Jude {Brave Little Warrior}

$34,989 of $40,000 goal

Raised by 366 people in 59 months
MS
Megan Sewell  FLORENCE, AL
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Jude's Story

On August 11, 2013 Hannah and Sully Peters received the exciting news that they were having their first baby!

By the 13th week of Hannah’s pregnancy the baby was diagnosed in utero with a form of skeletal dysplasia. They were told by three different specialists that what he had was Achondroplasia so they began to prepare themselves for that diagnosis and studied everything about itthere was to know.

At 14 weeks, Hannah suffered a fall and was rushed to the emergency room. She was told that she had leaked some amniotic fluid but not enough to cause any harm.

Two weeks after her fall, she and her sister were rear-ended by a driver not paying attention which shook up Hannah and the baby.

Hannah’s baby shower was on February 22, 2014 and the theme for the shower was "Brave Little Warrior." During the baby's shower Hannah’s water broke and she started losing a significant amount of blood. She was then rushed to the hospital again by ambulance. There she was told that she was losing a vast amount of amniotic fluid and that she had suffered a partial placental abruption. They prepared her for an emergency c-section with little hope that the baby would survive. At that moment her concerned sister Amber Rhodes stared a Facebook page (Praying for Jude Sullivan Peters) to inform friends and family and have them pray for Hannah and Baby Jude. After much prayer and many hours, days and nights of Hannah being a high risk patient in CMC’s antepartum high risk unit, Hannah miraculously continued to carry the baby.

Soon after, Hannah and Sully saw another specialist who told them that she thought Jude might have something much more severe than Achondroplasia; a form of skeletal dysplasia that would not be compatible with life outside the womb. Many people started to pray around the world for Jude's precious life.

The Lord intervened and Hannah carried Jude full term. Jude wasn’t born until 40 weeks of gestation! They had little hope that Hannah would even be able to hold Jude or that he would breathe on his own but he continued to defy the odds!

When Jude was just 2 days old, he went for some testing at the hospital and Hannah and Sully were told by doctors that they believed the form of skeletal dysplasia he had was the lethal form of RCDP (Rhizomelic Chondrodysplasia Punctata). They said that with this condition there is usually heart defects, neurological damage, and kidney problems. However, Jude’s heart, neurological and kidney scans came back great!

Jude does have chronic pain due to a cartilage deficiency, his hips and shoulders are out of place and he does have congenital cataracts.

Thursday evening, May 1, 2014, Jude suffered two seizures and periods of unresponsiveness. He was rushed to the ER at Levine Children’s Hospital where he was hospitalized for almost two weeks. There they found he was aspirating and was unable to eat by mouth. He is currently on a feeding tube and awaiting more testing.

Jude, his parents and grandparents then traveled to AI DuPont Medical Center in Wilmington, Delaware for further tests and treatment. There it was confirmed by specialists in the field of Skeletal Displasia that Jude did indeed have RCDP.
There Jude had an MRI that showed he also has a spinal cord tether, spinal stenosis and an unstable neck.

Jude has started the process of physical therapy, occupational therapy and speech therapy and has had one cataract removed and will have the left one removed next week at Duke Medical Center. Jude has a wonderful team of specialist working with him and has many procedures and surgeries in his future without a miracle.

Hannah and Sully along with family, an array of friends and a vast community online have dedicated many hours of prayer believing for healing for this precious baby.

Please stand with us in prayer for Jude, Our Brave Little Warrior and believe with us for complete healing as this precious little guy fights for his life.

Follow Hannahs blog here
http://hannahkatelynpeters.wordpress.com/

Help fund Jude here
http://www.gofundme.com/73q23g

hannahkatelynpeters.wordpress.com
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Update 38
Posted by Megan Sewell
43 months ago
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We are asking Jude's Tribe of followers to share this post to help us raise awareness for RCDP

Meet Jude!

Jude is 14 months old and was born with a lethal form of dwarfism called Rhizomelic Chondrodysplasia Punctata (RCDP) He is one of 54 diagnosed worldwide.


We are desperately working hard to raise awareness for RCDP to save the life of Jude and his 53 RCDP brothers and sisters.

The FDA has just approved a drug that they think could be a possible cure. But we need funding and in order to get that, we need to make people aware of RCDP.

Jude is currently hospitalized with neurological and GI issues and we have been through lots of treatments and tests.

Please help us pray for Jude and share his story by simply sharing this photo with these hashtags ‪#‎prayforjude‬ ‪#‎bravelittlewarrior‬ ‪#‎HOPEforRCDP‬

Help us raise awareness for RCDP and find a cure. Thank you!

- Jude's mama
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Update 37
Posted by Megan Sewell
43 months ago
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Update: Please continue to pray!

Baby Jude has been blessed to have the very best care at Levine Childrens Hospital, he just falls in love with his nurses and they fall in love with him. We always feel so cared for and Jude is always treated with gentleness and wisdom, his chips team takes the time to understand his diagnosis and treat Jude accordingly. This was Jude's weekend day nurse Shawanda, and she's been so wonderful to Jude and to all of us.

