Help Us Save Baby Rachel

$35,202 of $34k goal

Raised by 448 people in 29 months
Salem Pearson-Thorup   CLEARFIELD, UT

Meet Rachel! She is our 20 month old angel with brain cancer. In January (2014) she had a tumor the size of small orange surgically removed from her brain. She was diagnosed with classic medulloblastoma, which for a child her age gives her only about a 30% chance of survival (with typical conventional treatment).

Because of Rachel's cancer, our family had to move away from the sustainable farming internship we were doing in Arizona to have Rachel cared for at Primary Children's Hospital in Salt Lake City (where our insurance was accepted). All of our career plans were put to a screeching halt and, needless to say, our income was severely impacted and our savings are gone. It is all we can do right now to care for Rachel and her dear brother and sister.

Update: Last week was an intense week, to say the least. Rachel started having symptoms again, which is scary, but we also had an opportunity open up that we need your help with. We were told that there are some ways that we might be able to get Rachel treated with antineoplastons. Now, we know that most people that have heard of ANP's have also heard of the controversy around them, but we have looked into them and feel confident that this is Rachel's best chance at a long life as well as higher quality of life. We encourage others to investigate ANP's in detail and watch the "Burzynski" documentaries, as they are very informative. We have talked to families of some of the patients of Dr. B. and have prayed extensively about this option. We can't just look it over because it is controversial. The fact of the matter is that, despite extensive efforts to put Dr. Burzynski out of business or take away his license, his clinic is still open and he is still practicing medicine within the law. The FDA has even approved several phase III clinical trials- that doesn't happen for drugs that are failures. Those who have reallly seen the data know that ANP's are a promising treatment, especially for brain tumors. The response rate for ANP's with medulloblastoma is at least the same as it is for conventional therapy within Rachel's age & risk category (and that is with many patients that have already failed chemo/radiation). The plus side is this: ANP's have no long term side effects and are much less toxic (there is possibility of certain kinds of short term toxicity). We compared this to our 8+ pages of side effects from the chemo and figure, at the very least, ANP's are worth a try. We strongly encourage all of you, whether skeptical or not, to research ANP's. It is a topic that deserves more attention. While I don't necessarily discourage you to read what the skeptics say, I am only listing sources here that I have personally seen verification of the information provided. It is hard to argue with the multiple adult survivors of childhood brain cancers that are/were normally fatal. Dustin Kunnari, for example, is living proof that ANP's work. We're not saying we think they are a "cure all", but the real, verifiable evidence is rather compelling- and hopeful.

While Dr. Burzynski is not allowed to charge for the ANP's (but must charge for other clinic expenses- he has not recieved ANY grant money for research), any of our options for securing them for Rachel will be somewhat expensive- but no price is too high for our precious baby's life. We will be working on various types of fundraising, but we must first work to find the avenue through which Rachel can be treated. Her time is running short. We need your help & support to finish raising the funds needed to treat Rachel. Most of all, we need your prayers.

Very recently, the FDA lifted the clinical hold on the Burzynski Clinic using ANP's, but there are stringent restrictions on which cancers Dr. Burzynski is allowed to treat. However, when Rachel's medical records were reviewed and it was seen how quickly her cancer is growing, there was consensus that she might qualify for an emergency IND (investigational new drug) exception. So, we are submitting an application for emergency compassionate access with the FDA. Our hope and prayer is that they will approve it the first time. As soon as we have approval for access to ANP's, Rachel will start treatment. 

Please help us save our daughter's life. Any amount you can give will make a difference, and we are happy to spend the rest of our lives paying it forward! Please help spread the word!


