Support my journey through cancer
Then I was diagnosed with stage 2 breast cancer. I had a double mastectomy this month. When I developed some new pain, I went to the emergency room. They found that the cancer had already spread to my liver and now I'm stage 4.
I would still like to run my nonprofit, provide services to others, be married and have children. But now I have to change my plans. I am starting treatment immediately. I’m not going to have time to freeze any eggs or embryos first (as I originally planned) and for now I can’t really think about having children. Maybe later. My fiancé and I are planning a much smaller wedding in May. And I am going to do all I can to stay healthy during my chemotherapy and hormone treatments so that I can eventually get back to my job.
The problem is that this could not have come at a worse time for me financially. Both my fiancé and I are self-employed. If I can’t work for a few weeks, I’ll have no income. And when he’s taking care of me, he can’t work as much either. We have health insurance like we’re supposed to, but our deductibles are high ($5000) and my own out-of-pocket maximum this year is $6,850. I’ve learned that I may have to go out-of-network for the specialty care and consultations I need, and those bills will add thousands more to our out-of-pocket costs. And we still have a mortgage and other bills to pay.
We are economizing as best we can. Our families and many friends are also helping us out. But the healthcare bills we have right now still have to be paid, and somehow we need to get the money to pay those bills and more to come over the next weeks and months.
So, as difficult as this is, we are asking our friends and their friends for help. We’d like to try to raise at least $25,000 to help us through this time. And we promise that if we raise it, we will never forget to pay it forward in the future, when our friends and their friends need help from us.
You can also subscribe so you can get email notifications just like you do here. Again thank you all for your support and truly it helps!
The new year also means new deductibles and more money out of pocket to continue to battle my stage 4 breast cancer. I want to thank all of you for your continuous support so far.
January 2017 will be a very busy month for me medically as I continue on Taxol ( a type of chemotherapy), as well as shots of Nuelasta to increase my blood counts, my bone shot a painful treatment used to strengthen my bones since they've been weakened by my breast cancer metastases to my pelvis, rib cage, back and collar bone and lastly my lupron shot that keeps me in menopause that is followed with my very fun hot flashes and the occasional mood swings that could be a figment of my husbands imagination!
Two weeks from today I will go back into the hospital to finish my breast reconstruction as well as have another liver biopsy, which will be sent to Sloan Kettering for genomic testing. I do not know what to expect pain-wise from the reconstruction surgery, but I have had a liver biopsy before and I know that it will be uncomfortably painful. I’m prepared for the reality that my body will not bounce back the way it used to due to the chemo. I’m also very aware that I need to be extremely careful while recovering because infection can be very deadly to people with stage 4 cancer, like me. On Wednesday, Jan. 18, (the day before my 31st birthday ) I will have my quarterly CAT scan, and will be praying for positive results as I celebrate my birthday weekend with family.
This month I posted an update about Brandi, a remarkable young woman who passed away from a breast cancer-related infection and who touched my life in the most positive way. Although I never met her, she and I shared the bond of stage 4 cancer and she was an amazing person. It's so difficult to watch as others with my same disease suffer, but their stories and posts and positive attitudes help me learn about my disease, how to cope with it, and how to hope for the future.
Brandi McWade passed away yesterday Jan 6th 2017. I never had the honor to meet her but she too believed in sharing her story to help empower woman like me to keep our heads up, stay positive and stay alive. Brandi’s last wish while being surrounded by family was for all donations or flowers be donated to me.
I’m so sad about her passing. It’s absolutely terrifying to see amazing woman with metastatic breast cancer pass away. It’s beyond humbling to be in her final thoughts. As 2017 starts, I am faced with many uncertainties, possibilities of new treatments, more procedures and whatever else cancer has in store. Brandi was an avid advocate for metastatic breast cancer and didn’t hold back sharing her story. And in her honor I will share her story, my own and others to continue to share the life so many of us have to face.
Learn about Brandi’s fight here: https://www.gofundme.com/brandaid
I hear your struggle I have been battling medical issues since I was 19 when I was diagnosed. With that being said I sadly cannot donate. I have a go fund me of my own, but I can give you prayer and send energy your way.
I am praying for you and know that you can kick this cancer and I am so sorry that you have to go through this, just know you got a lot of people who care about you. Sending so much prayers for you
god love you
Will donate next week. Praying the best for you and your family