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Team Trattles

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My sister-in-law Lisa was diagnosed early in 2018 with ALS also known as Lou Gerhrig's disease.  Growing up she had struggles in life to name a few: addiction, being a single mother and weight.  Lisa wanted to change she was not happy with herself.  For the last 10 years she has been watching what she was eating, going to the gym almost everyday.  The benefits paid off.... She has been sober for 15 years, stopped smoking and she lost 150 pounds.  She looks and feels fabulous.  At the gym she was working on her arms to get them more tone.  In late 2017 Lisa noticed that her wrists were hurting.  She just thought no big deal...I must have over did it at the gym.  A couple of weeks went by and it was not getting any better she went to the doctor and they told her that she has carpel tunnel and to wear wrist braces and to take it easy for a while at the gym.  She noticed she was having a hard time grabbing things, she would drop things and her arms felt like they were numb.  She went back to the doctor and they said that they wanted her to see a neurologist.  At the neurologist they did a series of tests: MRI, blood work, EMG (very painful), muscle biopsy, CT, urine test.  When all the tests came back they called Lisa in and the Dr. said "I am sorry you have  terminal ALS.  You need to set up speech therapy, physical therapy, breathing therapy, occupational therapy and nutritionist."  Lisa was just trying to get over the 3 words that she did not want to hear nor did she understand....ALS and then the word TERMINAL!!  She thought this can't be happening.  I work out, I eat right, I am finally happy, I love my life this has got to be a nightmare.  Lisa asked the Dr. "How long do I have?"  He replied "2-4 years but everyone is different, it just depends on how fast it progresses and there is no treatment to slow it down or stop it."
 I have known Lisa for 30 years.  Lisa is the oldest of 3 she has younger brothers Kevin & Cory.  She is the strongest person I know.   She has always been very independent and she is use to doing things on her own, but now she is realizing that this is the one thing she can't conquer on her own.  I have seen the physical changes in her.  She has lost weight, there is a lot of  muscle loss in her arms, her fingers are bent in, she can't lift, it's hard for her to get dressed and she is depressed.  
We as a family want to raise money for Lisa so she doesn't have to worry about how am I going to pay my medical bills, for my medications, rent, food, toiletries, etc........  We just want her to focus on herself and enjoy every minute of every hour of every day that she can because we don't know when everything will end.
Her medical needs are going to be on going.    As this ugly disease progresses Lisa is going to need more and more things.
Thank you for taking time to read this and please keep Lisa in your prayers.

Organizer

Bonnie Trattles
Organizer
Brook Park, MN

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