Help Ashton fight Leukemia

$15,540 of $20k goal

Raised by 155 people in 37 months
Jennifer Stahl  DAYTON, OH
Ashton is 5 years old. He was diagnosed with Acute Myeloid Leukemia, or AML, type 1, on March 30th, 2014.  The rate for a cure is 50-65%. The remission rate is 90%, which includes a 5 year term of remission. Right now, Ashton is fighing for his life. He's had blood transfusions, platelet transfusions, a spinal tap, a bone marrow aspiration, a Hickman Subcutaneous port implanted, and he has already started an aggressive regime of Chemotherapy; all in a 4 day period.  The doctor told us to expect to see Ashton in ICU at least once during his treatment; we did not expect to see him there the very next day, April 2nd.  He had an adverse reaction to his surgery. His airway was nearly closed and he was panicking and gasping for air, thrashing around the bed, cords and lines tangling and he was just terrified. The doctors call this "air hunger". 

Ashton will be getting 6 to 8 months of chemotherapy. Initially, he will receive ten days of chemotherapy beginning April 1(day 3) with a one-week break before resuming therapy. If at three months, his progress is not satisfactory, they will revaluate his treatment plan as well as the possibility of a bone marrow transplant.

Ashton is the strongest boy I know and is fighting harder than any grown man.  All Ashton can do is fight. It is up to us to ensure he is recieving the best care possible. However, the best care comes at an expensive price. Please help us to fight this fight with him. Even with insurance and the participation in a study, the financial burden is extreme.  We need all the help we can get, so even a little bit helps.

Thank you for all your prayers and thoughts. They are felt each and every day.
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Update 4
Posted by Jennifer Stahl
30 months ago
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After many months of waiting we got word of a donor for Ashton. He is/was a 26-year-old white male. I have written an anonymous thank you note and he knows how to anonymously reach me. We cannot meet until two years from now.

Ashton came in to Hematology/Oncology at Cincinnati Children’s Hospital on July 10th, 2014 from Dayton Children’s Hospital where he was diagnosed on March 30th with Acute Myeloid Leukemia (AML). He was pronounced as refractory case, as in, not responsive to chemotherapy and placed in a high risk category after two rounds. Doctors assured us he would need a bone marrow transplant in order to live.

He got one.

I had the cells (stem cells) blessed at 12:58 am on August 27, 2014. They were injected over a 4 hour period while he slept. Engraftment took a while to take place (the process of the donor conquering his bad cells). Bad things were happening during this process.

In the case of Graft Versus Host Disease (GVHD), he had all the symptoms early on, but they can look a lot like engraftment. They do not expect GVHD at 30 days, more like 100 days. Ash likes to keep you up on your medical manuals and stats.

He contracted what we all have in small amounts, which is BK. His is high. It is hemorrhagic; lots of blood. He also has GVHd of his intestines, (pain), liver, skin, and eyelids. There is a slight chance of vision loss. There is chance of liver failure; there is chance of kidney failure. There is a chance he cold go ice skating next month.

His skin blistered off. Giant sacks off baseball-sized water/pus filled things hanging off of him, then popping, leaving burn-victim skin. He has been placed in PICU as a result of his skin and breathing problems. He is catheterized and in a diaper. No bowel control. His skin is healing. Ketamine. Morphine. Valium. Ativan, Kytrol. Somthing akin to pot. He has not seen the sun since July 9. No friends. Dark room. He cannot open his eyes.

He is technically in remission from the cancer, but I am waiting for the next bone marrow aspiration to believe it.
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Update 3
Posted by Jennifer Stahl
35 months ago
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Ashton was just placed in the high-risk category today. His first round of Chemo did not produce the desired results so he was immediately placed on the National Bone Marrow Registry. Upon doing this, we learned that not one donor on that list is a match. Therefore, my family and I are reaching out coast to coast and asking people to get tested for a bone marrow match. Ashton's oncologist said the only family member who would be a match for him is a full-blooded sibling, which he does not have. We are still working out the kinks on how to have your donation directly linked to Ashton as opposed to just being placed on the list of donors. In the meantime, we're asking that you think about getting tested.

