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#NoahsfightwithBohring-Opitz

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Hello this is Noah my 7 month old son.He was born at 33 weeks with a pda that wouldn’t close. During his pda his vocal chord was paralyzed. His blood gas co2 level was very high then. He was put on oxygen due to bpd and now 7 months later has been diagnosed with bronchial trachial malacia. He has also been diagnosed with hypotrophic cardiomyopathy where his heart muscle is very thick. I’ve found a doctor at the Mayo Clinic who specializes with baby’s hypotrophic cardiomyopathy. At some point my son will go into heart failure if we don’t get him better care and act faster. He may also have to have a tracheotomy which would not only be life changing to him but to our family. I have a two year old who misses his brother so badly as do we and all we want is for him to be home with us. But it’s not safe for him to come home right now. He’s lived in the hospital his entire life and as a mother of two it’s hard to be there for Noah everyday I can’t even afford day care to be with Noah everyday. I’m desperate for help and prayers.
Update we are transferring to Boston’s children’s hopsital and currently need all the help we can get because they are trying to release Noah before he goes meaning I will have to pay out of pocket to make it there as well as pay for food and stay for us. Because he won’t be admitted In the hospital please help us and our baby boy he deserves this after all children’s has done
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Donations 

  • David O'Brien
    • $1,500 
    • 5 yrs
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Organizer and beneficiary

Christina Chance Woods
Organizer
Independence, MO
Christine Cook
Beneficiary

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