Help Ashton fight Leukemia
Ashton will be getting 6 to 8 months of chemotherapy. Initially, he will receive ten days of chemotherapy beginning April 1(day 3) with a one-week break before resuming therapy. If at three months, his progress is not satisfactory, they will revaluate his treatment plan as well as the possibility of a bone marrow transplant.
Ashton is the strongest boy I know and is fighting harder than any grown man. All Ashton can do is fight. It is up to us to ensure he is recieving the best care possible. However, the best care comes at an expensive price. Please help us to fight this fight with him. Even with insurance and the participation in a study, the financial burden is extreme. We need all the help we can get, so even a little bit helps.
Thank you for all your prayers and thoughts. They are felt each and every day.
Ashton came in to Hematology/Oncology at Cincinnati Children’s Hospital on July 10th, 2014 from Dayton Children’s Hospital where he was diagnosed on March 30th with Acute Myeloid Leukemia (AML). He was pronounced as refractory case, as in, not responsive to chemotherapy and placed in a high risk category after two rounds. Doctors assured us he would need a bone marrow transplant in order to live.
He got one.
I had the cells (stem cells) blessed at 12:58 am on August 27, 2014. They were injected over a 4 hour period while he slept. Engraftment took a while to take place (the process of the donor conquering his bad cells). Bad things were happening during this process.
In the case of Graft Versus Host Disease (GVHD), he had all the symptoms early on, but they can look a lot like engraftment. They do not expect GVHD at 30 days, more like 100 days. Ash likes to keep you up on your medical manuals and stats.
He contracted what we all have in small amounts, which is BK. His is high. It is hemorrhagic; lots of blood. He also has GVHd of his intestines, (pain), liver, skin, and eyelids. There is a slight chance of vision loss. There is chance of liver failure; there is chance of kidney failure. There is a chance he cold go ice skating next month.
His skin blistered off. Giant sacks off baseball-sized water/pus filled things hanging off of him, then popping, leaving burn-victim skin. He has been placed in PICU as a result of his skin and breathing problems. He is catheterized and in a diaper. No bowel control. His skin is healing. Ketamine. Morphine. Valium. Ativan, Kytrol. Somthing akin to pot. He has not seen the sun since July 9. No friends. Dark room. He cannot open his eyes.
He is technically in remission from the cancer, but I am waiting for the next bone marrow aspiration to believe it.
We appreciate everyone's kind words and thoughts throughout all of this and if you are not comfortable with getting tested, please know that we fully understand. However, if you are interested in getting tested, please email me separately and I will provide the details as I get them. You can contact me through this website.
Thank you again.
Ashton has had a great past two days. His brother and sister came to visit which lifted his spirits immensely. Also, Uncle Eric and his girlfriend, Lelac showed up and surprised him with an iPad mini! Such a perfect gift for a little boy stuck in a hospital room a majority of the time.
Ashton's white blood cell count is down to 800 from 55,000. This is good in the sense that the chemo is doing what it is supposed to and his body is responding but very scary because he is dangerously susceptible to infections.
Continue to keep our precious boy in your thoughts and prayers. He's being so strong and we're so proud of him. For constant updates and pictures, please check out his website at www.ashtonupdate.org
I am so sorry!! I wish I could help, even $20.00! But I don't have enough money. Prayers for him and I hope he fights off this nasty leukemia and lives well and happy! I wish stuff like this never has happened. I hope Ashton has the tip top best care anyone could offer. I feel terrible for his parents!! Love, Hailey :)
My heart is breaking. I wish I could donate but I don't have anything. I will send as many prayers as it takes, though. My heart is with you Jen, and Candice is an amazing friend for sharing this on FB. This little boy is such a fighter and an inspiration. I'm in tears seeing him hold that teddy bear. I don't know what to say. The pain is so intense. Believe me when I say... I am here for you all the way. I am so, SO sorry. Please God let him live.
We love you Ashton!
Ashton is in my prayers