Help Paighten Smile Again!

Joe and I are reaching out to our community and FB friends and family in hopes of some help. Our 8 year old daughter Paighten has been extremely sick since October 20/18. She was a Very active 8 year old. She was in dance (at Miss Maddi’s Dance), Awanas (Little kids youth group at SGA) she had sleepovers, went to VBS, Sunday school at church, had numerous play dates, went to movies, loved swimming, quadding,jumping on the trampoline, summer camps and going to Maple Springs Bible Camp. The constant joke was when her big blues opened so did her mouth. Paighten Never Stopped and absolutely loved life. Everything came to a grinding halt as of October 20th. If we were able to get 1 hour a day of smiles, cuddles and conversation out of her we felt very blessed. I started taking her to the Dr’s when there wasn’t any improvement and her health kept declining. I was labeled as “That Mom” that’s just freaking out. We took Paighten to the Stollery, and we were referred to specialists. She’s had MRI’s (Grey nuns), CT’s (Stollery), eye exams (Royal) lots of bloodwork And has had numerous misdiagnosis. One of which was that she had a migraine. The head of neurology at the UofA along with 2 other dr’s sat Joe and I down and said he seriously had not a clue what was wrong with our daughter and said “Hopefully it’ll just go away, kids are resilient.” While she was admitted we saw 27 Dr’s in one day. Not one had an idea of what could be wrong with our little girl. Nothing was adding up. We had a specialist say Paighten was making all the symptoms up in her head, that all she wanted was attention and she needed to go to a psychologist. We had our GP tell us Paighten needed physiotherapy (because her neck was stiff) and she’d be totally fine after a couple treatments, physiotherapy didn’t work, it hurt her even more. We went through 3 dr’s before the 4th finally agreed to get some specific testing done, the tests went to Toronto but the provincial government shut us down to follow through with the testing. They were too expensive. All there was, was doors slamming in our faces. Meanwhile, our little girl was getting worse. In desperation I started searching. I ended up finding a Lyme Disease specialist and we got a diagnosis for Paighten (and I) which wasn’t the greatest but we now had a base. Paighten and I have late stage Neurological Lyme disease. She also has 9 different parasites that are eating away at her bone marrow, red blood cells, there’s spinal fluid pooling in her brain, white blood cells pooling in her eyes, they are attacking her nervous system, there’s brain damage, they’re effecting her muscles she’s says it feels like they’re burning, they are eating and effecting the brain cells. There’s a tumour at the base of her skull as well, which is causing her neck to be stiff. During the day she’s unable to see at any given time from 10-60 seconds long. The parasites are effecting her frontal lobe of her brain and she has Bell’s palsy on her left side at any given time. (Just to name a few symptoms) And she has co- infections which complicates matters more. She’s basically being eaten from the inside out. I’m carbon copied to her, because I was bitten by a tick 9 years ago. All of the parasites are found in Alberta because I was bitten from a deer tick in Stony Plain Alberta. I’ve been misdiagnosed time and again so when we got pregnant the disease passed through the placenta and she in turn got Lyme disease. We had no idea at the time. To kind of understand late stage Nero Lyme disease (in a child) is like stage 4 brain cancer that can never be cured but can go into remission. Depending on the damage done by the parasites. We were referred to a Dr in Richmond B.C who will see both of us. We go at the end of February to get more testing done, medication and antibiotics for her. (We can’t afford treatments or medication for me at this time so we’re focusing on her.) To see the Dr. will be extremely expensive (to say the least) yet, so worth it in the long run. There’s a gentleman in Stony Plain who has Lyme disease as well and he’s connected us with herbs which will help us tremendously in the process of remission. Nothing is covered by AHC yet herbs and tinctures are highly recommended by Dr’s and other Lyme disease patients alike. He saved us hundreds of thousands of dollars, years of searching, trial and error. This is going to be an extremely tough road. Not only medically but financially. Nothing is covered by Alberta Health Care. Apparently you can’t be bitten by a tick here. The government and Dr’s won’t acknowledge the fact that ticks are everywhere and they end up gaslighting their patients. Some patients are misdiagnosed for years. I’ve been misdiagnosed for 9 years.It will get worse before it gets better, we have been warned by many other Lyme disease patients. The ‘herxing’ process will be horrendous. We are financially strapped. Our savings has been drained and we are in process of selling off material items to be able to see the specialist, get treatment and medication for our little girl. To date Paightens treatment plan looks like this: Pair magneticsHands 2 Healing (reiki, and some energy movement. The practitioner never touches her, which is great because every single cell, muscle and joint hurts her) Rife Machine Therapy Herbs (disgusting but is worth it)Tinctures Vitamins MineralsColloidal silverInfrared Saunas Baths everyday (Epson salts 2- 3cups, and once a week one whole bottle of peroxide) for detoxification and to help the muscles relax. We have had to completely changed our diet to the Wahls diet. So no gluten, only organic, no eggs, no dairy, no unnatural sugars (parasites Love sugars), and be careful of night shades. Just to name a few This diagnosis has taken its toll on our family. We were definitely not prepared for the ripple effects it’s had on us. Not only financially but emotionally and physically. We will have on going costs throughout our Lyme disease journey in addition to the initial costs we’ve already come up against. Anything you’re able to donate it much appreciated and will go towards medication, treatments, antibiotics, dr appointments, hotels, vitamins, minerals and anything unexpected we may encounter. We’re praying with your help we can get Paighten the help she needs, so she can dance again, go to school, have play dates, have sleepovers, love life And Smile again!! Thank you so very much! Please feel free to share Sincerely, Joe and Rebecca Billey