We appreciate everyone's kind words and thoughts throughout all of this and if you are not comfortable with getting tested, please know that we fully understand. However, if you are interested in getting tested, please email me separately and I will provide the details as I get them. You can contact me through this website.


Thank you again.
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Update 2
Posted by Jennifer Stahl
37 months ago
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Brief Moments in Time
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Update 1
Posted by Jennifer Stahl
37 months ago
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Wow! This is so amazing. In just over 24 hours, we've raised over $2000.00. I'm so humbled and grateful for everyone's support, kind words, prayers and shares. From my family to everyone, we thank you from the bottom of our hearts.

Ashton has had a great past two days. His brother and sister came to visit which lifted his spirits immensely. Also, Uncle Eric and his girlfriend, Lelac showed up and surprised him with an iPad mini! Such a perfect gift for a little boy stuck in a hospital room a majority of the time.

Ashton's white blood cell count is down to 800 from 55,000. This is good in the sense that the chemo is doing what it is supposed to and his body is responding but very scary because he is dangerously susceptible to infections.

Continue to keep our precious boy in your thoughts and prayers. He's being so strong and we're so proud of him. For constant updates and pictures, please check out his website at www.ashtonupdate.org
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Read a Previous Update
Hailey Hamilton
35 months ago

I am so sorry!! I wish I could help, even $20.00! But I don't have enough money. Prayers for him and I hope he fights off this nasty leukemia and lives well and happy! I wish stuff like this never has happened. I hope Ashton has the tip top best care anyone could offer. I feel terrible for his parents!! Love, Hailey :)

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Jennifer Stein Hamilton
36 months ago

My heart is breaking. I wish I could donate but I don't have anything. I will send as many prayers as it takes, though. My heart is with you Jen, and Candice is an amazing friend for sharing this on FB. This little boy is such a fighter and an inspiration. I'm in tears seeing him hold that teddy bear. I don't know what to say. The pain is so intense. Believe me when I say... I am here for you all the way. I am so, SO sorry. Please God let him live.

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Lauri Halterman
37 months ago

We love you Ashton!

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Emilia Muniz
37 months ago

Ashton is in my prayers

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$15,540 of $20k goal

Raised by 155 people in 37 months
Created April 4, 2014
$50
Anonymous
29 months ago
$1,000
Anonymous
29 months ago
ND
$100
Nicole Daniels
30 months ago

This is Lily's friend - thinking of Ashton.

SH
$20
stacye Heaton
30 months ago
$50
Anonymous
30 months ago
NR
$100
Noreen Rich
30 months ago

This little guy's fight is amazing and humbling. My thoughts are with him and his family. Get better Ashton.

SA
$100
sherri andrews
31 months ago
RA
$50
Robert Andrews
32 months ago

Wish I could give more & more often . . . .

MD
$200
Miriam Dani
32 months ago
$100
Anonymous
34 months ago
Hailey Hamilton
35 months ago

I am so sorry!! I wish I could help, even $20.00! But I don't have enough money. Prayers for him and I hope he fights off this nasty leukemia and lives well and happy! I wish stuff like this never has happened. I hope Ashton has the tip top best care anyone could offer. I feel terrible for his parents!! Love, Hailey :)

+ Read More
Jennifer Stein Hamilton
36 months ago

My heart is breaking. I wish I could donate but I don't have anything. I will send as many prayers as it takes, though. My heart is with you Jen, and Candice is an amazing friend for sharing this on FB. This little boy is such a fighter and an inspiration. I'm in tears seeing him hold that teddy bear. I don't know what to say. The pain is so intense. Believe me when I say... I am here for you all the way. I am so, SO sorry. Please God let him live.

+ Read More
Lauri Halterman
37 months ago

We love you Ashton!

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Emilia Muniz
37 months ago

Ashton is in my prayers

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