

And to all my family and friends who have been with me on this journey, Thank you from the bottom of all our hearts! We Love you!
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UPDATE 2 - 1/13/16

And so our journey begins…. Today marks the day of Kanoa being placed on the national liver transplant waiting list. We have relocated to Palo Alto, CA as we wait for an opportunity. We would appreciate any funds donated to help pay for some expenses such as medicines, food, ground transportation or anything we need while living here. Thank you to those who have helped. Your monetary donations, thoughts and prayers are deeply appreciated.

During this process Kanoa has taught me so much about life. Emotionally it has been hard on my family, hard on me but with God's help and everyone's kind, uplifting prayers we are getting through this. As a parent we try to teach our kids to be the best they can be and to never give up. It's weird how the roles reverse, Kanoa is teaching me. He is teaching me about life, inner strength and courage. He is teaching me to have hope, to find love when there is sadness and to have peace in my heart. But most importantly he is teaching me to never give up! 2016 is a big year for our family and we are ready! We look forward to a Healthy and Happy New Year.

Thank you all for your generosity, your caring and your sharing!

Much Love & Aloha,
Anuhea Kamakele
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Update 1 - 11/30/15

Kanoa had his very first plane ride to San Jose, California. He and his mother went to Lucile Packard Children’s Hospital at Stanford where they met the “Liver Team”. The reason for the visit was to do a pre-transplant evaluation with the hopes of being placed on the national liver transplant waiting list. The liver team conducted consultations and gave Kanoa’s family further education on Kanoa’s condition. Throughout the evaluation process Kanoa enjoyed meeting the team and was very cooperative. While the family waits for the results of the consultations, they are actively seeking potential living donors w/blood type O. If you or anyone you know are interested in learning more about becoming a living donor, please email Kanoa’s mother at anuheakamakele@yahoo.com

Thank you for all of your love and support.
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Read a Previous Update
Gene D Goff
34 months ago

At 9 months we had to have my daughter have surgery out in california...it was not a fun situation. However,the ronald mcdonald house helped out MASSIVELY. I think we paid $15 a night to stay there,and it was right behind the hospital,so almost every need was taken care of! The hospital was also excellent,and specialized in children. If you have a choice of hospital,i would highly recomend the childrens hospital in madeira,california.

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Tavares Heather
34 months ago

I know how ur feeling my cousins baby jus went threw the same thing his name is rylee McMillan they stay at the Ronald McDonald house in cali if ur street g out about money the state will help u n ssi

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$4,790 of $10,000 goal

Raised by 64 people in 34 months
Created November 17, 2015
Nicole Bednar
on behalf of Anuhea Kamakele
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$50
Shannon Denning
22 months ago

Praying for you, little guy

MP
$100
Mark Porter
26 months ago

My love and prayer out to the family. So happy things are going well.

$50
Anonymous
28 months ago
RS
$25
Robert L Sakai
29 months ago

God Bless You...

TB
$100
Thomasine & Blayke
29 months ago

May God continue to bless you & your Ohana

CK
$40
Cherise Van Kuren
29 months ago

God Bless Kanoa!!! Love Da Van Kuren Ohana (Cherise, Brandon, Brayden, Brennan & Bryce)

$25
Anonymous
31 months ago
Gene D Goff
34 months ago

At 9 months we had to have my daughter have surgery out in california...it was not a fun situation. However,the ronald mcdonald house helped out MASSIVELY. I think we paid $15 a night to stay there,and it was right behind the hospital,so almost every need was taken care of! The hospital was also excellent,and specialized in children. If you have a choice of hospital,i would highly recomend the childrens hospital in madeira,california.

+ Read More
Tavares Heather
34 months ago

I know how ur feeling my cousins baby jus went threw the same thing his name is rylee McMillan they stay at the Ronald McDonald house in cali if ur street g out about money the state will help u n ssi

+ Read More
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