Here are links for information on ANP's:

http://www.anpcoalition.org/

http://www.burzynskiclinic.com/scientific-publications.html

http://www.burzynskipatientgroup.org/

http://www.burzynskimovie.com/

http://articles.mercola.com/sites/articles/archive/2011/06/11/burzynski-the-movie.aspx




{This is what we previously tried to do to treat Rachel, but we were told the hospital in Switzerland is full so we must seek treatment elsewhere. Please read below for the update. [After a lot of reflection, research and even more praying & fasting, we have concluded that the best chance for increasing the odds of Rachel's survival is a treatment plan carried out in Basel, Switzerland at the University Children's Hospital. It will be expensive for us, and will break up the family for some time while I live in a tiny apartment near the hospital, and Richard and the kids live here in Utah with my mother. We're obviously not thrilled with this arrangement, but we are convinced that it is the best shot we have of saving our precious Rachel.] }

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Update 29
23 months ago
We express our deep gratitude and love for all that have supported us and lifted us through this trial we continue to endure. Even those that have had (and may continue to have) their doubts about what we have been guided to choose for Rachel and our family have shown compassion, love and support- this is true charity. We want to thank everyone again for praying, sharing, donating and supporting our cause. This trial is not over yet, so please continue to pray for our sweet Rachel.

It is with great sorrow that we report that Rachel's condition has deteriorated to a point that we have had to resort to chemo for palliative care. We still have hope that she will come through this and go on to live a long and vibrant life, but we are also very aware that this is not a very likely outcome.

What this means as far as antineoplaston therapy is that our application approval is rescinded and no longer valid. We would like to give many thanks to the clinic in Seattle, the Burzynski Clinic and the ANP Coalition for all of their hard work (which, by the way, was done free of charge). There were many hours of both work and personal time spent by many people in these organizations working to help us be able to get Rachel on the antineoplastons, which we believe offered the best hope. We urge all of you to help promote these organizations and donate to them when you are able. They help many families and children, but can't do it alone. Their battle has much resistance and we know they both deserve and could use more friends and supporters. It is easy to find negativity and flaws of those in the lime light- this we have learned well from being in our own sort of lime light. While most people have been kind and supportive, there has been a great deal of negativity projected on us by a few so we understand the kind of battle this group of genuine, kind-hearted people endure. Their battle is more than scientific or political, it is cultural. Cancer treatment will not change until more people demand for it to change.

It is easier to insist on those changes when life's circumstances don't push one into a corner. Please don't wait to become involved. There are so many people going through similar things as we are and have been through. Service blesses those giving it more than those receiving it- never be afraid to serve. It nourishes the soul and draws the human family closer together and strengthens us all exponentially against the powers of darkness.

We will shut this page down in the next week or so. We are no longer seeking donations, but would love to share Rachel's story. We hope to soon have a blog, but until then, most updates will be posted on our Facebook page "Yay For Rachel". We know that many of you donated specifically because we were seeking ANP therapy, so we will be donating a bit of the funds raised here to the ANP Coalition and the clinic in Seattle. There are many other families still seeking approval and funding so they can get ANP therapy.

Please keep us in your prayers and keep serving others as you have served us! Bless you all!

www.anpcoalition.org
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Update 28
23 months ago
There has never been a more desperate time than now. We need your help right away. We must raise the money this weekend for Rachel's treatment options to be more than merely palliative.

Please donate what you can and share with everyone you can.
Make a plea to all you know on Rachel's behalf. If just 2500 people donated $10 we'd reach our goal. $10 is a movie ticket, a few gallons of gas, a few dozen sodas.

We are working really hard on our end, to not only take care of Rachel and her siblings, but to cover our regular financial needs, as well as create avenues of ensuring that we can continue to afford Rachel's treatment.

We just need under $25K more to start her treatment. Richard and I probably have a total of 1200 friends and family on FB, twitter and e-mail that could see this. If even a third of you personally asked 5 of your own friends to donate just $10 this weekend, I know we'd reach our goal.

How can you say "no" to this sweet girl?
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Update 27
23 months ago
For those of you that are still unsure about antineoplastons, here are a few good links:

This one is the first Burzynski documentary:

https://vimeo.com/24821365

This one is the story of a little boy that had medulloblastoma:
http://www.ouralexander.org/ (We really like the parts that expose the truth about chemotherapy and brain tumors.)

