The Blessings of My Disease (film)
My name is Chris Rosati. I am a father, husband and friend. I also have ALS, Lou Gehrig's disease. While the disease is destroying my body, the journey is fueling my soul.
ALS is devastating. But there are some blessings. I get to be amazed by the good in people every day. I get to experience an overwhelming and never ending wave of love. I hardly ever worry, and never about something trivial. I now see beauty in so many simple things. I no longer fear failure... or much of anything else. I know something you don't know - something wonderful. And I know how blessed I am.
Here is CBS News coverage of this project:
The Blessings of My Disease is a video project featuring inspiring persons with ALS (PALS). But it is not just for those suffering with the disease. The PALS I will interview have something to teach everyone - healthy and ill.
This Summer I will travel the country meeting and documenting conversations with some of the most amazing people you could ever hope to meet. The way they live their lives has forever changed and enriched the lives of those around them. I m betting they will do the same for you once you hear their stories.
Funds raised through this page and elsewhere will be used to cover videography fees (est 85%) and travel expenses (15%).
We will attempt to have media coverage at every stop. We will also share the interviews with the ALS Association and are asking them for help with funding. The videos will be shared on YouTube, and we will make every effort to promote them through social media, traditional media, film festivals, etc. And, of course, every donor to this page will be notified of every new video posted.
I intend to help change the world in the time i have left. I invite you to join me on the journey. Thank you for supporting this project.
Posted by Chris Rosati
I am also working on a book (which does not require funding!). If I can get that done I want to provide each of you a copy.
Thank you again. Enjoy this day!
Posted by Chris Rosati
Hi Chris! My husband & I watched your first CBS interview & were deeply moved and again in this past Sunday's report. In light of the ice bucket challenges, I wanted to find a way to help you directly and I found this page. I was planning to donate tonight, and saw that you closed out the option to donate. I think you should reopen this donation. I promise to spread the word & ask others to do the same. Together we can help you finish this project! With love & kindness, Aimee Cyran
My mother passed away from ALS in 2007. She knew what you knew ... and when I was going through it with her I knew it too. I knew what really mattered and everything else just fell away. The people ... the people you love and who love you. That's ALL that's important. But somewhere along the way, after she died, I forgot. And I know she wouldn't want me to forget, because forgetting would mean that I didn't learn anything from this difficult experience she endured ... with such amazing strength I must add. I remember that she didn't say, Why Me?, she said Why Not Me. Losing my best friend is the most difficult thing I've had I endure but seeing you ... You remind me of all that I've forgotten, all that I once knew. But most importantly what she, mother knew. Don't sweat the small stuff, don't focus on the superficial ... It's family that makes life worth living and it's Family that will get you through. Thank you Chris.
His name is lee pearce,since his diagnosis he also has seen a different an important side of life. if you could face book lee Pearce with some encourageing words it would be great blessings. we walk for Tampa Florida chapter on March 8 to help defeat ALS. our team name Is Lee's Mighty Rams thank you and God bless Lee's Aunt Millie
what an inspirational story .my nephew was diagnosed with ALS when he was 35 he is now 39 she has a Wife a daughter 13 and a son 9.He communicates only with his eyes through a computer.He resides in a community nursing care facility.his name is Lee pierced
I was greatly moved by seeing the story on CBS Sunday Morning show. It appears this great tragedy has given you true enlightenment. I hope you can share your insight with others. Thank you so much for sharing!
My dear friend Summer was diagnosed with ALS 2 years ago she is 34 years old, with a master's degree in English. She is writing her memoir about her journey. Summer amazes me everyday with her determination, she can no longer use her hands and writes with her stylist in her mouth. Speaking is becoming increasingly difficult.What more can I say? I no longer have bad days. Summer is an inspiration to me. I wish she could be interviewed for this documentary. Bless all ALS patients, families & friends.
I'm touched beyond belief. My hubby and I are poverty stricken or I would send money. I just want to say I will take a page from your book and value my very life more. I already have discovered some of what you have on my own, dealing with unemployment, hunger and homelessness has a way of stripping away all the unimportant things. It gives you a real perspective of what's important ... all thr things money cant buy. And so in honor of you and your spirit, I want you to know as long as I live I'm goingto make your words my montra. "If I have time I'm going to change the world". You already changed me my friend. :-) It takes your perspective to remind us what a real,tangible gift this time and this life is. You are my hero. I will never forget you.
My husband started out in 2009 with tingling in his right hand. 48 years young. He left behind on July 15,2013 a wife, and 3 young daughters ages 12, 10 and 8. My heart goes out to you and your family. My only advise to you is PLEASE spend every moment you can making memories with your family and friends, don't leave them out. My husband died on our anniversary date of marriage, July 15, 1999 date. I remind our children every day the love their father had for them and that in heaven he continues to watch over them. My husband gave up when he got worse and choose to live with his brother months before his death thinking that he would spare us pain. He only hurt us worse by shutting us out. Please don't shut out those that love you. That is my advise. Tomorrow valentines day my daughters and I are sending pink valentines balloons to the heavens for a dear PALS friend of mine who lost one of her twin daughters on this day. My Christian love, prayers and hugs are with you and your family and may you stay strong on your journey with ALS. GOD BLESS and take care.
Our priest shared your journey with us today and I wanted you to know what an inspiration your are to me!