Jude is doing much better today they started his tube feeds back at 6ml per hour of pedialyte which is very slow, he wasn't able to tolerate this earlier in the week but today he tolerated it and they were able to increase it gradually to 16ml per hour and feel confident we'll hit his daily goal of 22ml per hour overnight. So far he's had 90ml total (which is about 3 oz)

It's a slow start but a great one considering on Thursday he was unable to tolerate 3ml total with out excruciating pain. The goal tomorrow will be to get Jude back in his tube feeds of breast milk up to 52 ml per hour for his bolus feeds.

Jude has been smiling, cooing and has enjoyed being cuddled today. He was so happy to be off the EEG, it did cause some breakdown on his little scalp but it will heal in time. His neurologist feels confident that the seizure medication They have put Jude on is doing it's job and decreasing the epileptic activity they were seeing yesterday.

Tomorrow Baby Jude will have a MRI we are praying he will be calm and still for it so they will not have to sedate him. Intubation comes with its own set of problems for Jude. Please pray he is cooperative and there is no need for sedating him. Also pray that his stenosis has not increased.

Thank you so much for your continued prayers we certainly feel them and believe they are being answered.

I'm up early this morning waiting for them to take me for my MRI, I'm having fun with my new balloon from my friend Candace from My Hospice Kidspath Team. I'm not afraid because I'm brave. Mommy and Grandma tell me I have to be super still and not cry. Please pray I can continue to be brave so I won't need to be sedated
Sweet Little Warrior
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Update 36
Posted by Megan Sewell
52 months ago
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Update from Jude's family:

Jude is doing great today, tolerating his normal feeding schedule, needing less pain medication and breezing through all his therapy. He knows if he wants to go home he needs to have great day with no setbacks. Hopefully we go home tomorrow!
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Update 35
Posted by Megan Sewell
52 months ago
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From Jude's family:

Jude had a music therapist come by today and serenade him with "This Old Man" and "Hey Jude" we were able to watch his blood pressure lower on the monitors. Levine Children's Hospital goes above and beyond to ensure the best care of baby Jude!

And....Grandpas back from Canada!!
Jude's personal lullaby!
Grandpa is back!
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Read a Previous Update
Russet Klasner
52 months ago

Praise God and praying that Jude tolerates the bolus feeds. Love to his wonderful parents.

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Russet Klasner
52 months ago

I pray for God's healing, love and strength for this precious child and his family.

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Yvonne Cartwright
52 months ago

I HAVE come to feel that Jude is, in fact, my own child. And I'm praying with all the strength and conviction the Holy Spirit has given me that JUDE WILL BE OKAY!!!!!

+ Read More
Laura Lilgreen
52 months ago

My family and I BELIEVE and STAND with Jude and his family for TOTAL healing.

+ Read More
Doni Walker
57 months ago

Your family is in our prayers.

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Kris Calkins
57 months ago

The video was beautiful and so is Jude. I love everyone in your family as if you are my family. That's what being a part of the family of God allows. Will see you soon and my prayers will not stop flowing forth everyday. I love you Peters, Collins and Rhodes!

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Heidi Welker
59 months ago

Good job Hannah for keeping Jude all tucked in so he can keep getting stronger. I read the comment about the Dye family and their Jude and it made my heart leap for all of you. God will always give you and Sully the next right step. Never give in to fears or discouraging forecasts, for that is just the place and time that the tide will turn, the storm will settle and your sails will be filled again.

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$34,989 of $40,000 goal

Raised by 366 people in 59 months
Created February 24, 2014
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PC
$50
Patricia M Cotton
11 months ago

May God bless you and your family.

GG
$3,500
Gulnyk Gill
13 months ago
MR
$700
Maudilee Roscoe
16 months ago
TB
$25
Tom Buchanan
18 months ago
$5,000
Anonymous
18 months ago
1
1
BH
$25
Brendon Herrera
18 months ago
$25
Brendon Herrera
18 months ago

His story has brought back a part of my faith i had forgot about. He's a wonderful little boy.

BH
$25
Brendon Herrera
18 months ago

His little smile is the best!

CT
$10
Clarytzel Tostado
20 months ago
KH
$50
Katie Helton
20 months ago

Praying for your family, Jude looks like a strong little warrior!!! Trust in the Lord.

Russet Klasner
52 months ago

Praise God and praying that Jude tolerates the bolus feeds. Love to his wonderful parents.

+ Read More
Russet Klasner
52 months ago

I pray for God's healing, love and strength for this precious child and his family.

+ Read More
Yvonne Cartwright
52 months ago

I HAVE come to feel that Jude is, in fact, my own child. And I'm praying with all the strength and conviction the Holy Spirit has given me that JUDE WILL BE OKAY!!!!!

+ Read More
Laura Lilgreen
52 months ago

My family and I BELIEVE and STAND with Jude and his family for TOTAL healing.

+ Read More
Doni Walker
57 months ago

Your family is in our prayers.

+ Read More
Kris Calkins
57 months ago

The video was beautiful and so is Jude. I love everyone in your family as if you are my family. That's what being a part of the family of God allows. Will see you soon and my prayers will not stop flowing forth everyday. I love you Peters, Collins and Rhodes!

+ Read More
Heidi Welker
59 months ago

Good job Hannah for keeping Jude all tucked in so he can keep getting stronger. I read the comment about the Dye family and their Jude and it made my heart leap for all of you. God will always give you and Sully the next right step. Never give in to fears or discouraging forecasts, for that is just the place and time that the tide will turn, the storm will settle and your sails will be filled again.

+ Read More
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