Princess Ali's Accessibility

$3,624 of $12.5k goal

Raised by 114 people in 32 months
Tianna Morgan  JASPER, TX
My 11 year old daughter, Ali, has a rare progressive neurological disease called PLAN/NAD. It is causing iron to accumulate in her brain and destroying that part of her brain. As the disease progresses her muscles get weaker and now she walks short distances with assistance, while using a wheel chair for long distances. There is no timeline on the progression of the disease but it has moved fairly quickly. Alike is a fighter and after being wheelchair bound for a year she had a baclofen pump put in surgically which has allowed her to gain mobility again and now she is able to walk short distances with assistance.

We are raising funds to purchase a handicap accessible vehicle, Ali currently weighs 95lbs and I am unable to lift her by myself, while she can get herself in and out of a vehicle now we do not know how long she will be able to. On May 5th our van broke down on the way to Alis neurology appointment and we believe it is a transmission issue.  While exploring oir ootions we cane across a handicap accessible vehicle that will probably not be available next year when we are able to afford it ourselves. Currently I take her to all her local appointments up to an hour away and do not have a vehicle to do that.

We appreciate any and all help we can possibly get even if it's just sharing. 

You can follow Ali's journey at www.facebook.com/alisbattle
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Update 7
Posted by Tianna Morgan
6 months ago
Good morning everyone. Thursday May 5th our van broke down in Houston on the way to Ali's neurology appointment. We think it has transmission issues. For the last week and a half we have been trying to figure out what to do about a vehicle. Yesterday we were exploring our options more to see if we could get our current van to work through at least the beginning of the year. While looking we found a chevy uplander with low mileage for $8000 that is handicap accessible. One of the seats in back turns and comes out for transferring, so while Ali does not need it 100% right now it would help her get in and out of the vehicle and then we would already have it when she can no longer help with transfers herself. While we hate asking, we are pretty sure it will be gone by the beginning of the year when we can afford it ourselves. So we are asking for any help we could possibly get to try and get it. Thank you all and we appreciate any and all help.
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Update 6
Posted by Tianna Morgan
20 months ago
Good Morning everyone. We are in the process of buying a house still. As long as all goes well we will be moving by the end of this month. Now our goal is a vehicle. We have found one for sale for $8500, it has the power lift and everything we already need we could use any help towards getting this van before it is sold, thank you.
Before the easter program
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Update 5
Posted by Tianna Morgan
22 months ago
We are still trying to get a house, that is our number one goal. We have found a handicap accessible home and are just trying to get the funding to purchase the house. Any donations even a $1 will help us reach this goal and get our princess in a home she can safely and freely move around.
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Update 4
Posted by Tianna Morgan
24 months ago
Hello, Sorry it has been awhile since our last update. Things have been pretty hectic here. We thought we had a home to move into before Christmas however, yesterday we found out that we will not be getting that house. So now we will be starting over. We could really use some donations to help us cover the costs of a new appraisal and inspection which we choose a new home to try to buy. We paid for both of those on the other house and unfortunately that is money we will not get back in our attempt at finding a new house. Thank you all for supporting our Princess. Here is a recent picture of her from the children's Christmas program at church.
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$3,624 of $12.5k goal

Raised by 114 people in 32 months
Created April 21, 2014
BG
$25
Ben Goggins
24 months ago
$75
Anonymous
24 months ago
BZ
$5
bryan zapata
26 months ago

hope everything is well :-)

$25
Anonymous
26 months ago
TS
$10
Tobias Speer
27 months ago

Hang in there :)

$5
Anonymous
27 months ago
MM
$5
Matt M
27 months ago

Happy birthday from England :)

JD
$10
Joel Draba-Mann
27 months ago

All the very best. Chin up! From 'Your mates in England'

$20
Anonymous
27 months ago
RM
$50
ruth mckinzie
27 months ago

Happy Birthday Ali Hugs from Remmy

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