I had the good fortune of talking to Jack Kunnari today. He is the father of Dustin Kunnari who was diagnosed with medulloblastoma at age 2 and he was treated successfully with antineoplastons. Read his story and it will be apparent that it wasn't a spontaneous remission (which the CDC says only happens 1 in every 800,000 cases).

Please keep sharing!!! <3
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Update 26
23 months ago
Thank you so much for those of you sharing & donating! We are so humbled to be reminded of how many amazing people we are blessed with in our lives. Let's keep this campaign going till we get Rachel on the treatment she needs!
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Read a Previous Update
Help spread the word!
 3.3K total shares
Monica Park Erickson
23 months ago

I second Kim Napper. He treats me & my kids. I have been dealing with cancer. Would be worth trying while waiting. The number Jane posted is correct. Prayers for you & yours.

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Jana Koskie
23 months ago

There is a man named Kim Napper in SLC who is a homeopath who treats lots of people with cancer and cured his own years ago with homeopathy. A close friend of mine is currently treating her colon cancer with his remedies and doing very well. Call him at (801) 364-3052. Best of luck!!! Hang in there, it must be such a trial for your family.

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Amber Thompson
28 months ago

You must research DR Bruzinski watch this documentary!!! His methods are non toxic and he has amazing success with child brain cancer! Please watch the this movie you will be moved and your baby won't have to suffer through kemo and radiation Watch this!! http://vimeo.com/24821365

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Crystal Jeffs
28 months ago

I FBed it on, I also G+ed it. I have about 500 random contacts in my G+ account, in a "networking" circle. I don't normally pass things on that way, but I figured this was worth it. I had no idea you were dealing with this, hon. I didn't even know you'd moved to AZ! Email me, kay? I miss you!

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Michelle Krummey
28 months ago

Shared with all my friends in Wisconsin! God bless!

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Naomi Thomas
28 months ago

Love baby Rachel! Happy to help in any way we can!!

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$35,202 of $34k goal

Raised by 448 people in 29 months
Created March 7, 2014
Salem Pearson-Thorup  
  Medical   CLEARFIELD, UT
$15
Anonymous
21 months ago (Monthly Donation)
$10
Anonymous
21 months ago (Monthly Donation)
$15
Anonymous
22 months ago (Monthly Donation)
BP
$10
Beth Putnam
22 months ago (Monthly Donation)
$10
Anonymous
22 months ago (Monthly Donation)
$10
Anonymous
23 months ago
AH
$20
A A ron H
23 months ago

We'll pray for that sweet girl.

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AM
$25
Alyssa Morris
23 months ago

I love you and your sweet family and wish you the best.

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$15
Anonymous
23 months ago (Monthly Donation)
$100
Anonymous
23 months ago
Monica Park Erickson
23 months ago

I second Kim Napper. He treats me & my kids. I have been dealing with cancer. Would be worth trying while waiting. The number Jane posted is correct. Prayers for you & yours.

+ Read More
Jana Koskie
23 months ago

There is a man named Kim Napper in SLC who is a homeopath who treats lots of people with cancer and cured his own years ago with homeopathy. A close friend of mine is currently treating her colon cancer with his remedies and doing very well. Call him at (801) 364-3052. Best of luck!!! Hang in there, it must be such a trial for your family.

+ Read More
Amber Thompson
28 months ago

You must research DR Bruzinski watch this documentary!!! His methods are non toxic and he has amazing success with child brain cancer! Please watch the this movie you will be moved and your baby won't have to suffer through kemo and radiation Watch this!! http://vimeo.com/24821365

+ Read More
Crystal Jeffs
28 months ago

I FBed it on, I also G+ed it. I have about 500 random contacts in my G+ account, in a "networking" circle. I don't normally pass things on that way, but I figured this was worth it. I had no idea you were dealing with this, hon. I didn't even know you'd moved to AZ! Email me, kay? I miss you!

+ Read More
Michelle Krummey
28 months ago

Shared with all my friends in Wisconsin! God bless!

+ Read More
Naomi Thomas
28 months ago

Love baby Rachel! Happy to help in any way we can!!

+ Read More
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