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Urgent! Antos is dying and it's happening before our eyes! We have a few weeks to stop his death!
Collection Aim: Travel and Accomodation expenses during the lifesaving heart operation by prof. Hanley in Stanford Hospital
Sometimes there is little time to help, sometimes there is no time left, like in this case. We are asking you for help, before our child is dying! Antos is fading and doctors are not hiding that fact from us. He has maybe a couple of weeks left… That’s how long his little heart will survive without surgery and there is nobody in Europe that could help. The only option that we have is professor Frank Hanley from Stanford Hospital, the professor for lost causes. Maybe we are tilting at windmills. Maybe we are asking for a miracle… but we know that with your help these types of miracles are happening. That’s the reason we are asking you to save the life of our boy. Don’t postpone it until tomorrow, for later, without you Antos won’t be around tomorrow.
Antos parents: ‘We are in a dramatic situation. Our son is fading away.’ Antos is fighting for his life, he is in intensive care, under the constant care of anaesthesiologists and cardiac surgeons. He needs to get to Sanford hospital as soon as possible! We are begging for your help, you can still help to save him… his life is in your hands. We are allowed to see Antos 3 times a day for 30 minutes. We are waiting for those moments all day. There is nothing else that matters... The room is white, sterile, we are walking in hospital gowns. Frightened looking around for our son… when we are seeing him in the bed, relief washes over us. Some kids that were next to Antos are not there anymore, under each name there is a dramatic story of a heroic fight for life. The room is filled with the hospital smell but also with the smell of fear. The worst fear of all, the fear of your child’s life. He is the sense of our existence, our whole world evolves over that small bed where he is, our 8 months old son. We were waiting for him filled with joy.. but everything changed in the middle of pregnancy when we were told that he has a congenital heart. 20 weeks of fear, uncertainty and many unanswered questions… Antos was born on 8th August, it still was the most beautiful day of our lives but also the toughest one. Fallot’s tetralogy, Pulmonary trunk atresia, and lung arteries hypoplasia – these names like a curse are leading to Antos’ death. From the start, nothing signaled the tragedy. Antos was so strong that he didn’t need the surgery from the start. When we finally got home the skin on his face started to change colour, it turned yellow like a sunflower’s leaves. Alagille’s syndrome, liver malfunction, in some cases requiring a transplant. They say that problems are like cowards, they attack in groups. We didn’t have time to adjust to this new illness as his heart reminded of itself again. Low saturation, heavy breathing, loud crying, cold sweats, and his skin colour, this time Antos was as grey as ash, the colour of lack of oxygen, the death colour. We ended up in the hospital again and we are here up until today. Antos had 3 serious operations, 2 sudden reoperations, kidneys dialyses. 3 heart catheterizations, for 2 weeks, he was connected to ECMO, extracorporeal membrane oxygenation. Doctors are honest with us – they have never seen a case like this before, they have never seen arteries like his. Nobody expected it to be the way it is, catheterization was supposed to give answers on what to do next... but didn’t leave space for any guesses. …Antos required an immediate operation, he needed stent implementation. He was doing well for few days after the implementation but the stent turned out to be obstructed, doctors had to reoperate once again, once again they had to open Antos’ heart, but the heart is not a book it can’t be reopened so often. Antos was dying We watched it ourselves how his little hands were sinking into the bed’s sheet, his eyes were turning matt, his skin turned as white as the hospital's walls. Even though he was getting a blood transfusion, there was less and less life in our little boy. The machines were constantly working but the beating of his heart was fading away. Please start saying goodbye – when we heard these words we cried through the night - we are his parents we would do anything for him. Saying goodbye wasn’t something that we could do. We knew the stats, there is only 9% of kids that live after being disconnected from ECMO, nobody was giving him any chances. Doctors did everything for him, they saved his life a few times, unfortunately, they couldn’t do anything more. We searched for help everywhere in Europe, where kids with worst heart conditions are submitted. In Germany- they couldn’t help. Italy - professor Carotti didn’t take the risk on. We will try to approach them once again, we will fight. The only one who doesn’t fight – looses, but we will fight for our son’s life. For now, the only professor who accepts to operate is professor Hanley – the lost causes specialist, who gives hope for the most difficult heart issues. He agreed to operate and give him a chance for a normal life. We thought that money doesn’t bring happiness. Today, distraught we know that money brings you more than happiness – it brings you a life! Medical care in the States is the most expensive in the world. Over 1.5 million euro, 1.5 million euro for our son’s life, for something that is priceless for us. We have to have at least half of this amount, for the clinic to take us on. We have to have it now. Nobody can predict, how long Antos’ heart will survive. Maybe a month, but no longer than two months... We can’t wait, if we don’t make it, our son will die. We are not asking for your help – we are begging you. We will leave no stone unturned for our son to have the chance to be operated, for him to survive. If you are a mother or a father, if you ever loved someone, we believe that you can understand us. We hope with our hearts that this story will have one ending, happy ending, because of you, please make it happen.
