live without Ms

$2,605 of $60,000 goal

Raised by 35 people in 55 months


Hi my name is Jean Mcarthur

 and I am raising awareness for HSCT  on behalf of my daughter Mary who has suffered with progressive MS for 15 years. She has lost most of her eyesight and the use of her right leg arm, and along with progressive difficulties with her speech and movement.
Mary is a mother of 3 childrens.

Ever since her diagnosis we have researched every possible treatment with no success, but we refuse to give up and hope that stem cell therapy may be the cure we have been searching for all these years. Unfortunately, being a controversial treatment of any condition it is not available in Australia and she will need to travel overseas with someone to care for her during her treatment as she cannot travel on her own.

Any donation, big or small, will go toward this treatment in the hope that Mary can get some of her quality of life back. Even if she doesn't get back what had been taken from her by this disease, just to no longer watch as she slowly degenerates at only 44 would be a blessing to herself, her children and the rest of our family. Despite all the disappointments she has had, Mary never loses hope and neither do my grandchildren, and she is an inspiration to our entire family.

What We Need & What You Get

We would need about $60.000 This will cover her and her daughter's travel expenses to Moscow where she can receive full HSCT treatment. Here is a link for more information on HSCT treatment, the doctors and sufferers who have gone through this radical new treatment.

We are a proud and independent family who do not ask for money lightly, but this is our daughter and the hope that it can bring her more quality of life. It would mean so much to Mary to be able to accomplish small tasks like grocery shopping, reading, even going on to the computer without the constant help of someone else. We just want her to be able to see her children at their weddings, to hold her future grandchildren, to see their smiles and their first steps. These are the little things that make life so much more meaningful.

If anyone would like to know more about Mary or our family, we are happy to answer any questions.

Other Ways You Can Help

If you can donate we would appreciate even the smallest donations. If you can't donate we ask that you please share this with your family and friends, on Facebook and Twitter. Please, help us help our daughter so she can take back her life from this horrible disease.
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Just to mention we will be having a ceilidh so please share with family and friends so if you can not donate please if you can give an item to auction or help us to get the word out we do need more people involved to help us we only have until end of September to get as much as we can for this life saving treatment ...bless you all PS if you would like to help just email I will give you photos our charity letter ...
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I guess now everyone is wondering what Haematopoietic Stem Cell Transplantation (better known as HSCT) is…LOL I was going to give you all the medical mumbo jumbo but I don’t want to bore you! Basically it’s where the good ole doc in Russia is going to take some Stem Cells out of me and then put me thru several rounds of Chemo. Once the Chemo is done, he will put all my Stem Cells back. It’s like they are resetting my “system” so that it forgets about having MS. Of course this isn’t exactly how it works, but it’s the way I can understand it. LOL There is a very high success rate with the HSCT. Most patients improve in regards to fatigue, memory and thinking problems, they get their walking abilities back, etc. All patients who I have been following have shown that the progression of their MS has stopped completely. Since my MS is getting worse instead of better, this is the best treatment for me. Even if I don’t get my memory and thinking abilities back, it won’t get worse. I’m a true believer that this is going to work and I’ll be back to normal in no time at all.
We can do
My wish is to
Live without MS ......lots of love...........

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We finally got our charity number so we can finally raise more money legally come people share share if you want our charity number just email me I will give to you so can claim on tax ...love to all xxx
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Family fundraising for mother's Russian MS treatment


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Video
Audio
Mary Moore is one of the 23,000 Australians who suffer from multiple sclerosis – the debilitating disease impacting the central nervous system.
By Brianna Roberts

19 Jan 2016 - 7:04 PM UPDATED 21 Jan 2016 - 11:41 AM

Diagnosed more than 17 years ago, Ms Moore’s condition has deteriorated to a point where her speech, vision and mobility are severely affected.

Her family are pinning their hopes on a controversial treatment called haematopoietic stem cell transplant treatment (HSCT) - where bone marrow is injected with a patient's own stem cells to “reboot” the immune system.

Clinical trials at a British hospital have shown promising results in patients with the most common form of the disease - called relapsing and remitting MS.

However, the results are preliminary, and the effectiveness of the treatment on people with the progressive form of the disease, which Ms Moore has, remains unclear.
However, the Moore family says they have exhausted all other options.

Ms Moore is stated to begin the treatment at Russia’s A.A. Maximov centre in April, and her daughter Rebecca said the family is ready to “try absolutely anything”.

"If you live with mum day-to-day, you would to see to the extent that she's affected," she said.

“The main things [affected] is her speech and eyesight … she has the words in her brain but can’t physically get them out.

“It’s extremely difficult. I was six years old when she was diagnosed so I’ve never really known it to be any different.

“It’s really hard watching your mum go through that… you would obviously do absolutely anything to take it all away.”
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Coreen Whyte
55 months ago

Donation made. Good luck x

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$2,605 of $60,000 goal

Raised by 35 people in 55 months
Created April 20, 2014
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$45
Anonymous
28 months ago
$100
Anonymous
34 months ago
IC
$1,200
Isabella Cameron
39 months ago
2
2

Good luck Mary

SK
$130
Sarah Kelbie
41 months ago
2
2

Best of luck with everything :-)

SD
$20
Shelley Dickinson
41 months ago
2
2

Best of luck. Hope the treatment is successful.

Coreen Whyte
55 months ago

Donation made. Good luck x

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