Collection Aim: Travel and Accomodation expenses during the lifesaving heart operation by prof. Hanley in Stanford Hospital
Sometimes there is little time to help, sometimes there is no time left, like in this case. We are asking you for help, before our child is dying! Antos is fading and doctors are not hiding that fact from us. He has maybe a couple of weeks left… That’s how long his little heart will survive without surgery and there is nobody in Europe that could help. The only option that we have is professor Frank Hanley from Stanford Hospital, the professor for lost causes. Maybe we are tilting at windmills. Maybe we are asking for a miracle… but we know that with your help these types of miracles are happening. That’s the reason we are asking you to save the life of our boy. Don’t postpone it until tomorrow, for later, without you Antos won’t be around tomorrow.
Antos parents: ‘We are in a dramatic situation. Our son is fading away.’ Antos is fighting for his life, he is in intensive care, under the constant care of anaesthesiologists and cardiac surgeons. He needs to get to Sanford hospital as soon as possible! We are begging for your help, you can still help to save him… his life is in your hands. We are allowed to see Antos 3 times a day for 30 minutes. We are waiting for those moments all day. There is nothing else that matters... The room is white, sterile, we are walking in hospital gowns. Frightened looking around for our son… when we are seeing him in the bed, relief washes over us. Some kids that were next to Antos are not there anymore, under each name there is a dramatic story of a heroic fight for life. The room is filled with the hospital smell but also with the smell of fear. The worst fear of all, the fear of your child’s life. He is the sense of our existence, our whole world evolves over that small bed where he is, our 8 months old son. We were waiting for him filled with joy.. but everything changed in the middle of pregnancy when we were told that he has a congenital heart. 20 weeks of fear, uncertainty and many unanswered questions… Antos was born on 8th August, it still was the most beautiful day of our lives but also the toughest one. Fallot’s tetralogy, Pulmonary trunk atresia, and lung arteries hypoplasia – these names like a curse are leading to Antos’ death. From the start, nothing signaled the tragedy. Antos was so strong that he didn’t need the surgery from the start. When we finally got home the skin on his face started to change colour, it turned yellow like a sunflower’s leaves. Alagille’s syndrome, liver malfunction, in some cases requiring a transplant. They say that problems are like cowards, they attack in groups. We didn’t have time to adjust to this new illness as his heart reminded of itself again. Low saturation, heavy breathing, loud crying, cold sweats, and his skin colour, this time Antos was as grey as ash, the colour of lack of oxygen, the death colour. We ended up in the hospital again and we are here up until today. Antos had 3 serious operations, 2 sudden reoperations, kidneys dialyses. 3 heart catheterizations, for 2 weeks, he was connected to ECMO, extracorporeal membrane oxygenation. Doctors are honest with us – they have never seen a case like this before, they have never seen arteries like his. Nobody expected it to be the way it is, catheterization was supposed to give answers on what to do next... but didn’t leave space for any guesses. …Antos required an immediate operation, he needed stent implementation. He was doing well for few days after the implementation but the stent turned out to be obstructed, doctors had to reoperate once again, once again they had to open Antos’ heart, but the heart is not a book it can’t be reopened so often. Antos was dying We watched it ourselves how his little hands were sinking into the bed’s sheet, his eyes were turning matt, his skin turned as white as the hospital's walls. Even though he was getting a blood transfusion, there was less and less life in our little boy. The machines were constantly working but the beating of his heart was fading away. Please start saying goodbye – when we heard these words we cried through the night - we are his parents we would do anything for him. Saying goodbye wasn’t something that we could do. We knew the stats, there is only 9% of kids that live after being disconnected from ECMO, nobody was giving him any chances. Doctors did everything for him, they saved his life a few times, unfortunately, they couldn’t do anything more. We searched for help everywhere in Europe, where kids with worst heart conditions are submitted. In Germany- they couldn’t help. Italy - professor Carotti didn’t take the risk on. We will try to approach them once again, we will fight. The only one who doesn’t fight – looses, but we will fight for our son’s life. For now, the only professor who accepts to operate is professor Hanley – the lost causes specialist, who gives hope for the most difficult heart issues. He agreed to operate and give him a chance for a normal life. We thought that money doesn’t bring happiness. Today, distraught we know that money brings you more than happiness – it brings you a life! Medical care in the States is the most expensive in the world. Over 1.5 million euro, 1.5 million euro for our son’s life, for something that is priceless for us. We have to have at least half of this amount, for the clinic to take us on. We have to have it now. Nobody can predict, how long Antos’ heart will survive. Maybe a month, but no longer than two months... We can’t wait, if we don’t make it, our son will die. We are not asking for your help – we are begging you. We will leave no stone unturned for our son to have the chance to be operated, for him to survive. If you are a mother or a father, if you ever loved someone, we believe that you can understand us. We hope with our hearts that this story will have one ending, happy ending, because of you, please make it happen.